r/mitralvalveprolapse

I had an aortic valve replacement and have a mechanical valve. It ticks like a clock 🙂 I'm on warfarin for life.
I went from the yellow book to an Excel sheet, and then built an app for myself. Sharing it in case it helps someone here.

It logs INR results, doses, vitamin K, activity and health events, with reminders, an INR chart with your target range, and email/export to your clinic.

It doesn't calculate or suggest doses. It's a logbook, not a medical device.

No account, no ads, no tracking. Your data stays on your phone.

Most of it is free. There's an optional one-time £4.99 (no subscription) for extra charts and a PDF clinic report.
iPhone only for now, and not available in the EU. I'd love feedback from long-time warfarin folks on what would be useful.

https://preview.inr-tracker.pages.dev

Hi all, I posted here several months ago before my TEE as I was sitting on the edge of moderate to severe. Following my TEE, my cardiologist does not think I need surgery right now, but wanted me to meet with the surgeon to establish care, as I am a grade 3/4 regurgitation. I am meeting Dr. Nifong at ECU, who I understand is one of the pioneers of robotic surgery for mitral valve prolapse specifically.

I have an echo scheduled immediately before my appointment with him, so we’ll have the most up to date scans available, along with my prior 2 echos, MRI, and TEE from the last year and a half.

I have EDS and am awaiting genetic testing to determine if it is hEDS or another subtype, such as the cardiac-valvular type or vascular. I also have POTS, diagnosed through a tilt table test, so I have a hard time determining if symptoms are from that or the MVP.

If you could go back to your first meeting with your surgeon, what are some things that you would ask them?

r/mitralvalveprolapse

Mechanical valve, warfarin for life: I built an iPhone app to track my INR

If you could go back, what questions would you ask your surgeon prior to surgery?