u/Enough-Age7178

I’ve been wondering if this could be related to POTS or if anyone else experiences it.
I get this almost constant feeling that my stomach feels “hungry,” but I’m not actually hungry and often don’t even feel like eating.
It’s hard to describe because it doesn’t feel like normal hunger. It’s just this empty/hungry sensation that can stick around for hours, even when I know I’ve eaten enough.
I’ve also noticed it seems to be worse after a poor night’s sleep, especially if I get less than about 8.5 hours.
Does anyone else with POTS experience this? If so:
Does it happen every day or only during flares?
Does eating actually make it go away, or does the feeling stay?
Have you found out what causes it or what helps?
Just curious if this is something other people with POTS deal with or if it’s unrelated.

I’m 19M and dealing with severe fatigue issues that have gradually made me mostly housebound.
One thing I struggle to explain is what happens after I do more than my body seems able to handle.
For example, tonight I sat outside by a fire with family for about 2.5 hours, talked a bit, ate some pizza, and came back inside.
Now I feel absolutely awful.
It’s not just being sleepy. It’s more like:
My whole body feels heavy and weak
My brain feels completely fried
I can barely think properly
Head pressure gets worse
Feeling of something bad is gonna happen
Noise around me becomes irritating
Everything feels like too much effort
I feel overstimulated but exhausted at the same time
Almost like I have the flu, but without actually being sick
The weirdest part is that while I’m feeling this bad, I also get a strong feeling that something is wrong or that I’m about to get even worse.
Over the last couple of years I’ve noticed a pattern where I can get through an activity, but later that night or the next day I get hit by this wall of exhaustion.
It’s not just physical activity either. Mental effort, socialising, conversations, editing videos, family gatherings, etc. can all seem to trigger it.
Does anyone with ME/CFS, dysautonomia, post-viral illness, or similar conditions experience this type of crash? If so, how would you describe it?

I’ve been dealing with severe fatigue for a long time and I’ve noticed something that happens especially after I’ve overdone it mentally or socially during the day.
For example, if I’ve spent hours editing, concentrating, socialising, or just had a busier day than usual, I can be absolutely exhausted by the time I get into bed.
When I’m trying to fall asleep, I get into this weird half-awake state where:
My brain won’t switch off
Random thoughts, conversations, and nonsense ideas start popping into my head automatically
It feels like my inner voice is talking without me trying to think
Just as I’m drifting off, I get sudden jolts that wake me back up
Sometimes it feels like my heart pauses/stops for a split second and then I jolt awake
I feel exhausted but also strangely wired at the same time
It’s almost like my body desperately wants to sleep, but my brain is still running.
I’ve noticed it tends to happen more after a long day where I’ve done more than my body can comfortably handle. It’s like my brain gets completely fried and then can’t transition into sleep properly.
Has anyone with ME/CFS, dysautonomia, chronic fatigue, sleep issues, or similar symptoms experienced anything like this?
The random thoughts, jolts, and feeling of being unable to fully drift off are honestly the worst part.

I’ve noticed that if I spend a couple of hours editing videos, my brain gets completely fried afterwards.
The weird thing is I don’t necessarily feel sleepy. Instead I feel extremely wired, like my brain is running too fast and can’t switch off.
Symptoms I get:
Brain feels overloaded/fried
Hard to think clearly
Noise around me becomes irritating and overwhelming
Feel restless and on edge
Random thoughts popping into my head
Feel like I can’t properly relax
It’s almost like my brain has used too much energy but instead of feeling sleepy, I feel overstimulated.
Then later on, the fatigue catches up and I usually crash.
Does anyone else experience this? Especially people with ME/CFS, post-viral issues, dysautonomia, or severe fatigue?

I’m 19M and dealing with progressive fatigue issues that have made me mostly housebound over the past ~2 years.

One of the weirdest symptoms happens after I’ve clearly overdone it during the day (socialising, walking more, stimulation, etc.).

At night, usually when falling asleep or waking up half-asleep, I get this terrifying feeling that is SO hard to describe.

It feels like:
- no blood is getting to my brain/face
- my body and face are moving in slow motion
- I can barely control my face/body properly
- everything feels delayed or heavy
- almost like I’m stuck between asleep and awake

I’ll try to move or smile and it feels extremely slow/weird, almost numb in a way, even though I technically can move.

It usually comes with:
- derealisation / dream-like feeling
- head pressure
- dizziness/lightheadedness
- feeling like I’m about to seize or lose control

The weirdest part is it mostly happens:
- after I’ve overdone things during the day
- when I’m drifting into sleep or half-awake

Has anyone with CFS/ME, dysautonomia, severe fatigue, etc. experienced anything similar? It genuinely feels terrifying when it happens.