r/POTS

i am so stressed i am on day 7 of covid and all my symptoms are gone other than increased heart rate. i have MVP and MR along with POT. my heart rate increases when im walking around and standing up and im so stressed because i need to go on holidays today with my family and they’re very “covid is just a cold” but im so scared its going to make my heart condition worse. idk what to do im so anxious

We were watching a “shark week” show and this guy was in a cage in the water surrounded by sharks and his HR spiked up to the 130’s. I made a light joke that my HR went higher than that just bending over and standing back up to pick up some trash on the playground today at work.

He said, yet fucking again. “You should try cardio. It helps. It helped me.”

It’s like he doesn’t believe I have POTS or refuses to understand it or something. I’m so fucking sick of hearing him say that on repeat.

I started law school this semester and prior to any medications I was basically bed bound. Started propranolol 20 mg 3x per day and that helped me start to be functional to where I’m not having the dizziness/faintness/nausea etc. I take guanfacine at night for ADHD, just started gabapentin to get me to sleep. For ADHD/wakefullness, I’ve tried adderall, vyvanse, but those two do not make me feel good physically so it’s hard to focus cause I feel too wired. Concerta does nothing. And I’m currently trialing Modafinil which also is doing nothing. I’ve also heard that beta blockers can cause fatigue and while I’ve been functional, prior to law school I guess I wasn’t super aware of my fatigue levels anyways since POTS makes me fatigued anyways. I literally cannot focus in class because I feel like I can nod off at any point. And reading feels impossible. DOES ANYTHING HELP????

My daughter lives in the UK, has just turned 14, and has been suffering from symptoms of POTS for over a year now. It reached a crisis point last year when she found every day difficult and started missing lots of school, which resulted in threats of fines and court action, as well as a horrible situation for my daughter, who was getting little support. She was referred to a cardiologist who fitted her with an ECG for the weekend, and they essentially referred her back to our local GP as they had no tilt table facilities.

Our GP is supportive, but it took me going in and emphasising how much of an impact this was having on her life and suggesting trying beta-blockers (propranolol) before any measures were offered. Since she has been prescribed this medication, she is doing much better but still missing some school. The school won't accept the GP letter as proof of having POTS and have told us we they need a diagnosis from a specialist.

Whilst it might be a slight struggle, we will find the money, but we live remotely, and I was hoping someone here might have a recommendation of a UK specialist who may be able to help us.

I should go to a neurologist, GI, and maybe a dermatologist to look for Small Fiber Neuropathy, but I already am paying off a $500 bill for my echocardiogram to get diagnosed. I recently brought up to my doctor my awful digestive problems and a simple test to look for fucking parasites, celiac, and thyroid problems might be another $500 because of my deductible on a new temporary insurance. I suspect my POTS is caused by something else of course, but how am I supposed to narrow it down without thousands of dollars, I go to the non-private hospital in my city and make a whole $1K over their financial assistance program. More ranting because I’m sure I just get to deal with working with this shit on my own but man is it frustrating.

i showed up to my stress test, sat in the waiting room and felt my heart race. i woke up and i was in a wheelchair and i had fainted twice. my heart rate was so high they called an ambulance. currently in the hospital

i guess i failed the test lol

hi guys. im more on the severe end of POTS with other comorbidites. but since developing pots my fatigue is on another level. i take ivabridine and bisoprolol for pots along 24hour compression garments electrolytes and extra salt. i sleep well. i try to eat regularly (eating with pots is miserable). im so tiredddd it feels like i have a fever but my temperature is normal. im currently doing a modified version of the CHOP protocol and reached 19 mins of supine biking and im careful about crashing, im not.

i was officially diagnosed with POTS in august of this year. the doctors dont care about anything but my HR AND BP. im struggling really i had to drop out of uni and i dont think i can go back next semester if this is the level of fatigue daily.

does anyone have any tips? anything that helped? foods to avoid maybe or supplements. anythinggg im desperate. or just support. thank you 🙏🏻

Im trying to come up with a plan as to the best time to go out to get some stuff errends i havent been able to get done cause i been in a falir , i usually go out in the morning cause less people , but i seem to have a tough time early in the day , is there a time that symptoms would be lesser for activity?

I’m just curious about this if it happens to anyone else because this seems to happen to me every time I’m at a doctor’s appointment. Without fail I will get asked what I do for a living, if I’m searching for a job, What I’m ‘planning’, etc.

For some context I recently graduated college and I am currently searching for a job, but I constantly feel the need to ‘defend’ myself because I don’t have one yet. Is it normal to get asked this question? Maybe it’s just because I kind of hate small talk but it feels like an interrogation. If they ask if I have a job I say I just graduated and I’m currently looking, and then the questions just keep coming. They will ask what I majored in, What I’m ‘planning’ for the future, what field I want to go into, etc. It’s also almost always at the end of the appointment when they are about to leave the room, and then suddenly they are asking me this? It just confuses me. I never really know the reason for wanting to know this stuff anyway because what does it matter?

i tried tae kwon doe today it was super duper fun and i felt great the whole time but i look at my apple watch after and it hit 210… I feel like this can’t be safe but I felt totally fine the whole time except feeling a little faint standing up suddenly. It scares me that it gets that high but if i feel okay then…it’s fine?? idk what to think about it.