r/mitralvalveprolapse

Had my appointment with my gastroentoligist yesterday for my endoscopic ultrasound and biopsies results. So I have abnormal cells in my pancreas and they are still not sure if they are cancer or pre cancerous but they are going to operate and take it out. They are going to take just that section of my pancreas and my spleen also. I'm also having open heart surgery in august to repair my mitral valve prolapse and severe regurgitation. My gastroentoligist Dr Dowsett says both Surgeons will discuss and decide which surgery first. Both are at Royal North Shore Hospital my pancreas Doctor is Dr Jas Sumra and my heart surgeon is Dr Manu Mathur . I'm overwhelmed as it's a lot. 6 months ago I thought I was healthy. I'm a 61 year old female . Just getting my head around the possibility that I now have pancreatic cancer along with a damaged heart as it is enlarged. 🙏🏿

What was the outcome? From what I've read and seen on YouTube videos, it narrows the mitral valve opening so there is less regurgitation, but there is still some. What I don't understand is how it wouldn't make it harder for the left Atrium to push blood through the mitral valve into the ventricle, causing stress on the Atrium. Or, am I missing something?

I've also read that there is a high incidence of Afib afterwards that wasn't there before. So would getting the Mitraclip be just trading one problem for another?

Hello everyone! I (F23) was diagnosed yesterday with mitral valve prolapse and reading everything online about sudden cardiac death has been freaking me out. I was hoping to gain a more realistic point of view on the risks of this disease.

For context, I went to a cardiologist because I fainted on my way to work last week. Typical vasovagal syncope prodrome, but I had never so much as felt faint before so I thought it would be wise to have it looked at.

My labs were perfect other than slightly elevated cholesterol. After an ECG and an echocardiogram, my cardiologist told me I have MVP and an otherwise normal, healthy heart. Her exact wording on my chart after the echo: “Normal left and right ventricular size wall thickness and systolic function Atria are normal size Normal diastolic function Minimal anterior mitral valve prolapse with no regurgitation Trace tricuspid regurgitation”

My ECG was slightly off (minimal voltage for LVH and nonspecific ST abnormality) but she said they are normal variation.

She told me that my fainting was normal and unrelated, probably just because I was standing for a long time and sick the week before. Also that my MVP is normal and doesn’t require treatment or follow up unless I develop symptoms.

Of course, I googled MVP when I got home and was surprised to see the SCD risk. It seems that many believe the risk of SCD is understated/underresearched for MVP, and that it more likely affects young to middle aged women (me!). It is hard to not be anxious when reading that this disease can cause me to suddenly die, even if I have zero symptoms. I run or workout every day, and now feel anxious while doing so.

I just wanted to hear a second opinion on all this. Are there more tests I should have done to determine if my MVP is malignant, or is that knowable from the echocardiogram? Is this worth seeing another cardiologist for a second opinion? I trust my doctor, but am so unfamiliar with anything to do with the heart. Thank you in advance!

Edit: Forgot to mention: the reason she ordered an echocardiogram is because she heard a 3/6 holosystolic murmur. She said this was caused by the MVP.

Hello everyone,

I wanted to ask if anyone here has mitral valve prolapse (MVP) with mild mitral regurgitation and has gone through pregnancy. Were you able to deliver via C-section or normal vaginal delivery?

As a first-time mom with this heart condition, I’d love to hear about your experience and know which delivery method was recommended for you and why.

I have a scheduled C-section at the end of this month, and while I trust my doctors, I’m still feeling a bit anxious. If you’ve been in a similar situation, I would really appreciate any advice, tips, or words of reassurance that helped you before or during delivery.

Thank you so much for sharing your experiences. ❤️

I kept getting different answers on google, some saying no and some yes, so I wanted to check with people who have experience.

I was supposed to have a minimally invasive mv repair last year but it got pushed to this year, still waiting

Let’s say they call me in at beginning of August, should I be safe to travel (someone else driving) let’s say about 4 weeks after the surgery to take an exam at my university? Like a 2 hour train ride.

Does this so called “brain fog” happen? Has anyone experienced it first-hand?

Hey!
So Ihad panic disorder many years ago and I’ve got cardiophobia since that. So I stopped running or doing cardio, all I can do is something slow like yoga or calisthenics cuz I’m going insane when my heartbeat goes above 140. I’ve learnt that I could lower my heartbeat with breathing (during panic attacks I was hyperventilating which elevated my hb) but my problem is: after a short (like 1 min) cardio or any activity my pulse goes up (thats okay, I’m not fit at all) but I’m forcing my breathing unconsciously which is not the best when my body tries to get enough oxygen… so my heartbeat gets higher… and here comes my mitral valve prolapse… when I don’t breath properly extrasystoles come like crazy and my heart beats irregularly for minutes… like 30 extras in a minute or more and this is the WORST! And this is a neverending circle cuz I feel like I’m gonna die…
My cardiologist told me that my condition hasn’t worsened and I dont have to take any medication just going for checkups every third year.
My psychologist told me Im on the right path…
But I feel miserable… I cant enjoy any activity which normal people do (dancing, hiking etc)

Have you ever experienced anything like this?
What could I do to improve my mental and physical condition? Sorry for my english
TIA

Hi there, everyone! Last year, I got diagnosed with a mild mitral valve prolapse which is causing a mild to moderate regurgitation (among other diagnoses). Right now I am 21.

I got this diagnosis after I experienced lightheadedness, shortness of breath, chest pain and numbness a few times, which basically scared me and led to me seeing a cardiologist.

Anyways, since my diagnosis, I kept having short periods of time (which I call "episodes", I honestly don't know if this is the right term to use) when I'd experience symptoms like lightheadedness, shortness of breath, palpitations and/or nausea. So, I was wondering: does anyone else also experience them that way or is this just how they are experienced in general?

I am sorry if my question might sound dumb, but I am genuinely curious and couldn't find anything so far on the internet. And I also apologize for any grammar errors within this post.

I am having minimally invasive surgery at Inova Schar Heart and Vascular in July. My surgeon is Dr. Eric Sarin. What are some items that were helpful to you after surgery (i.e. pillows, walking pad, types of clothing to wear afterwards)? Has anyone also had this surgeon? How was the recovery etc. Thanks for your help!