When i go from lying down to standing up my heart rate goes from 81 to 122, i don’t know if this is dysautonomia/pots, how would i get to the bottom of what is causing my symptoms, what specialists would i need to see?
Hopefully this is the answer i get, started off with fatiguing but weakness is getting worse to the point my muscles are starting to atrophy. I also noticed after doing intense things with my muscles they’d go jelly and extremely weak.
Video is on my profile.
Took blood tests for Myasthenia Gravis/MuSK
Already purchased a wedge pillow on amazon, i’m just wondering for any recommendations?
Like intentionally went out there way for revenge/hurt you?
My ex phoned me saying she was at the beach meanwhile she was with another guy and they did sexual stuff while on the phone with me until i noticed what was going on? if anyone is dating / even friends with them leave them immediately it’s not worth the hurt in the long run, they will drain you of your own mental health/finances, you will get trauma bonded. they are mentally destroyed, don’t try and be a superhero it will never work.
noticed some new knee atrophy, it’s on my profile
Basically have every single symptom off this list.
Dry eyes and skin
Head pressure
Frequent urination
Autonomic dysfunction
Muscle twitches
Muscle wasting
Weakness and fatigue
Bone pain
Osteopenia
Tooth and gum problems
Metabolic changes
Skin pigmentation changes
Thinned skin
Prominent veins
Anhidrosis
Sleep apnoea (obstructive/central)
Digestive problems
Sexual
Penile atrophy and tissue changes
Perineal muscle atrophy
Genital pain
Genital numbness
Watery ejaculate
Reduced ejaculate volume
Testicular atrophy
Loss of libido and sexual desire
Erectile dysfunction
Loss of spontaneous erections
Premature ejaculation
Increased refractory period
Pleasureless orgasm
Post-orgasm asthenia
Neurological
Anhedonia
Anxiety and panic attacks
Insomnia
Derealisation
Cognitive impairment and "brain fog"
Memory impairment
Vision impairment
Tinnitus
Symptoms of seizure
Suicidality
went cold turkey 2 weeks ago and has the worst cold sweat ever last night, still have insomnia, muscle pains etc.
Normally i am fairly mentally strong but this is a whole different level, i’ve lost my will to live now, i miss my old life
Twitching only doesn’t point to it, you feel it in your body/mind, I’m not diagnosed as of yet but judging by my my body changes (muscular, weakness and breathing/sleep related breathing) you feel yourself gradually getting weaker, you feel your reflexes change (not just when doing the knee jerk test) you feel it in everyday life.
After being denied put down, I’m happy to announce that i have been referred back to neurology after my persistent emailing, it paid off.
My Neurologist reviewed the matter and advised that he would be happy to see me for a second opinion.
Obviously no one one wants to ever hear the heart breaking news ‘you have ALS’ but to have our symptoms put down to mental health or anxiety when we clearly can tell our bodies are far from normal is quite downright insulting, we wouldn’t be making constant doctors appointments for no reason, doom scrolling out of depression and hopelessness, i hope everyone hear finds out what is wrong with them wether that may be just be BFS or something else causing there issues
if i’m active my twitches will be way worse or if i sneeze or cough or even stretching they will be worse, seems to be worse when i’m using muscles.
also have more pictures of my elbow perceived atrophy on my profile
Can anyone else spot the difference in mass between my elbows?
Me and my ex have been in no contact for 3 days now, blocked on everything and changed my number created new private socials, she came back wanting to be friends but was talking about her old guy ‘friends’ coming back into her life, she started doing drugs and alcohol after we broke up, i gave the friends idea for a couple of days but when i said i didn’t want to speak to her or her to contact me again the real nasty side came out, i did some stuff i’m really not proud of and told her the truth about it after we ended (wasn’t cheating) i’m not so innocent myself, right before we started talking i slept with a different girl on the same night i first slept with her
I’m currently having issues with my sleep, i’m not asking for a diagnosis but would appreciate some insight.
my symptoms are as follows:
poor breathing while lying down
shallow breathing while sleeping
loud snoring while asleep
snoring 270 times in 4 hours
shortness of breath/heavy chest while awakening
poor sleep in general ranging from 3-5 hours each night
fatigue throughout the day