r/DisabilityHistory

Etta Lake (career spanned 1886-1894) was a British sideshow performer who was born with a form of Ehlers-Danlos syndrome, which is a connective tissue disorder that can cause major skin elasticity and hyper mobility. She was known to be very charming and had a lot of admirers.
▲ 623 r/DisabilityHistory+2 crossposts

Etta Lake (career spanned 1886-1894) was a British sideshow performer who was born with a form of Ehlers-Danlos syndrome, which is a connective tissue disorder that can cause major skin elasticity and hyper mobility. She was known to be very charming and had a lot of admirers.

I’ve always been very awestruck by her picture ever since I first saw it, she was very beautiful and had gorgeous eyelids and eyes (very niche tidbit to focus on, I know, but there’s something so soulful about her eyes)

It appears that she was quite private about her personal life and never wanted to give interviews, as there’s very little information known about her.

Some facts about her:

-she was born in England, though I haven’t been able to find her exact birthplace. I also haven’t been able to find information on her birth year or early life.

-there are several variations of Ehlers-Danlos syndrome, all of which are connective tissue disorders. Currently there are 13 different diagnosable types. The two symptoms most commonly associated with the condition are skin elasticity and joint hyper mobility (although these symptoms are not present in all of the variations). The type that Etta had, causes extreme skin elasticity and extreme bruising.

-chronic pain is also a very common symbol of ehlers-danlos, so she most likely dealt with chronic pain throughout her life.

-she was blonde.

-she was described as being very charming.

-she started her sideshow career in Buffalo, New York in 1886.

-she worked at several dime museums in and around New York in the late 1880s.

-she worked for Barnum and Bailey Circus during the early 1890s.

-her performances were extremely popular and she often drew large crowds who wanted to meet her (which is why it’s strange that not much was written about her)

-she stretched her skin so thin that it appeared transparent when she held it over bright lights.

-her performances often involved her stretching the skin on the back of her neck over her face, or puffing her cheeks up very wide.

-she was professional rivals with a lot of male sideshow performers with ehlers-danlos syndrome. She was one of very very few female performers with ehlers-danlos which made her more popular with audiences since she was a woman with the same condition.

-she was promoted as being worth the price of admission alone.

-it was reported that she had a lot of admirers.

-she typically started her performances off with a short lecture about her life.

-she performed next to Princess Bonnahow (a professional “fat lady” performer that I’ve previously done a write up on). The two were noted to have gotten along well.

-she enjoyed going on stage looking very average only to deeply surprise audiences when she would stretch her skin.

-It was reported that she could stretch her skin 12 inches away from her body.

-she typically performed four shows a day.

-she seems to have retired from her sideshow career in 1894, as I can find no new information about her past this date. I hope this means that she was able to retire and settle down and have a nice life. (Based on how popular she was, I also assume she made good money)

-I haven’t been able to find the year she passed away.

I hope she was able to have a long and happy life with people who cared about her. I like to think that since I couldn’t find any mention of an early death in newspapers that she did go on to have a long life. She may have just wanted to live a quiet life after her career.

u/EphemeralTypewriter — 3 hours ago
▲ 63 r/DisabilityHistory+1 crossposts

A letter from a Japanese exchange student who saw Rosa and Josepha!

don't know when this photo was taken, but it seems to have been taken the day after the two of them received treatment at the University of Munich Medical Center. The person who wrote this letter is That international student's friend, and it looks like they made a copy of a photo he gave them and pasted it into this letter, which they sent to someone else. He says this photo is “rare.” The handwriting is in cursive and hard to read, so I’m currently trying to decipher it!

For more on Rosa and Josepha, check out this great post! ↓

https://www.reddit.com/r/SideshowPerformer/s/YQRFclydUx

u/Full_Celery_8158 — 1 day ago

Jennifer Keelan-Chaffins on National Disability Independence Day

A rising tide lifts all boats, so does inclusion

March 12, 1990 forever changed the course of disability rights in America. Over 60 activists ditched their wheelchairs and crutches and crawled up 83 marble steps of the U.S. Capitol.

Jennifer Keelan-Chaffins, who had cerebral palsy and was only 8 years old at the time, even told organizers who tried to stop her, “I’ll take all night if I have to.”

The Capitol Crawl worked as the Americans with Disabilities Act (ADA) was signed into law only four months later, on July 26, 1990.

That date is now engraved in history as National Disability Independence Day, and 2026 marks 36 years since the signing. It also falls during Disability Pride Month, running through all of July. A reminder to workplaces that disabilities are not a reason for exclusion, and that access shouldn't be something people have to fight for.

What is National Disability Independence Day all about

National Disability Independence Day isn't just about marking the anniversary. It's also a chance to check how much has actually changed for people with disabilities.

There's also a new theme every year. 2026's is all about "The World Works Better With Us," which sums up this day perfectly. Do something with everyone in mind, and it usually just ends up outright beneficial. Curb cuts, closed captioning, audiobooks, and text-to-speech all started that way, a win-win all around.

So what does the ADA actually do?

It's a civil rights law that says employers, businesses, transit systems, and government services can't discriminate against someone because they have a disability. On top of that, they often have to make changes so people with disabilities can actually participate.

The ADA defines disability as a physical or mental impairment that substantially limits everyday life activity. And it's intentionally broad like that. It covers things people expect (mobility issues, blindness, deafness) and a lot of things people don't immediately think of, like diabetes, PTSD, or a learning disability.

What changed for the workplace specifically

Before the ADA, none of this was guaranteed. Buildings had no ramps. Buses had no lifts. TV had no captions. Employers could legally turn someone down just for having a disability. After 1990, that changed. Here is what changed:

Before the ADA (pre-1990):

  • Rejecting an applicant for having a disability was legal, no job-related reason needed
  • Interviews could ask "what's wrong with you" or require a medical exam before any offer
  • Accommodations (equipment, schedule, interpreters, screen readers) were entirely optional
  • Buildings, bathrooms, and break rooms had no legal accessibility requirement
  • Firing someone after a diagnosis or disability came with little to no legal recourse

After the ADA (1990 to now):

  • Employers with 15+ staff can't deny a job over disability alone
  • Pre-offer medical exams and disability questions are restricted to essential job functions only
  • Reasonable accommodations are a legal duty, unless they create undue hardship
  • New construction and renovations must meet accessibility standards
  • Employees can file a complaint with the Equal Employment Opportunity Commission (EEOC) if they believe they've been discriminated against.

 

But there's still room to get better. Even 36 years later, there's a wide employment gap. 

In 2025, the employment rate for people with a disability was 22.8 percent, compared to 65.2 percent for people without one. For the 25 to 54 age group specifically, only about 45 percent of people with disabilities were employed, against 83 percent for people without. That gap is wider than any racial, gender, or education gap tracked in the same data.

How managers can make the workplace more inclusive

Inclusion shouldn't last just for the day. And a lot of the changes that help people with disabilities end up helping everyone else too. The same logic behind building a strong workplace culture overall.

A few things that make a real difference in the workplace are:

  • Make accommodation requests easy: A lot of people don't ask because they don't know who to ask, or are afraid to.
  • Review physical and digital access: Don't stop at physical accessibility, with the technology now, digital accessibility matters just as much.
  • Train supervisors on spotting disabilities: Conditions don't always show, and often get mistaken for someone being unreliable, when really they just need support.
  • Check the hiring pipeline, not just the workplace: Timed or in-person-only interviews, plus outdated job requirements, can filter out qualified candidates.
  • Celebrate the people already there: Highlight employees with disabilities on your team, making sure their contributions get seen like anyone else's.

None of this requires a big budget. Most accommodations cost employers less than $500 when there's a cost at all. The barrier is usually awareness, not money.

u/SafetyCulture_HQ — 1 day ago
▲ 143 r/DisabilityHistory+1 crossposts

My honest thoughts regarding a 2019 article about a collection of sideshow performer pictures titled “A Not Nice Postcard Collection”, and why I think it is a lovely postcard collection and not something that should be shamed.

Hhhh…. So everyone here knows that I take sideshow performer history and disability history extremely seriously. That’s the reason why this article made me pause the way it did.

The way it’s titled and a lot of the phrasing used within it feels extremely judgmental and paints this horrifying picture of a collection of postcards so vile that the author felt sickened.

The collection is about sideshow performers, that’s the beginning and end, there is nothing horrifying or vile about performers (or people) who were born with physical differences. It’s something that gets me heated because of how recent the article is and because all of the postcards show real people— human beings who should be respected as such— there is no reason that the people depicted in the postcards should be treated or written about like they’re monsters. I felt sickened reading the article because of the judgement.

I want to address a couple things… I know this is an article from 2019, I also know that the author has since passed away, I also know that this is an opinion piece and that everyone can have their own opinion. However, my gut reaction upon reading this article was sadness and disappointment. Sadness because I know that had I seen this postcard collection in person, I would have be thrilled. I would be so incredibly happy to point out all of the people that I know and have researched. Obviously, I know that not everyone understands who different sideshow performers were, and not everyone has the capacity to understand and want to learn about disabilities and disability history. And disappointment because I would have thought that someone well educated in postcard history would at least be understanding and interested in learning about the topic at hand.

I’m in not way trying to speak ill of the dead either, I just think it’s unfortunate that an article like this had to be published in 2019. The title itself is unfortunate. It sounds like the collection of postcards was anything but “not nice”.

I think a part of this also has to do with how rare it is to find other people who are passionate about collecting ephemera related to sideshow performers, and so this person (who owned the collection) felt happy enough to share it with someone. But they ended up sharing it with someone who didn’t quite understand.

Also… also… I need to address the unfortunate phrasing of “unfortunate victims of a medical condition called microcephaly”. That phrasing really negatively affected me. NO ONE with a medical condition (or disability) should feel that they are an unfortunate victim. On top of that, microcephaly should not be looked at in that way, it is not something that should be shunned or judged.

(Hhhhhhh…. It also irks me that there is quite a bit of false information regarding microcephaly. This article is from 2019!! There were resources then that would explain that microcephaly is both a spectrum and that life expectancy varies. People born with microcephaly can have long and full lives, it is not a death sentence, and it is not a condition that people with the condition or parents who have children with the condition should be ashamed about.)

As someone with some learning disabilities, I’d be appalled if someone talked about my conditions in such a way.

We are all human and we should both treat each other with respect and be treated with respect.(I’m sincerely glad that everyone in this community understands this simple lesson)

I think it’s lovely if someone collects sideshow performer pictures, especially if they have a genuine understanding and appreciation of who everyone was. I don’t always have people in my own life who understand my collection, but when I find people who understand or who are at least interested in learning more, it means a lot.

Ending thoughts… the article just rubbed me the wrong way. People should feel comfortable collecting the ephemera they want to collect. THERE IS NOTHING WRONG WITH COLLECTING THE PICTURES OF SIDESHOW PERFORMERS!!

For anyone interested in reading the article, the link is here:

A Not Nice Postcard Collection | Postcard History

I’ll be making a longer post soon as to why I enjoy collecting the ephemera I’ve collected soon.

u/EphemeralTypewriter — 2 days ago
▲ 713 r/DisabilityHistory+6 crossposts

Phineas Gage, an American railroad construction foreman who miraculously survived an iron rod completely piercing his skull in 1848, fundamentally changing his personality and shaping early neuroscience.

In 1848, 25 year old railway construction foreman Phineas Gage suffered a horrific accident in Vermont. While using an iron tamping rod to pack explosive powder into a rock an accidental spark ignited the gunpowder. The approximately 110 centimeter long nearly 6 kilogram iron rod shot upward like a spear entering through his left cheek completely piercing the front of his brain and exiting out the top of his skull. Gage never lost consciousness. He spoke within minutes and walked into a cart to see a doctor. While his physical wounds healed well, the accident destroyed his left frontal lobe. The once polite, efficient, and hard working foreman became impulsive, profane, and irreverent. His friends said "Gage was no longer Gage."

u/Front-Coconut-8196 — 3 days ago
▲ 115 r/DisabilityHistory+1 crossposts

TIL that John Muir, the Scottish-born American naturalist, has a great-great grandson, Michael Muir, a disability rights advocate who runs Rush Ranch, a historic 2,070-acre farm in California. He created the Stonewall Sporthorse, a mix between Appaloosa, Percheron, Friesian, and Knabstrupper horses.

en.wikipedia.org
u/EphemeralTypewriter — 3 days ago
🔥 Hot ▲ 8.0k r/DisabilityHistory+1 crossposts

Jyoti Amge, born on December 16, 1993, in Nagpur,India, is officially the world's shortest living woman, measuring exactly 62.8cm(2ft 0.7in). Her restricted height is caused by a genetic disorder called primordial dwarfism.

u/EphemeralTypewriter — 6 days ago
▲ 25 r/DisabilityHistory+1 crossposts

Robert Nostri’s Tribute: A Young Filmmaker with Cystic Fibrosis in 1963

Despite living with cystic fibrosis at a time when less than 10% of people with the disease lived to adulthood, 22-year-old musician and filmmaker Robert Nostri dedicated his last few months to creating a short documentary about patient life at the Los Angeles Children's Hospital in 1963. His film is a rare early example of a film shaped by lived experience of disability and remains touching today.

Note: I'm not the author of this post... but I do know the author and provided my own perspectives on Nostri and his film as a person with CF myself.

circulatingnow.nlm.nih.gov
u/and__how — 3 days ago
▲ 2.3k r/DisabilityHistory+2 crossposts

Claudia L. Gordon, the first Black Deaf lawyer, and first Deaf individual hired by the Whitehouse

She was the valedictorian at her high school, graduated with honours from Harvard, refined and enforced inclusion orders for people with disabilities in aid for Hurricane Katrina, and worked in the Obama administration as the first Deaf person to work at the White House in a detailee capacity. Read more here.

u/KaiahAurora — 6 days ago
▲ 466 r/DisabilityHistory+1 crossposts

The physically demanding posture Michelangelo Buonarroti adopted while painting the Sistine Chapel ceiling may have contributed to the development of cervical osteoarthritis. In fact, Michelangelo had vision problems and was forced to "hold a letter above his head with his arms raised".

u/-_-Bepo-_- — 5 days ago
▲ 171 r/DisabilityHistory+1 crossposts

Ritter's Midgets was a vaudeville/sideshow performing troupe made up of several European and American performers who were born with dwarfism. The group was organized and managed by Emil Ritter, and usually consisted of about 7 or 8 members, but there could be as many as 10.

These types of performing troupes made up of entertainers with dwarfism were extremely popular in the late 1800s through the 1940s or 1950s. These troupes were staples of vaudeville and circuses in the early 1900s and provided opportunities for people to start careers in the entertainment industry, though they were often typecast and were not always presented respectfully.

The Ritter’s Midgets entertainment group specifically was known for their appearances and performances at children’s hospitals, where they would entertain and cheer up patients. After their performances they would pass out free pictures of themselves for the children to keep.

All of the entertainers who made up Ritter’s wore matching fashionable clothing and often performed extensive musical and dance acts, though occasionally they would also feature comedic boxing tournaments.

u/EphemeralTypewriter — 9 days ago

NH filmmaker makes his movie of life with disabilities free to summer camps

We hope it's OK to share this story we just published — it seemed like it might be of interest to folks in this community.

Summer camp gave Samuel Habib, who uses a wheelchair and communication device, an independence and confidence he’d never known. He went on to create two Emmy-award winning films documenting his journey with disabilities. Now Habib is making those films and a discussion guide free to non-profit summer camps and programs across the country.

“I hope camps, schools and colleges who watch this film will commit to include disabled students alongside their non-disabled peers,” Habib said. “All of my schools have been inclusive, and that made a big impact on my education and led to my life now as a filmmaker.”

Click the link above to read more.

u/nhpublicradio — 10 days ago