Has this happened to anyone else?
I had a weird experience this morning and wondered if this is something anyone else has experienced? I only got my diagnosis in the last year so it's all pretty new to me.
I had been woken up due to loud noise in my home, and without thinking got up from bed too fast. As I was stood at the doorway my mum said my eyes glazed over (I don't remember anything past standing at the door). She said I fell to the floor thankfully sort of sitting, and she ran over to make sure I didn't hit my head on the drawers behind me. But she said my arms straightened out and my head went back and I started seizing, my arms were straight kept jerking up and my head kept jerking back. She said it lasted around 10 seconds.
When I came round, I felt really confused, my mum and dad were there and I didn't know what happened, I just remember a brief feeling of jerking before snapping out of it. My mum wanted to get my dad to call an ambulance, but I didn't think it was necessary since I have a drs appointment for POTS tomorrow anyways, and my past experiences at A&E were 11 hours of waiting for them to say nothing is wrong and then my doctor saying they won't investigate it further and just that I shouldn't drive which I don't anyways.
I felt pretty anxious and out of it for a few hours after, which I don't know if it was maybe just the shock and being a bit scared of what happened. So I had some electrolytes food and water and slept again for a bit.
My POTS has been flaring pretty badly recently, which could maybe be the summer heat or possibly because I've lost some weight? I find it's horrible in the mornings taking me longer and longer to get out of bed. I don't know I guess I'll find out more after my appointment tomorrow if I manage to get rereferred to the POTS specialist. I wasn't aware they took you off their list from being able to see them if you haven't seen them in 6 months.
I've made sure to write down some notes from what my mum saw and how I felt to mention at my appointment tomorrow. But I guess I just wanted to know if this is a common thing that anyone else had experienced with POTS?