Is there a connection between my PANDAS (which started when I was 7) and my subsequent episodes of vivid hypnagogic hallucinations as I fell asleep? I know kids with PANDAS can have REM issues but I'm not sure if it correlates with hypnagogia.
My son is refusing more extensive bloodwork to test for Lyme, strep, etc. He developed severe OCD plus had a huge decline in school performance over the course of weeks.
Can he get a single test for Lyme? What are our choices to rule out PANS? Is it only bloodwork? We have an appointment with a neurologist but who knows if they will test for any underlying infections. We also hope to get an MRI. Is our only choice to try to continue to get bloodwork through a functional doctor? How about an immunologist? Any ways they can test for underlying infections? Or would they?
My 7 yo daughter had her first big bad PANDAS flare back in April. Confirmed strep prior to that. She was treated with a month of Azithromycin and improved dramatically. About 6 weeks ago she had a minor illness and flared somewhat... some OCD symptoms came back, but have been manageable. Today she came home from summer camp and is clearly unwell again. I of course feel panicky every time she gets sick now, because her original flare was horrifically traumatizing for us all.
My question is when you make the call to go straight to antibiotics for an illness. I realize that not every illness is bacterial. But we have an Aziz prescription "on file" at the pharmacy for if we ever need it, and I'm wondering whether to just do it, rather than risk things getting bad.
If you have a child with PANDAS, how do you decide when to treat with antibiotics vs when to just accept that this one has to run its course? I feel like the risk of unnecessary antibiotics is lower than the risk of an unchecked flare.
I’ve have been doing research all night and just can’t believe it. It’s brought me here. I’m 21f. Ive been experiencing symptoms my entire life but it became much more intense at 18-19, had it really bad at ages 9-16 on and off too. It’s been over a week and it’s like nothing has ever been wrong with me, I’m reading that this is possible but… is it? I guess I’m proof. All because of a common cold, I thought I’d feel worse if anything but all of my symptoms have improved. It feels like a miracle but… has anyone else experienced this. can I expect them to come back? I wasn’t even sure if I had PANS before but I’m starting to feel pretty damn sure now