r/youngparkinson

Hi! Trying to gather some info - my dad has struggled with vertigo-like symptoms for years. Primarily debilitating dizziness where the entire world just spins. Despite countless doctor visits to ENT specialists, audiology, vestibular PT, etc., we can’t seem to get him relief. Doctors have not been able to find the source or the trigger for these symptoms. He has thus far just lived with the symptoms and done his best to power through them (which is so dangerous given he is a carpenter and always up on ladders, using power tools etc.)

His mom suffered from Parkinson’s disease and this last weekend I saw his hands shaking while we were hanging some doors. Could be anything but led me to do some reading and I learned that early Parkinson’s symptoms can include vertigo-like symptoms like dizziness and lack of balance. We are working to get a referral to a neurologist but for the time being I’m wondering if there are any herbs I could get for him that might help manage the symptoms. I read Ginkgo biloba may help but I’m open to any suggestions that I can research further.

He has high blood pressure which doctors are aware of/monitoring (no medication yet) but is otherwise healthy.

If you made it this far thanks for reading. Appreciate any help.

My wife’s father was diagnosed with Young-Onset Parkinson’s at 38. We’re both in our mid-20s now, and recently did genetic testing because we want to have kids.

The results showed that my wife carries a Gaucher-related mutation linked to increased Parkinson’s risk, and ever since then she’s been terrified that she’ll develop YOPD too. Watching what her dad has gone through — and what it’s done to the family — makes it feel very real to her.

She’s now even questioning whether we should have children because she’s afraid of passing this on.

We’ve been trying to understand what the actual risk looks like when a parent has YOPD, especially combined with a GBA/Gaucher mutation, but it’s surprisingly hard to find clear information online.

Has anyone here dealt with something similar? How do you cope with the uncertainty around genetics and family planning?

I (60M) have had tremors in my right hand for about 15 years, but recently,and usually when I’m tired, I have noticed some very slight movement in my left hand that reminds me of the earliest days pre-diagnosis when I felt flutters in my right hand. I am quite nervous that I will end up with tremors in both hands. How many of us have tremors in both hands? How do you deal with it?

TL;DR — What you need to know:

✅ AI designed a drug that improved motor function in PD mouse models

✅ It crosses the blood-brain barrier

✅ FDA cleared for human trials Jan 2026

✅ First anti-neuroinflammation drug to reach this stage in PD

❌ Not proven in humans yet

❌ Phase II in PD patients still needed