r/alopecia

I could really use some perspective from people who’ve been in a similar situation.
I’m talking to a guy who honestly checks every box for me, and then some. We met on a dating app, we’re long-distance, and things have been going really well. During the first week, I told him I have alopecia totalis. I don’t have hair, eyebrows, or eyelashes. He was incredibly kind about it and said it wasn’t an issue because he felt we had a genuine connection.
His response reassured me, but I’m still scared.
I’ve never been in a real relationship before, and I keep wondering what it’s actually like for people with alopecia or similar conditions to be in one.
One thing I can’t stop thinking about is the little everyday moments. I love wearing makeup, and it gives my face more contrast. Without it, I don’t think I look ugly, but I do feel like I look unwell, which makes sense given my condition. I’m nervous about things like waking up next to someone for the first time with no makeup, no eyebrows, no lashes..just me.
How did you navigate those fears? Did they ever go away? If you’re the partner of someone with alopecia, what was your experience like? And for anyone who has a visible condition, how did you learn to feel comfortable being fully seen by someone you cared about?
I’d really appreciate honest experiences, whether they’re encouraging or challenging. I just want to know what real life looks like.

I lost all my hair when I was 17, and had some level of alopecia for a few years before that as well. My hair has started growing back in the last year, aged 36 (no meds, just naturally).

Seemingly alongside this, I keep getting brief sensations on my skin, like crawling, or a breeze when it doesn't make sense. I'm wondering if its due to my brain not being able to process the slight information from the hairs? I keep thinking there is something on me (e.g. an insect), and feeling the need to brush something off with my hand. However, this isn't entirely inline with my hair growth - e.g. I've gone from zero leg hairs on my right leg to three visible hairs on one side of it, but I sometimes feel sensations on the other side of it. I don't know if this is because my skin has slightly changed in preparation for hair growth and I'm just feeling micro changes in the air that the average person is used to and can block out... Or if this is completely unrelated.

Has anyone else who hasn't had hair for a considerable length of time experienced this?

Gente quiero saber q estudio de sangre se hace para saber q influye en la alopecia y caída del cabello.

Hi everyone,

I have androgenetic alopecia and I'm looking for advice from people who have actually found something that helped.

Has anyone had success with supplements such as biotin, or any other products? Are there any treatments that are considered relatively safe and low-risk?

The problem is that I have heart arrhythmias, so I'm quite worried about using minoxidil because of the potential cardiovascular side effects. I also have hormonal issues, which may be contributing to my hair loss.

My hair loss hasn't progressed too far yet, but my hair has become extremely thin, fragile, and breaks easily. I'd really like to do something before it gets worse.

I'd appreciate hearing about your experiences, what worked (or didn't work), and any suggestions I could discuss with my dermatologist.

Thank you ❤️

I’ve had braids for seven years straight and I am giving my hair a break now because my edges are thinning. I have been looking into minoxidil but I’m not sure if it works for traction alopecia or if it’s only for hormonal hair loss. If you used it for your edges would love to hear experiences.

Hello all!

I was officially diagnosed with Frontal fibrosing alopecia (FFA) back in November 2025 via biopsy. After 3 rounds of steroid scalp injections and then getting put on Hydroxychloroquine and using liquid minoxidil daily.

I haven't dyed or bleached my hair since Sept 2021. I am in a spot where I experience I want to go back to doing some hair color/highlights.

I am looking into just doing either straight pigment color drops or semi-permanent type color over my natural hair without any bleach etc.

Has anyone had recommendations for brands to use?

I went through Gemini for some ideas that wouldn't irritate (since I'm avoiding it going directly onto my scalp), but the brands are either hard to get or don't have the color I want.

I am perfectly fine with something that washes out and just does a tint