Hi! I was wondering if anyone here has mastocytosis or MCAS and uses the RingConn Gen 3 (or any version of the RingConn). I’d really love to hear your experience — especially whether the tracking helped you notice patterns, flares, or anything useful for managing symptoms.
Did it make a difference for you, or was it just “nice to have”? I’m trying to figure out if it’s actually helpful for our kind of condition.
Thanks 😊
Hi, this is NOT fungal. My derm team believes this is from "repeated Mastocytosis flares." These were words from the department "nail expert." I am always in a "flare,' it seems. In the grand scheme of things, this is technically the least of my major concerns. But, damn it..I just want to know what's going on and to have my normal feet back! Earlier, I was told this was not due to my Systemic Mastocytosis, so now I am having g to talk to my Onc/Hem about it..and him speak with the dermatology dept. Anyways, anybody else dealing with something like this? They just keep growing and cracking over each other. One is even lifting one of the cracks up. Sorry about your eyes having to witness this atrocity..thank you for reading!