r/thalassemia

▲ 8 r/thalassemia+1 crossposts

Beta thal minor and breastfeeding

Hey y'all, I had my second son two months ago and he's been so gassy. I have beta thal minor and it wouldn't surprise me if he's a carrier too, just like my older son is, my question is has anyone had any experience with ebf and the child being super gassy because of it? My older son was the same way, but I had him on formula a lot sooner than my second.

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Audit my supplements - Beta Thal minor

Methyfolate 5mg
Vitamin B12 as Methycobalamin 1mg
Acetyl-L-Carnitine 500mg
D3 5000iu
K2 100mg
Zinc Citrate 15mg
Magnesium Bis-Glycinate 200mg
Omega 3 fish oil

Are there any side effects taking so many pills in a day? Is this even normal I am taking the amount of pills like someone in their 60s. Are there anything I shouldn’t be taking at all?

I am not sure whether to also take
Vitamin E and NAC
Since there are already so many pills. The reasons for so many pills is there is not a gold standard for what to take for beta minor so I am just referring to what other beta minor redditors are taking

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u/Original-Advance-483 — 2 days ago

Misdiagnosed with IBS for 5 years it was Thalassemia all along !

Hey everyone,I wanted to share my story because I finally got some answers, and I am still processing the shock. For the past 5 years, doctors told me I had Irritable Bowel Syndrome (IBS). I struggled with constant fatigue, stomach issues, and overall feeling terrible, but it was always brushed off as GI tract sensitivity or stress.

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u/90dayfiochaos — 4 days ago

26 enlarged spleen. High ferritin 1230+ and high bilirubin 800 low hb 80

I’m always tired and fatigued. I have back pain. I take exjade desferal folic acid vit d . what can I do I have had scans and nothinf . I’m always aching. I’m ways tired and out of breath . transfusions are not an option for me as my team is restricting me and they are quite useless

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u/Lost_Magician651 — 4 days ago