u/Ok_Koala_4584

i just tried to make the bed and am now in the midst of a flare, i can't shower without my shower chair without the risk of passing out, i can't reach above my head to grab things without numbness and blood pooling, i jog for 2 seconds and feel like I'm on my death bed after and same with stairs, and now driving is starting to become something i worry about & more bothersome in a flare & the chronic exhaustion. how do you guys cope with the loss of being able to do simple life tasks and activities? my fiance doesn't understand how much it affects me physically and mentally, and its hard to advocate for myself without feeling like i'm exaggerating.