Came out of the endocrinologist crying
So basically I’ve been diagnosed 2 years ago with Hashimoto’s disease.
On September 2025 my TSH was at 1.76. At the time I was taking Levothyrox 75.
I started gaining weight again, losing hands of hair, having water retention, feeling cold all the time (literally waking up in the middle of the time because I was freezing even with my pyjamas, the heater and two blankets), I was exhausted all the time… so I made an appointment with a new endocrinologist because I moved. I had to wait 6 months for my appointment so I called my doctor and ask her if we could go up to Levothyrox 100 so I could feel better for the time being before my appointment. So I started taking 100 instead of 75 and asked to make a blood test to see how my TSH, T3 and T4 were going.
They went up but still “in the norms”.
The thing is that, if we upped my Levothyrox, normally my TSH is supposed to go down, not up 🤔
On my last blood test (after I started talking my medicine at 100), my TSH was at 2.23. My symptoms are still going crazy, I feel that my body isn’t mine anymore.
So, all of that to come to the point where I went to the endocrinologist today. I told him that it was weird and that I think something is blocking my Levothyrox from working how it’s supposed to (maybe my pill or something).
He just told me that my TSH is on the norms so all of my symptoms are just psychological. For him, that’s all in my head.
I told him that I knew that my TSH was in the norms but that didn’t mean it was ok for my body because we’re all different.
He basically just told me that he didn’t care how I felt, that what he saw was that my TSH was in the norms so that he wasn’t going to do anything about it. And he didn’t know why I even came.
He didn’t ask me my symptoms, what medicine I took appart of that, if I smoked, if I drank… nothing. He just asked me if I had friends (because he thinks I’m just depressive, even thought I told him that I used to have depression but I’m ok now, and I know that what I’m feeling is not that, and I still go to the therapist till this day).
He just left me frustrated, misunderstood, and feeling sooo alone.
Also, he asked me to take my shirt off just to palp my neck and take my tension… like… wtf ?
Did you have some similar experiences ? Do you know what I should do ? I’m kinda lost here.
PS : sorry, English is not my first language.