Stress truly is a killer with this diagnosis
I have a combination of EDS, POTS, and some other physical issues along with a lot of mental ones, so that might be why it's so severe but wow. I was always warned by my neurologist about stress levels, but now I almost get why this disorder is mistaken for psychogenic (almost).
I've been under extreme stress lately and had a lot of mental issues. I'm crying hard multiple times a week. When I cry I always get a fever. Then I get air hungry and am left with a headache. I try my best to drink a lot of water after to get back those fluids, but it doesn't seem to help. The next day I am in so much pain, not even just joint pain from the EDS but all over body pain (not sure this is the POTS or EDS or something else). Then, in addition to that, I'm blacking out as soon as I get out of bed, no matter how long I sit and wait there at the edge of the bed. For multiple days after, I'm physically useless. I have to sit down any time I reach into the cabinets. Showers are extra hard to recover from, and a bath would help with the stress but I just know I'm going to pass out in there.
Right now I'm kind of feeling worse mentally because I can't do anything but sit here being miserable because I can't handle standing for more than a few minutes at a time. My POTS is very well controlled normally, but this situation and stress is killing me.