u/kholekardashian12

I know it sounds obvious but when I eat a ton of veg, particularly cruciferous veg, I need less salt and water and am generally less dehydrated. I'm not talking a pathetic little side salad, I literally eat a whole head of broccoli with lunch and another one for dinner lol (steamed and seasoned lightly with olive oil, salt and pepper 😘👌 Also recommend chopped red cabbage, raw with the same dressing). When I eat like this, I can drink 1/2 a gallon (2L) of water instead a whole gallon (4L) and feel fine.

I know a lot of people can't eat that much fibre at once but I gradually increased to that amount over time because I kept noticing how much better I felt. I also love vegetables so that helps.

I know everyone has different dietary needs/difficulties but just sharing in case it helps someone.

Apparently she was diagnosed in 2018 along with MCAS and Sjogrens. I read an article on The Independent but I can't link it here. I hope she's managing it well (I'm sure being a wealthy celeb helps)!

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I've got all the windows shut and curtains drawn/blinds down, fans turned up and spray myself with ice water every 5 minutes. My bedroom is south facing and is like a fucking oven. Luckily, I don't have to leave the house as I'm in London without a car!

Doc put me on 1mg of ketotifen AM and PM. I took one dose in the evening which made me pretty drowsy but I didn't mind as I just went straight to sleep. Still, the next day I woke up super groggy and spaced out which lasted all day. I felt like I was in a total fog all day, clumsy, forgetful etc.

I've read it really helps a lot of people but after years of trialing different meds I am so tired with having to push through shitty side effects. I know everyone is different but I am looking for experiences where pushing through resulted in something positive and if so, which symptoms did it help you with?

I am on a very restrictive low histamine diet already and although my MCAS symptoms have evolved over time, the worst ones are currently throat tightening which ranges from mildly to extremely uncomfortable, racing non stop thoughts and anxiety, brain fog, tinnitus, facial flushing, itching, POTS (tachycardia, palpatations), reactive hypoglycemia, and presyncope when exposed to bright lights. Was really hoping the ketotifen would help with these so hoping others have had positive experiences with it.