r/pediatriccancer

Our closest friends have a 19 month old starting chemo/carboplatin next week. They have a good network of friends, but I would like to harness that, possibly even crowdsourcing the purchase of some things that would help them get through chemo.

I thought about getting a tonies box (the newer edition is rated 1y+), but saw there was a disclaimer that the tonies have magnets, which can interfere with programmable shunts (which this little guy now has).

I learned about Port Protect, for applying numbing cream without the use of plastic wrap. These seem pricy--are they worth it?

Mainly:

1. What are comfort items your kid benefited from during and after chemo sessions?

2. If you had a toddler go through chemo--any recommendations on what worked best to keep them as relaxed/entertained/happy as possible?

Hi everyone, I'm a medical student affiliated with the University of New South Wales and 'Little Big Steps' a charity who funds the childhood-cancer physiotherapists in Australia. We are trying to design some fun, interactive exercise resources for kids with cancer that they can take part in during and at the end of treatment to increase their physical fitness and confidence and help them return to normality. To do so, we would love some help with recruitment for a short 10 minute survey that asks about their child's physical activity levels and preferences during treatment so we can use this information to design the resources.

If you are a young person or parent/caregiver impacted by childhood cancer, please take our 10-minute survey.

Survey for Parents/Caregivers:

https://unsw.au1.qualtrics.com/jfe/form/SV_eVFyvNJeIrJHUiy

Survey for Children/Young people: https://unsw.au1.qualtrics.com/jfe/form/SV_cviOPxPY6OjJVr0

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We just got our diagnostic yesterday, starts first round today… have his induction period scheduled…. I am terrified.

My son looked so healthy, ate normally, played, laughed. And now we’re here..

Guess would love to hear what to expect from here so I can be mentally prepared for him.