VACTERL; duodenal atresia, anal atresia, CHD, sacral dimple; tethered cord, limbs
My daughter is currently 8 months old, the ultrasound tech seen that my daughter had (double bubble) on my 20 week anatomy scan which is duodenal atresia. When she was born they quickly realized she also has anal atresia specifically rectovaginal fistula (meconium passed through vagina due to connection). She had duodenal atresia repair at 2 days old and a colostomy put in place. Around 1.5 months old she had anal atresia repair and at 3 months old a colostomy reversal. We spent 53 days in the nicu mainly because she had a feeding/swallowing issue which she needed a milk thickener! She was also seen by echocardiography because she has an extra vein pumping oxygenated blood to the wrong side of her heart causing it to work harder! She also has to be seen by urology and neurosurgery for having a sacral dimple (tethered cord) and most likely will need surgery for untethering! Overall she’s a healthy and happy baby, she just has some complications! It’s a rough and emotional road but becomes manageable with time! If there’s anything I should know about tethered cord correction please inform me so I can be prepared!