r/LoeysDietz

Hey guys, I’m 29 and recently diagnosed with loeys Dietz! I had an echo and EKG through my cardiologist. Normal.
Had my MRA of head/neck, pelvis and chest. Also normal. What questions are good for my vascular specialist apppintment. I’m on metoporol. I have a son who’s negative. We’re pursuing IVF for another child to avoid LDS. What should I ask/go over? Any insight is helpful!