u/Quiet-March-807

How much was your RNS decrement?

I had an RNS done due to having facial weakness, difficulty swallowing, and general fatigue. My decrement was 8.1 on my arms and 8.8 on my face. The RNS specialist said he thinks I have MG with these symptoms and elevated decrement, although the threshold is usually 10. MuSK is negative and AChR was 0.4, which is borderline in that lab.

I am trialing Mestinon (2 x 30 mg) right now, but it doesn't clearly help. Sometimes I was struggling so much with my lunch that I took it, waited 20 minutes, and then I could finish the meal. Other days I feel like it doesn't help my swallowing. With the fatigue, I can feel that Mestinon helps and I have more energy.

How much RNS decrement did you have? Is there anybody who is diagnosed with less than 10 decrement?

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u/Quiet-March-807 — 2 days ago