Post Critical Illness Polyneuropathy and/or Myopathy
Has anyone else dealt with Post Critical Illness Polyneuropathy or Myopathy or both like me??? I’m really struggling and would love some advice.
I haven’t gotten around to posting my full story yet but I am really struggling to cope with neuropathy. I still can’t feel my right foot and much of my lower right leg. Then I have less severe neuropathy in my left foot and right hand, and it is barely present in my left hand.
The pain is bad. I’m on 800mg of gabapentin 3x a day but it is still really severe even on this dosage. We just went up a couple weeks ago after getting the all clear on my kidneys (full recovery after acute kidney injury) to go up but it hasn’t made a difference. Also on 100mg of methadone daily and going up to 120 next week. But I don’t feel that one touches the neuropathy at all.
Any tips, tricks, ideas or just support would be so appreciated. Mainly I would especially love to hear from anyone who has had a significant improvement in the neuropathy and how long did it take? It’s been exactly 5 months since my critical illness. I know it’s not long in the grand scheme of things but I am really miserable.