r/thalassemia

I’m. TDT beta. My parents never (nor encouraged me to) disclosed my health condition all my life due to the social stigma in my country. As an adult, especially now, I’ve been slowly opening up to people around me about it.

I don’t know if I’m getting through though. My intent is 1. awareness, 2. to get themselves screened and 3. to get them to understand why I don’t have the energy to have the social life they expect

How do you break it to your friends/relatives?

Since I was a kid I always had to fill in that extra box in the health form to participate in sports (thalassemia minor). I've ignored my condition and try my best to compete with my peers in all things sports related. I recently did a hyrox and activated my whoop wearable but the times and statistics (VO2 max, HRV) are not broken down by medical condition only by age, gender, and division (open, pro & adaptive). Has anyone here participated in Hyrox or know if we should our own expectations of how well we can perform? Maybe there are other groups for thalasemmia HIIT athletes?