r/ovariancancer_new

PET CT vs CT w contrast after chemo to see if anything changed. I'm begging my gyneoncologist for PET CT but she says too complex to get as it's expensive...(mine was only found in lymph nodes)...

Any advice appreciated

reddit.com
u/Realistic_Ice712 — 6 days ago

Preserve fertility

Hi guys, I have tons of questions to ask and I’m very thankful this community exists 🥺

Just wanna ask if anyone here has gone through putting your remaining ovary “to sleep” before starting chemo to preserve fertility (GnRH agonists)?

Would love to hear from anyone who has been through the same situation.

reddit.com
u/EntertainmentLate199 — 6 days ago

3 cycles of Chemotherapy -9 weeks to endure

I’ll be starting my 3 cycles of chemo (Bep regimen) soon and wanted to ask if you guys have any advice or tips to help reduce the side effects.

What do people usually do during the treatment? Do your usually sleep, watch shows, or snack while on the drip?

What snacks or drinks helped during chemo? Did anything help with nausea or fatigue?

What should I bring to each session, and were there any side effects that caught you by surprise?

How long did it usually take to recover after each cycle? Any tips for sleeping better after treatment?

Did things like hydration, cold caps, or ice gloves help?

reddit.com
u/EntertainmentLate199 — 7 days ago
▲ 7 r/ovariancancer_new+1 crossposts

CA125 severely spiked from 19 - 82 in six weeks!

I am prepared for the worst (recurrence/chemo) but slightly hopeful that there is another explanation for my crazy CA125 spike. Either way, my PET CT is next Wed (5/13).

In 12/25 I was diagnosed with sarcoidosis after two CT scans revealed lymph nodes in my chest, and biopsies determined they were benign sarcoid granulomas. I had a follow up PET Ct in February that was clear.

In addition to sarcoidosis, which can mimic cancer cells and falsely elevate CA125, I have a huge ventral hernia (surgery scheduled for 20 July), gastritis, IBS, had a two-part bilateral mastectomy (Dec and Mar 2026) and was overseas for 9 days three days prior to my bloodwork.

My onc is out of town but my PA said that she has seen crazy CA125 spikes and clear PETs. Am I wrong to be a little hopeful? (For context, been NED since 1/23, and first diagnosed with OC in 8/22)

reddit.com
u/Asleep_Chicken_2442 — 14 days ago