r/Tarlovcyst

Complete Loss of Bowel Function

Two years ago, I stopped being able to go to the loo, completely and utterly.

I have to take a cocktail of very strong laxative drugs to make anything happen and am more or less housebound for half the week due to the unpredictable nature of the drugs. Without them nothing happens. Bladder function is overactive but ok.

I have been down every avenue imaginable to try and get this fixed, doctors mostly don't believe me or tell me to eat more fibre.

I recently got a full back MRI in the hope that may shed some light and specifically asked they looked for cause of loss of bowel function
.
"Large perineural cyst at S3 level on left" was reported, no size given.
Conclusion: No pathological findings to explain patient's symptoms.

It sounds like a slam dunk cause to me and a very relevant finding but I am new to the world of Tarlov / Perineural Cysts. I'd appreciate any input.

reddit.com
u/EquivalentAsk9 — 21 hours ago