My 15yo son Lukas has fought Ewing sarcoma since he was 12. This is him 'beating cancer for 2 hours' at a video game museum
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Hi r/cancer, I’m Lukas’s mom.
Lukas is 15 now. He was diagnosed with metastatic Ewing sarcoma at 12 - thorax, vertebrae, iliac wing. He beat it once at 13.
Last November it came back in his skull.
Now he’s in the REECUR clinical trial. Three years of hospitals, scans, fear.
Last week we took him to the Video Game Museum in Málaga for a few hours. He sat in a racing simulator and for the first time in months I saw MY son, not the patient. He was shouting, laughing, playing like any 15yo. He forgot he was sick for 2 hours.
I’m not here to ask for money in this post. I just wanted to share that moment with people who understand what 2 hours of "normal" means.
If his smile did something for you, his Ko-fi is in my profile. We're raising funds for trial-related costs, travel, and to keep giving him these "normal" days between battles.
He calls this "The hardest level yet". And he's still playing to win.
Thank you for letting me share him with you.
[Link to the museum video clip]
TL;DR: My 15yo has fought metastatic Ewing sarcoma since 12, relapsed in skull last Nov. Now on REECUR trial. Took him to a video game museum and he was a kid again for 2 hours.