I recently got diagnosed this year with Crohn’s. I’m still learning and new to all of this.
Does everyone judge the food they eat by the pain and nausea?
The only thing I’m really noticing is that my inflammation is still bad because of blood tests, but the pain really isn’t there anymore. ( it’s because I had surgery in March which helped!)
My question, should I really not eat all the food, even though they do not cause me any physical problems?
Hello. I was diagnosed with crohns Sept 24. I started a regimen of Avsola, which has been working great. In Jan, I had left-hand CMC thumb arthroplasty, followed by the right hand in March. GI did not want me to have any infusions during this time due to the surgeries. So, I am way overdue for my next infusion (it is scheduled next week). This is the frustrating part....I had a BAD FLARE this past week, and I am still so exhausted from it all.
My husband and family are supportive, but THEY CANNOT RELATE, so I feel like they do not want to listen to me complain. I realize they cannot fully understand the gravity of this diagnosis, but that does not help validate my feelings. I do not think they mean to be like this, and maybe some of it is me projecting onto them.
How do I get through this? I need to vent and help people understand that during these flares, I feel like doing NOTHING. I am usually very energetic and motivated, and I love being active, so maybe this is new to them. My family does pitch in around the house, so I cannot complain. I just wish I had someone to commiserate with. I am extremely emotional this week cause it has really taken a toll on me.
Does anyone feel the same way? I feel that posting in the group may make me feel better, cause I am sure I am not alone. THANKS:)