Flare VS. early stages of a crisis
Hi all,
I am in a bit of a predicament.
I had dental work last Monday and haven’t felt right since. I’ve had increased severe symptoms as my mestinon wears off and at night. It’s like my baseline has shifted and I’m concerned. I’ve only had one crisis and it started similarly but I’m aware it could also just be an exacerbation.
When the mestinon is actively working I feel a bit better but I feel absolutely terrible about 2.5 hours after I take it.
My neurologist is on vacation until the 7th and I am very fearful of ending up in the hospital if he is away. (I’ve been treated so poorly in the past for seeking help for MG, even with a formal diagnosis I’ve had to beg and fight for them to believe me. It’s horrifying)
How do you know when it’s just a flare up versus the early stages of a crisis. How did your crisis come on? Was it slowly over a few days/weeks or was it all at once?
For now I’m resting, focusing on trying to keep my anxiety under control and writing down all my symptoms to share with my doctor when he returns.
Please pray for me/send good vibes. I do not want to have to stay in the hospital at all!
Thank you 💜