r/PMDDxADHD

▲ 3 r/PMDDxADHD+1 crossposts

Slynd : Please give me hope

Hi there i am through my first pack of Slynd with the intention of skipping the placebo’s and ending my periods. (I’m in my 30s if it matters)

I ended up with Slynd because everything else I’ve tried makes me so nauseated that I can barely make it through my day- I’m dry heaving constantly. I am not interested in IUDs (no thanks to getting my cervix hole punched… I’ve worn cups and discs and I’m very aware of how sensitive my cervix is)

My only side effect is I just won’t stop bleeding… I’ve had a 2 week period. Everyone keeps saying SPOTTING is common but this is more than *spotting* I’m having to wear a pad or go through several on a work shift… I will bleed through my pants if I dont wear something. I’m exhausted and crabby… I had some mild cramping last week and some headaches but now I’m just bleeding.

Has anyone come out the other side of this? Will i actually stop? I don’t have many options left so it’s either this stops my periods or I go back to raw dogging the PMDD and endometriosis until I give up and have a hysterectomy…. Apparently I cannot stomach pills that contain estrogen.

😭

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u/DazzlingMistake_ — 5 hours ago

Help: Pepcid/Zyrtec/UGH I HATE LUTEAL

Hi everyone! I’m sure you’ve heard the whole spiel - or have been through it - but yes I have been dealing with horrible horrible luteal phases for the last two years or so (weirdly enough, it wasn’t as debilitating until I turned like 22… joys of adulthood ig), and was recently diagnosed with ADHD and was prescribed 20 mg of vyvanse :P

Ofc, in my luteal, my vyvanse does absolutely nothing (my psych told me to up my dose in that time but I’ve found that it makes my anxiety untenable and productivity increases are marginal at best). Recently, I’ve been digging into what could possibly help because my god how do we live like this for the rest of our lives I hate it this is so horrible, and inevitably came upon the antihistamine solution that has worked for loads of people! I’m at my wits end, so I’m finally trying but I’m a little nervous :/ I had a few questions about this hack if you guys have got any advice or insight into this:

  1. have you tried the Pepcid/zyrtec combo for luteal while being medicated for ADHD? Did it work? IS THERE HOPE?

  2. when did you take everything? Like, did you take Pepcid in the morning and then wait a bit and then take your adhd meds? And do you take your Zyrtec then as well? Do you take any of them at night instead?

  3. is there hope of this ever getting better..? Like…not to sound defeatist but seriously, I cannot imagine living the rest of my life dreading my inevitable depression/anxiety/unproductive/self-sabotage/etc other self every five weeks or so (I’ve got PCOS so I can’t really track when my luteal’s otw which is so cool and awesome)

Thanks you guys for any and all insights you’ve got, honestly it just makes me feel a bit better that I’m not alone in this nightmare :,)

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u/ClimateEconomy683 — 6 hours ago

period “mania” ??

Anyone else get this? I have a week of PMDD and then BOOM I get my period and I’m absolutely wired for 24 hours. Constantly talking, hyper, bouncy, full of ideas, really sociable, very dizzy, in a lot of physical pain from the cramps….. it feels like I’m floating away from myself. Sometimes it tips over into weird slightly delusional beliefs and anxiety. I am definitely not bipolar. This “manic” high only lasts for a day and then I’m back to feeling normal and calm again.

It’s SO weird and freaky. anyone else?

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u/toscawhiskers — 7 hours ago

Being a mom is killing me

I don't think I can do it anymore. I love my boy more than life itself and I feel like my presence especially when I'm going through it is going to cause more damage than me being gone. I'm pretty sure my marriage is over and I'm just at the point that I feel like I should walk away from everything for everyone else's sake. I can't make excuses for myself anymore. I'm spiraling.

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u/kamburglar7 — 1 day ago

For those of you who experience paranoia with your PMDD.

I'm just trying to figure out if I have a new PMDD symptom or not. For those who experience paranoia with PMDD, how did it start? Was it just small things here or there, or was is it bad paranoia all of a sudden? What age were you when it started?

I went to pick up my adderall last month and couldn't be bothered to go into the pharmacy so I went to the drive through window. I felt like the pharmacist was acting a bit odd to how he usually is but didn't linger on it too long. He gave me my pills but didn't have me sign for it like I normally do. I asked if I needed to sign for it and he just gave me a thumbs up and smiled, so I left. It didn't take long for my brain to jump to the conclusion that he was trying to get me in trouble in some way. My brain ruminated on this off and on for several hours before it finally let it go, and I would randomly think about it the next day. Several days after I quit thinking about it the thought randomly popped into my head, "oh, the tablet thing that they usually use that people sign probably wasn't working." I haven't thought of it much since but I have a doctors appointment coming up and I can't decide if I should mention it or not. I feel like I sometimes jump to strange conclusions like that but haven't paid much attention to were I am in my cycle. Also wondering if it's just my PMDD and my ADHD messing with each other.

Thanks for the help! ❤

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u/West_Positive5746 — 1 day ago

How to start cleaning your place post terrible 6 months

Ive been going through a lot since December of last year due to my pmdd and adhd. My place is so disgusting. Im embarrassed to even hire someone for help.

I started on Yaz few days ago and im starting to feel good (could be placebo, doesnt matter), and I feel a bit of energy to clean things up. The only problem is, im not sure how to tackle this mess im in. If you’ve been in a similar situation before could you tell me what to do exactly. I think all floors beed scrubbing. Everything must get washed. Trash need to get thrown. Bunch of old stuff i no longer use including clothes that need yo be donated and i dont have a donation box near me

Im also embarrassed by amount of trash my neighbors are going to see by my door.

And how to prevent this from happening again.

Any advice is highly appreciated

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u/Dangerous_Tea6513 — 1 day ago
▲ 53 r/PMDDxADHD+1 crossposts

2 days before period is due and broke up with my bf

To be fair, we are in a dead bedroom relationship. This had been an ongoing issue for years. He goes weeks without touching me, and when I bring up my needs he denies there is any problem. To make matters worse I am an attractive exotic dancer and people cannot even conceive how I could be in this situation. He makes a thousand excuses. When we do have sex it's ten minutes long max and focused on his pleasure. I told him about A hundred times I want to be eaten out and he won't do it. He is incapable of planning a date. Is constantly tired. Won't see a doctor about his fatigue or libido (grown man btw without a GP) . I ask him for flowers constantly and he can't even buy me a 5 dollar bouquet. Meanwhile I show up to all his family events, everything trying to be a good girlfriend. Making effort. His excuse? ' I'm tired! ' dude works 3 days a week and is the most tired 37 year old I've ever encountered.

I've tried to leave him before but he always ropes me back in somehow saying he'll change and he's sorry and he'll make more effort. And then as soon as he gets me back the effort is out the window. It's currently been over 3 weeks since he's touched me and I bring it up he looks at me like I have 3 heads. I cannot live like this anymore. It is so isolating and my chest burns in jealousy if I hear about anyone who's boyfriend fucks them for an hour straight, eats them out, plans A dinner date.

I cannot do this anymore. Please give me strength to not go back.

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u/ashmcmashmash — 2 days ago

Need help reducing symptoms without medication

Hi everyone,

I haven’t been formally diagnosed with PMDD, but i’ve suspected I’ve had it since I was 24. I got on prozac when I was 28 and stopped last year. I stopped cold turkey and had withdrawal symptoms that lasted a month and I even needed to take work off. My doctor was surprised since the half life for prozac is short and he didn’t think I need to taper.

I got off of it because I found out my Vitamin D was really low. I took booster shots and got it up. But i’m still experiencing PMDD symptoms during stressful periods. I’ve been unemployed but in school for the last 5 months. Each month has had its challenges whether it’s personal life or looking for a job, i’ve managed all the storms but recently i’ve just been hit with so much relationship and friendships BS. I just want to run away and never talk to the people in my life. I catch my self ruminating over the nonsense I dealt with even though I was wronged and I’m setting boundaries. I’m even more miserable. I haven’t felt like this since I was 27 dealing with similar stuff.

My ovulation phase has gotten worse. I’m extremely irritable and have a lot of suicidal thoughts. I can’t even imagine what my luteral phase will feel like this month.

I really don’t want to go back on SSRIs. I enjoyed them but then it would get to a point where It wasn’t helping anymore. Does anyone have any advice? Exercise is a bit difficult because of my hyper mobility. I feel worse after working out and need more down time.

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u/notyouravgcat — 1 day ago

How do you deal with body image?

Because so much of my youth/early adulthood was lost in mental health issues & a situationship doomed from the start, I am now at 30yo looking at myself in the mirror and seeing someone who looks tired and older. And I feel scared about it. I kinda dealt with body dysmorphia during PMDD for years and it got better with therapy and lots of self work. For now it's more feeling like I lost my best years or something?

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u/OkJellyfish9236 — 1 day ago

Do you still get PMDD on birth control?

I’m just finishing up my third month of nextrellis. I was prescribed it for peri/heavy periods/moods. But I was thinking it was supposed to regulate your hormones all month, therefore technically no luteal and no PMDD. But I’m having a really rough few days before I start the white pills. I’m in my late forties and never took BC due to fertility issues, so this is all new to me!

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u/GoneAmok365247 — 2 days ago
▲ 220 r/PMDDxADHD+1 crossposts

So Far, So Good!!!

I got these two key tag racks on Amazon, spent 2 hours making each tag into a bracelet, and I placed a task on each tag.

Every morning I put the 8 on the left on my wrist, every night it's the 8 on the right.

This has SO FAR been more effective than a sticky note or a whiteboard or a piece of paper taped to the wall because it's more interactive! Instead of a visual white noise, I'm physically wearing my reminders! I can do them in any order, I just hang up each task as I finish it!

My morning tasks are:

Meds

Vitamins

Brush teeth

Make bed

Read (can be 15-45 minutes)

Workout

Shower

Empty dishwasher

My evening tasks are:

Meds

Vitamins

Brush Teeth

Pick up trash in room

Pick up dishes in room

Pitch up laundry in room

Scoop kitty litter

Read (Also 15-45 minutes)

I had a couple rough days and didn't do them, but I finished every single task today and I really think this is going to help me turn my mood around

u/CosmoTheBrown — 2 days ago

Does anything help your meds work better in luteal?

I hate that as soon as luteal starts I feel like I'm taking sugar pills. My executive function is no better. Im so scattered. My brain can't engage with anything.. And I don't get that mood boost. I take stims 3x daily.

I know this is a common issue most thought maybe you all have some tips.

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u/GlumAd655 — 2 days ago

Which birth control would most closely mimic the hormone levels in pregnancy

My PMDD has been getting worse and worse the last few months. I’m not sure if it’s just that I’ve been struggling with life and kids and responsibilities recently after having knee surgery in April or if I’m in perimenopause? Not sure if that’s too early as I’m just turning 37 but things have been different lately. It used to just be the week before my period was awful but now for the last three months, 3-4 days post ovulation I’ve had a horrible day where I just cannot regulate no matter what. The next day I’m back to ‘normal’.

I’ve tried a few birth controls, aleese was the first one, then I had a Skyla IUD. Had to stop the aleese after a couple months because it made me extremely depressed, had the Skyla removed after 5 months for the same reason. I tried Yaz and I don’t think I had as severe side effects but i stopped it pretty quickly because I was so anxious about the risk of blood clot. When I got pregnant with my kids (plus one miscarriage) I knew all three times that I was pregnant before testing because I felt so great and mentally stable. I sometimes wish I could have another baby so I could experience that again (but not really lol). But there must be a pharmacological way to mimic the hormone levels in early pregnancy!

Anyone in the same boat with feeling amazing during pregnancy and found a birth control that could replicate it???

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u/thatwhinypeasant — 3 days ago
▲ 4 r/PMDDxADHD+1 crossposts

Lost??

Okay this is embarrassing but for the first time in my life i don’t have friends, except two who live out of state. I dropped/distanced myself from everyone i was friends with in my city bc i got tired of gossiping/shit-talking/bullying/only hanging bc of partying/benders (i have shit impulse control). It sucks and it’s lonely. I was brave enough to go out on my own recently and bumped into some of those people and ended up hanging out with them. It was fine. Everyone was nice/normal. But i don’t want to be friends with them again. I was just lonely. I can’t keep up with the craziness of that group nor do i want to, but it was nice to socialize. I feel like my whole life i was just like on/performing and when i started to have boundaries, people hated them and it isolated me. Not everyone but i just decided that anyone who associates with the crappy people, they’re not for me either. Basically, i don’t want to be like this. I don’t want to be lonely. I don’t want to be afraid to trust people. I’m 35 and i feel fucking pathetic. Im glad i have a diagnosis (ADHD & PMDD) but it has also made me hyper aware of my brain/limits/life/everything… like i have clarity?? But not. Idk. And I’m doing the therapy which helps sometimes but UGH. Does anyone have any comments or suggestions? I feel really alone and don’t know what do or direction to go in.

Sorry for word salad/typos :/

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u/FigNeurons — 2 days ago

Im gonna lodge a bullet in jy skull due to this disease

With chronic major depressive disorder, plus PMDD, plus ADHD, no wonder I have always wanted to fuckin die.

Honestly Im a badass motherfucker considering how everything in my mind has been stacked against me, all the abuse, etc.

But holy shit. I ain’t gonna be a perma patient, i aint gonna suffer through another 30 years of bullshit. I am late twenties and I have fought a good fight. I have so much potential but all that is untouchable due to fucking human hormones which is such a slap in the face.

Im gonna end it eventually. I want it to hurt. Myself and others. Fuck this world for what grandiose it showed me, which I will never reach.

By design.

Fuck this disease.

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u/Calowayyy — 2 days ago

Does anyone want a divorce every month?

Can't figure out if it's luteal or if I actually want a divorce. 🤔

Also wanted to add, there ARE some hard parts about my marriage. But there are good things too. It seems like every month in the week or two before my period, the bad parts are amplified, nothing feels like it's good, and I can't ask for what I need without getting dysregulated

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u/Ok-Salamander6118 — 3 days ago

pmdd with no support system

anyone else have no one else around them to confide in or vent to or be with???? it hurts so much. my mom literally blocked me bc she said she was done with my complaining😭 im in so much pain and all i receive is judgement from everyone around me. i feel so physically and mentally unwell.

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u/shroomeralert — 3 days ago

Cautiously optimistic post op

I had surgery yesterday for PMDD and fibroids. I had a hysterectomy BLSO with the davinci robot laparoscopically and vaginally.

I’m 45, turning 46 in a couple of months. In perimenopause and taking HRT for over a year. Upon removal of my IUD over a year ago, my PMDD came roaring back with extra intensity. I had it in my 20’s and 30’s between children and IUDs did help, however, I learned my body dislodges them - so doctors can’t find the strings when I got checks. It didn’t click until this last one to be honest (late ADHD diagnosis just last year too).

The worst PMDD symptom has been the passive SI. It would last as long as a week some months. Other symptoms were a desire to leave, everyone and everything. I have a family, a good job and pets I adore. I recently ended a 5 year female friendship because of a PMDD episode. This leaves me kind of lonely in terms of female friendships.

I started on 150 mg Wellbutrin XL in May, this reduced my symptomatic days from 15-16 down to 7-8 days. I also take 60 mg vyvanse daily.

I was skeptical removing my ovaries would help, I’ll be honest. I scheduled surgery for 3 months out to be sure and give me time to process the idea Or change my mind. I planned to go ahead with the hysterectomy for sure, it was ovaries I was unsure about.

I randomly decided to fly to see family the week before my surgery too and take my child with me (8 years old). I’m glad I did, as hard as it was to do while in hell week. The sheer mindfuck of luteal this last time and the distortion of events, and how I felt was the reason I confidently told my doctor 2 days before to go as planned, take it all. I secretly still was worried. There have been a few posters on Reddit and a private FB page telling others not to do it and how bad it was for them. It’s hard to make such a big decision with those types of experiences in black and white.

I do plan to update everyone again as things progress. As of today, the day with the worst pain according to nursing staff, 1 day post op; I have yet to take my vyvanse and I am naturally happy. I don’t have to force it. While I am sore and tired, there has been a veil lifted that’s hard to explain. There’s hope…

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u/GenXMillenial — 3 days ago

I feel like the saddest story is about C-PTSD

My 30th birthday is coming up in a few days, and the more I work on myself, years of therapy in, the more I realize how much everything that traumatized me also made me harder to be with. One of my biggest dreams has always been to find someone and build a happy life together. But then I notice how easily I get triggered, how cold I become when that happens, how fast I want to push people away (family, friends), how sensitive I am, and how strict I can be with myself and others. Even tho I'm always trying to be the "mature" person I communicate I try to do the work. Others dont do the work and walk away because I am expressing feeling hurt. They cant deal with that, they can only take my empathy and advices. PMDD and ADHD makes all of this stronger.

It feels like C-PTSD means you've already been through so much, and yet you still don't get to experience life afterward, because you're stuck in self-protection mode and because you're so hurt inside.

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u/OkJellyfish9236 — 4 days ago