r/PSPalsy

I am a little overwhelmed - husband was diagnosed with PSP about 3 months ago. He’s not old. In hindsight, the symptoms have been there for a few years
I carry a great big lake of sadness- for him, for me. Sometimes a few drops spill over in ridiculous circumstance: when the English boys ask God to save the King, an act of sadness.
Mostly I deal with cerebrally, thinking of disease progression is too grim. Throw myself at work
Anyway. I think I will need some experienced advice
Thanks for reading

TLDR: How has cognitive decline looked for your loved one or you with PSP? I am trying to understand what to anticipate with my mom.

Context for why I’m asking: There have been some patterns with her speech. She sounds out of breath when I talk to her, but when I’ve done oxygen levels at her primary, her oxygen is in a good range and indicates no issues. Is this apart of PSP as well? When I find videos online, a couple people seem to be speaking in this spread out cadence that sounds of breath, with very few words. I’m worried if I should anticipate for dementia.

my mother has slowly stopped speaking english, and seems stubborn to only speak in her native language. i try to joke with her that she forgot to teach it to me, and for some reason she starts to speak english again (to scold me that i should’ve learned haha). but still, she seems to be struggling to tell me what her thought was.

she tells me just to use my phone to translate but this is over the phone. i used to do this next to her years ago when we’d gossip secretly. i’d record her on google translate, but i don’t know of a way to do this over the phone.

she also seems to just say a thought then hang up. forgetting to say bye, or does, but it will be one or two sentences, she will get her answer and hang up.

she isn’t diagnosed with dementia, only PSP.

she also says “i can’t. i can’t. i can’t.” if i ask her to speak in english. she has been repeating words for a year but it’s been very bad lately.

is this normal with PSP?

Has anyone you know been involved in this study?