Just been diagnosed - triggered by beta blockers
Hi everyone. I (33F) just got diagnosed with generalised MG after developing weakness as a side effect of beta blockers. I was prescribed them for POTs, after an unexpected flare up of my dysautonomia came out of nowhere and I lost the ability to exercise.
I went back to the doc after i couldn’t keep my eyes open in the evening and then subsequently developed problems/fatigue chewing food even as soft as cake, slurred speech and hoarseness at the end of presentations at work, and my exercise capacity dropped even further - I was having to stop and sit while walking outside because my legs would just get so weak and tired. I also had to take loads of rests while styling my hair or doing makeup.
I got a referral and had some blood tests and nothing came back positive but a neurologist diagnosed me anyway - he suspected the heat and exercise intolerance and shortness of breath that I thought was my pots was MG all along and the Beta blockers made it more obvious/classic in presentation. I’ve LONG had issues with intermittent double vision, issues maintaining a lateral or upwards gaze, and a drooping right side of my mouth that fluctuates a bit from day to day, but never saw anyone about them.
But as my blood tests were negative I’m now reading that it’s very unusual to be diagnosed without any positive testing. No mestinon yet but I stopped the bisoprolol and I feel a little better.
Just wondering if anyone’s had a similar experience. In many ways it explains a lot but also seems a bit out of nowhere and not clear cut like I’d expect. Also my ptosis is really mild compared to examples I’ve seen.