I am not sure what to do anymore.
My wife has been diagnosed with hEDS and for the past three years she has been plagued by chronic and debilitating back pain.
We have seen numerous specialists and consultants and spent a fortune on private medical care. And overall nothing has improved.
Nobody has even been able to give us a concrete cause for the pain.
We have done our own research and been dismissed by doctors and we have tried so many at-home remedies I’ve lost count.
When we got married I told her I would support her and protect her and I don’t know what I can do anymore.
We have tried the following with no success:
- facet joint steroid injections
- radio frequency denervation
- epidural steroid injections
- medical marujana
- opioid painkillers
- low dose naltrexone
- chiro and physio
- a spinal cord stimulation, implanted in November.
Now her consultant wants to remove the stimulator because she is struggling with recurrent infections around the site of her battery.
Everything else has failed or worked for a short period before she becomes tolerant of whatever it is.
Opioids interfere with other medication causing problems of their own.
I truly am lost for ideas.
Our only remaining options appear to be colossally expensive and not achievable for us.
Any advice would be welcome and thank you for taking the time.
EDIT: We’ve noticed that movement and exercise will cause recurrent abscesses and infections around her battery site so physio is a difficult area at the moment.