r/Tetralogy_of_Fallot

▲ 6 r/Tetralogy_of_Fallot+1 crossposts

Heart healthy children

My partners first born was born completely healthy, however our daughter has TOF. We would love another child one day but we’ve always been told once you have one with a CHD the chances are increased significantly! I would just like to know if anyone’s ever had a heart baby and then had a heart healthy one? We are quite young, 23&25 and our daughters surgery was the biggest thing either of us have ever been through and wouldn’t change it or her for the world, but knowing her surgery was planned for 7 months then 4 days after that appointment she had her surgery at 8 weeks 6 days and she is yet to have another surgery one day in the future scares us incase our second may also end up with a CHD. We had lots of tests done during my pregnancy (our daughter is almost a year) and they came to the conclusion it was something that “just happened” rather than any cause or genetics. That being said, it’s extremely terrifying, the fear I felt when she had her chest re opened and was told “she needs to make it through the next 24 hours” I don’t think I could ever do again.

reddit.com
u/Pitiful_Finding_7158 — 2 days ago

crooked smiles?

Wow, just found this group, it feels crazy seeing so many of us! Weird question: I have an asymmetrical face- not super noticeable usually but it's definitely clear when I smile that one eye crinkles more than the other and my smile itself is pretty lopsided. I don't think it's an additional condition; my cardiologist explained it as happening because of uneven development due to my heart defect. Out of curiosity, does anyone else have this? It's always been my biggest insecurity but as I've gotten older I'm just thankful I didn't have more serious Tof related things to worry about (so far).

reddit.com
u/butternutsquash44 — 2 days ago

Effects of Alcohol on TOF?

I’m 19M just started drinking with my friends. Probably max at 2 times a month on average. 6 shots average per session. I had 5 open heart surgeries but have been out of trouble for the last 7 years? I know this probably is bad for me but how bad?

reddit.com
u/Choice-Material-5951 — 4 days ago