u/Silver-Bake-7474

Whats it like to take this the first time? Just a little nervous. Was told to take it before bed at first. 30mg

Afraid to take it before bed, afraid it'll keep me from sleeping

Anyone here develop alpha gal alongside your MCAS but have not had any notable tick bites?

***it can happen with out a tick bite for people***

Anyone get random warming of your abdomen after eating? Its not painful but almost feels as if someone stuck a heating pad on you.

Hi, question in title but also...

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1. How did you find out? Or what tipped off the doctor first?

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2. Do you have any other mutations beside the KIT that contribute to it? (There are a few)

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3. Treatment protocols?

Reacted 15min in and again 48 hours later. 6 days post injections and I feel like utter shit. I can't hardly get off the couch and my mast cells are so angry unless I am heavily medicated. I can't hardly keep my blood pressure stable and up no matter how much salt I take in. Can someone who has reacted heavily please tell me when this will go away because I am so pissed off and my doctor keeps wanting me to push for a second shot.... WTAF...

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He keeps telling me all this is normal...

I had my first xolair shot and reacted within 30mins. They stabilized me with zyrtec and pepcid then an allegra and my other stuff. I just dont understand. He was dead set that this would give me my foods back and all would be well.

Ive had derealization and depeesonalization off and on. Can't hardly stay away and im just an emotional fucking wreck. He wants me to stick it out and go another round in a month😭😭😭😭 ive been bed ridden for 2 days I can't do this I have a kid.

Did anyone have a bad first shot then get better?

If you do loops, give me feedback on the pros and cons, your experience, how long it took for you to feel comfortable, how much sling crosses over? From an artistic perspective is it more versatile? How long did your first set last you in conjunction with training wear and tear. I want to hear it all.

Is anyone here taking the shot for mast cell activation syndrome? My ige is zero but my doctor said we have to go this route but at least try it. I'm terrified it's going to backfire

Hi, my basophils are a pretty big problem. Histamine and a few others are insane jerks to me. Doc wants to try xolair, what are your experiences?

So we're going to do an updated tryptase level along with a few other items but my doctor asked me if there was any other blood levels I should check or urine levels. Do you guys have any suggestions? We are monitoring for potential mastocytosis situation but I'm not quite to the point where a bone marrow biopsy is what I want to do. This is also a brand new doctor

What are some programs you have bought, trained, or had experience with that help increase mobility but also are more contortion in nature? I've taken classes but sometimes its either just splits or just backends. Looking for more variety. Specially, what online coaches, tools or programs have you supplemented with?

I'M IN A FULL BLOWN FLARE...damn it. Anyone else experience this? I only burned my neck (complete accident). But now my whole body is just freaking out.

Hi,

During your cycle do you have intense issues with high prolactin levels that are not from thyroid nor the pituitary tumors?

I just finished my two weeks successfully and now I don't know what to do. I asked my GI doctor for protocol and she has yet to message me back after 1 week. Can I try a moderate FODMAP food and see what happens and just monitor or do I need to wait longer.

Hydrogen Sulphide Sibo