r/ALSorNOT

The doctor confirmed atrophy has continued to get worse in my right and has started in my left hand. I get burning sensations in the muscles that are atrophying. Despite this, i got a full body clean EMG a couple of days ago. But this is only 3 months post symptom start so i suppose it is too early to pick up denervation? Body wide fasciculations still continue intermittently. Tight feeling in throat and some days having issues swallowing. Legs are always sore and stiff. I get clonus with my fingers when stretching them in my right hand. I feel like i will not be able to get a diagnosis until there is objective true weakness. Which should take another 3 months. Because my fasciculations started body wide, i don’t think i can wait another 3 months. And for what? To be told what i already know and then to die months later due to bulbar or respiratory involvement already in place?

I’m exploring options of euthanasia and getting my will in order. This is the darkest place anyone can truly be. I can’t think about any past memories without hurting immensely. Can’t think about my 2 year old daughter without crying. I can’t sleep. I’m terrified of dying but suffering immensely everyday. Idk why this extremely rare form of ALS had to hit me as a 33yo.

He vuelto y me gustaría saber tu opinión. Repasaré mis síntomas: tengo debilidad en las manos, me tiemblan y tengo fasciculaciones musculares. Puedo seguir haciendo todo, pero es cierto que me tiemblan mucho los dedos. Siento que mi pierna derecha no puede soportar mi peso y me falta el aire todo el día.

Además, creo que mi lengua se ve más delgada, aunque el neurólogo me dijo que no. Tengo fasciculaciones por todo el cuerpo, pero tengo un punto sensible en el pie. Desde que empecé a tomar duloxetina, he notado que las fasciculaciones han aumentado y me duelen mucho el cuello y la espalda. Me duele todo bastante. Siento constantemente la necesidad de respirar hondo para poder respirar o hablar, aunque esto no me pasa cuando duermo. Estoy tomando ansiolíticos, pero sigo sin saber qué me ocurre. Cuando estiro el brazo, siento un hormigueo en los dedos. No es un calambre propiamente dicho, sino más bien un cosquilleo. Al estirar el brazo derecho, también siento dolor en la parte media. Tengo demasiados síntomas. Aunque la electromiografía (EMG) del brazo derecho y ambas piernas que me hicieron en abril fue normal, ahora siento que las cosas están empeorando ligeramente. Además, cada vez que como o bebo, siento como si me subiera aire por la boca y la garganta. También me pasa al moverme. Cuando camino o doy un paseo, me sube aire por la boca, a veces sin eructar.

No sé si el problema es de la digestión o si tengo alguna debilidad muscular. No tengo ni idea porque los neurólogos insisten en que es somatización. Ya estoy tomando medicación, pero no noto mejoría. No sé qué más hacer. Supongo que solo me estoy desahogando. Todos mis análisis de sangre son normales. Estoy tomando vitamina B12 y magnesio, pero sigo teniendo muchas fasciculaciones, los dedos de los pies se mueven solos, y eso es básicamente lo que ha estado sucediendo.

I’ve been having muscle twitches/ pinched nerve pain. I saw a neurologist in June 2025 who gave me an emg that showed a pinched nerve. This year the fasciculations have gotten worse and I recently got a neck mri that showed cervical stenosis. I am trying to set up an emg as well but was wondering if my symptoms seem concerning and if cervical stenosis is a sign. My voice has gotten a little slurred since then. Because of my stenosis, there’s also some muscle weakness. No tripping and falling.

Hello everyone, I’ve had issues with body twitches and knee pain since 2 weeks ago, now currently been having arm and upper back pain (just behind the neck)

The thing that concerns me the most currently is my right leg and my right arm, both feel stiffed or “off”, I think my right leg is more prone to tripping than before. I am also having twitches on different limbs or parts of my body, not only on my right arm and leg.

My right arm feels weaker compared to my left one, don’t know if it’s just me over analyzing, I can do anything with both arms and hands, but I’ve been feeling I get tired on right arm easier.

I just went to the gym 2 days ago, and got tired first from my right arm doing triceps than from my left, when usually I get tired on both at the same time.

I have Health Anxiety and currently on meds so I’m trying to battle that part.
Are these things how clinical weakness starts?

Basically, I am wondering if I could get some insights into my symptoms. I’m 29F, and don’t want to be dismissed because of my age. I know that ALS is rare in people under 40, but it does happen.

Back in Jan/February, I noticed a sharp pain at the bottom of my left foot. It hurt to walk and was especially painful upon waking up. I did some googling, and started taking some supplements (magnesium, vitamin b12, iron) since cramps can be caused by these deficiencies. I also attempted to drink more water, iced the bottom of my foot, and massaged it. The pain didn’t go away, so I went to my primary care doctor in March. She was quite thorough but ultimately unsure of what could be causing these issues. She did blood work (normal), and did a series of tests where I had to walk on toes and heels, balance with my eyes shut, resist her pressure, etc. everything seemed fine, but the pain didn’t go away, so she referred me to a neurologist. The problem is, I had just bought a house in a town 3 hours away and was slowly moving out of my in laws and into my new place, and was on the cusp of transitioning jobs and health insurance. So, I basically repeated the same steps and now have a neurology appointment, but not for another month due to living in a rural area with long referral times.

Since my initial pain in the left foot has started, I’ve developed twitches all over my body (calves, thighs, stomach, feet, upper arm, butt), and these twitches have become especially pronounced over the past two weeks. In addition, my calves have begun cramping, especially my left calf. My left knee often feels like it’s locking or especially stiff. I had a friend comment on my “weird gate” when walking too.

I don’t have foot drop and haven’t noticed any weakness in any parts of my body. I also haven’t tripped or noticed a loss of coordination. I don’t do rigorous exercises that could be causing this cramping. Last night, I walked my dogs (who walk very slowly) for about 15 min on a flat surface and started cramping. But, I am able to walk or jog if need be and not worry about tripping or falling. I also haven’t had any symptoms in my hands (no dropping things, weakness, ect.), or my face/mouth (no slurring words, difficulty swallowing, etc.)

Thanks in advance for your help and reassurance. I obviously don’t want to post in the ALS sub.

Edit: grammar/typos

I’m looking for honest opinions because I’m still struggling with the fear of ALS, even though every neurologist I’ve seen has reassured me.

My symptoms started around September 2025 with widespread muscle twitching and muscle tightness. The twitching has actually improved a lot over time and isn’t really my concern anymore.

What worries me now is my right calf. Around January 2026 I noticed it looked smaller than my left. It feels softer and different to me, and it gets tired or burns more quickly during calf raises. I don’t know if it’s true weakness or if I’m hyperfocused on it.

Here’s everything I’ve had done:
4 EMGs/NCS over several months (including testing of both legs, all four limbs, and multiple muscles in my right calf) — all completely normal. By two different neurologists.
Brain MRI — normal.
Cervical spine MRI — normal.
Lumbar spine MRI — only a mild L5-S1 disc bulge, nothing significant.
Multiple neurological examinations with normal strength and normal reflexes.
Also my twitching has pretty much stopped.

CK: 56 (normal).
Neurofilament light chain (NfL): normal.

ANA: negative.
Other blood work has been unrevealing.
I’ve seen multiple neurologists, and every one of them has told me they do not think I have ALS. One neurologist even felt another EMG wasn’t necessary because my previous studies were normal.

Despite all of that, I can’t stop worrying because my right calf still feels different and looks smaller to me.
Also my leg is in pain it feels so different and weird.

If you were in my situation—with these symptoms, this amount of testing, and multiple neurologists saying it isn’t ALS—would you still be worried about ALS? Has anyone else had one calf seem smaller or feel different but end up with a non-ALS explanation?

I’m looking for honest experiences and thoughts, not just reassurance.

Hello all, I’ve been reading through posts on the ALSorNOT and ALS Reddits. I really dont want to bother anyone on the ALS Reddit since they are going through enough as it is. I am making this post to ask for first hand personal experiences with symptoms in relationship to reader’s diagnosis. I am not looking to diagnose myself, per se.

I am a 47 year old man that started experiencing difficulty grasping things in August 2025. I work in construction and work out somewhat consistently. I have been to several neurologists for varying reasons (first dismissive of me, second referred me, remainder at a teaching hospital so they are always rotating). I have had EMGs that have come back with the slightest signs of carpal tunnel in my right hand/wrist. The third+ neurologist did all of the tests and told me that the weakness is just carpal tunnel. I was good with this diagnosis.

I bought a splint for my wrist and went about life. All that, though, my right hand continued to weaken to weaken and I started to feel weakness in my posterior forearm. Additionally, I noticed that my ability to lift was slowly and progressively getting worse in my right arm. More specifically, there was a point I could lift 50lbs in a hammer curl with both of my arms. At first I chalked up the weakening to age, but eventually my right arm was lifting less than my left arm. I brought this up to the neurologists (in addition to weakness I was feeling in my lower right back) and they did a second EMG that showed the same slight carpal tunnel and they said the could detect no weakness when testing. At that point I was lifting 40lbs in my left arm and 30lbs in my right arm.

Fast forward to now and I am only able to lift 10lbs with my right arm while still being able to lift 40lbs with my left. I am falling down and feeling muscle twitches all over my body. The weakness in my back has spread up my right side and started down my legI think back to the clear EMG, though, and cannot imagine that it would show only slight carpal tunnel with the weakness I am feeling.

Can you all share experiences with clear or almost clear EMGs and nerve conduction studies? It may be denial, but I want to stay at a carpal tunnel diagnosis.

Hi all,

I appreciate there are so many threads about this, but I feel I need an outlet for my worry if it's ok to share with you all.

Around a month ago, I noticed a heaviness/stiff feeling in my left leg. I didn't take too much notice, but a few days later I started to get fasciculations in both legs, the type that looks like worms/insects under the skin. This has been relentless for the last month and driving me insane- I have asked my husband to check and he can see it too so I know I'm not exaggerating things in my mind.

I have become fixated on whether I am walking strangely and whether or not one leg is thinner than the other. I have been to the doctor who has referred me for an MRI head scan- for some reason he seemed to think I was concerned with MS, even though I explicitly told him how worried I was about the dreaded ***

It still feels like my left leg does not belong to me and as if I am watching my every step when walking...I am petrified I am going to trip up or fall at some point.

I have arranged to see a neurologist this week paying privately as I am completely consumed with fear and worry.

Can anyone relate to this? As it has only been a month, I am worried it is going to progress and become worse leading to the worst case diagnosis.

I appreciate if you've read this far!

Thanks all,

Mark

Need advice. I been dealing with this widespread body twitching for 5yrs now. Only issue now it’s so intense. Alll throughout my body like morris code. I’m so scared. 40yrs old just turned 40. I had 3 EMGs had them during the first year. I just don’t know what to do. Is this als like it’s so intense. Need advice to talk me off out of this rabbit hole thanks

Bonjour,

Comme promis je me permets de vous donner quelques nouvelles de ma situation. Vous pouvez trouver ici les détails de mon histoire : https://www.reddit.com/r/ALSorNOT/s/hhgCg4YQC4

J’ai la chance d’être suivie par un neurologue et un rhumatologue tout deux engagés et avec le recul j’ai pu dater exactement mes tous premiers symptômes à août 2022 donc il y a 48 mois et non 3 ans. En effet à cette époque j’étais enceinte de 5 mois et j’avais très mal au bas ventre droit (le psoas) ainsi qu’une impression de fil tendu dans ma fesse droite et le mollet droit légèrement en surcharge d’où la prescription de bas de contention. Puis je suis devenue très anxieuse par rapport à ma santé de manière inexpliquée (je me sentais en danger) d’où la prise d’anxiolitiques et de Valium massivement sur prescription et ordre d’un medecin peu ethique à la fin de ma grossesse. Je dois préciser aussi que durant ces 4 dernieres années d’effondrement de mon côté droit... j’ai et j’ai toujours des épisodes de pieds glaciales surtout mon pied droit, des sensations d’aiguilles sur l’ensembles de mon corps qui ont durée 1 mois et demi non stop une fois avec des fourmillements dans mes 2 premiers interrosseux et des migraines avec aura me clouant au sol dans les magasins (je croyais la première année avoir la sclerose en plaque).

Après discussion avec mon neurologue je peux affirmer à 100% que je n’ai jamais eu de clonus mais le reflexe de golgi à mon mollet droit. C’est un reflexe lorsqu’un muscle est surchargé et il se confond très fréquemment avec un clonus.

À l’heure actuelle je ne sais toujours pas ce que j’ai exactement au bout de 4 ans de symptomes et 3 ans de fasciculations majorées par la prise d’anxyolitiques. Tout ce que je sais c’est que ma posture lors de ma grossesse a commencé à dévier sournoisement à droite au point que ma cheville, mon genoux, mon bassin, mon epaule droite ainsi que ma tête ont changé de position au fil du temps..., avec une surcharge du diaphragme droit, du reflux de plus en plus envahissant, une dysphagie basse tellement mes muscles de ma gorge sont serrés et à l’heure actuelle j’ai également une déviation de ma machoire en raison d’un trouble ATM et donc des troubles d’élocution.

Comme dit j’ai été diagnostiquée avec le trouble de spectre hypermobile congénitale il y 3 mois après avoir passé plus de 4 ans à passer pour une folle auprès de ma famille, mes collègues, mes amies parce que les medecins ne voyaient rien ou ne prenaient pas ma situation au sérieux. Je dois passer tout bientôt un IRM musculaire du corps entier, un scan debout pour objectiver mes déformations et les potentiels évoqués moteurs. Je serais ensuite, si les résultats sont normaux, en réadaptation avec des aides externes (vêtements compressifs, des semelles proprioceptives, corset, éventuelles chirurgies) et il sera très difficile pour moi d’enlever la SLA de ma tête quoiqu’il en soit. Mon message s’adresse à ce que je lis et qui sentent profondément que quelque chose ne va pas, battez vous pour avoir des réponses.

I’m 30F and last year (May) a day after a procedure where I was under anesthesia (idk if that’s relevant) I took a nap and woke up with a Charlie horse cramp in my right leg. Almost immediately after, the twitching started.

The twitching was all over and I had inner body vibrations as well. The twitching was & still is in my feet, calves, thighs, butt, face, back, hand, tongue - literally everywhere. Since then I’ve only had about 5 actual muscle cramps in my right calf and hamstring.

The twitching has always been at rest and I’ve even had a tingle like feeling in both feet on and off.

Although my right leg - and sometimes left - have been tight, yesterday was the first day I really felt weakness. My leg felt heavy and like I was dragging it. My foot still moved and wasn’t dragging but it felt it was working hard to do so.

I don’t really have anyone I can talk about this with, which is why I’m coming in here. Does this sound like als? I’ve done some slight research but I’m just confused and scared but I’m trying to remain calm because it can be anything. Please help me by giving advice, resources, or just a conversation.

I’ve been worried about having ***for the last year and its been driving me insane to the point where I couldn’t even spend time with my family and I kept thinking I was going to ***. I made 4 posts ab this and every-time I make one its because I dont know what to do or think. Back in September of 2024 (I was 16) I got scratched by a stray cat and I thought i had rabies, thats when I started developing muscle twitching around my body and started having spasms and jerking while sleeping but it got even worse with hallucinations. I begged my parents to take me to my pediatrician and got sent to do bloodwork and it came back normal I’m pretty sure and when I found out I tried to forget about it but the muscle twitching stayed and the cramps in my feet stayed as well but the twitching got worse all over my body including my tongue and area below my stomach. After 8 months when I searched up on google my symptoms *** appeared and I couldn’t keep my mind off of it then more symptoms came in like me feeling more weak and not having as much strength as I thought I had tingling sensation and buzzing as well as my body aching. This was one of my lowest points because i became so set that I had it and I was going to *** and thats when I couldn’t focus on anything and would cry any chance I got. My parents didn’t buy it and thought I was lying and thought nothing was wrong with me and i begged for them to take me to my pediatrician again and they did but when I went the pediatrician put how i was feeling to the side and i never got evaluated on the symptoms. After the visit I kept asking chatgpt about my symptoms and kept googling it and it was all making me believe I had it. Chatgpt said thats not how it presented itself while google was saying otherwise and it made me super depressed and confused. Once summer ended and I came back to school (I was 17) I tried to ignore it all and it still never went away and I just went to live with it. And when school ended and I graduated My body had the same symptoms but there were more noticeable stuff like me getting weaker in some areas like if I’m standing a certain position with my knees bent I can feel it struggling and same with my arm if I’m pressing it to hold me up it feels pressure and just starts shaking and so does my finger when their at a certain position or angle. I tried ignoring it but its just so unbearable and i want to be ok because I’m too young and want to live. My parents still don’t believe anything is wrong with me and I know I’m not crazy but I just need someone to tell me if I’m ok or not because its been going on for too long and the weakness i feel is becoming to eat at me.

Has anyone else had months of fasiculations (bodywide) with notable atrophy of the hand muscles and have it turn out to be a non dominant discrepancy vs. actual illness?

My left hand definitely exhibits atrophy, as this was noted in my first neurological exam... but my EMG NCS was grossly negative when tested in the arms bilaterally.

This is the symptom I cannot get past and I just need some input from others in the same boat. I should note that my hands both cramp and ache on and off from general light use, which I always attributed to the twitching.

I’m 7.5 years into my twitching journey. It started in my left calf and has never fully stopped. It varies in intensity but is always there.
I also get random hot spots EVERYWHERE else. I’m sitting here looking at my calf as it puts on early fireworks display and thought I would post. I’m sure my story is both reassuring to prove to you newbies that it is quite possible to twitch for a long time and be fine it’s also probably distressing to some to know that yes, it may never stop fully.

I’m a 38 year old woman and used to be an avid runner. I ran a half marathon in December, then one in March much easier. Then I started training for a fast 5k. I amped up my speed training and it was rough.

3-ish months ago I was out running and it felt like my shorts were too tight on my right hamstring. I thought it was odd and switched to looser shorts. Then every time from then on I ran it got worse. My right upper leg would seem to tighten up and it just felt wrong and like I was running on a wooden leg or something. At first it was after a few miles, then it was after a mile. No stretching would stretch it out. I even went to the zoo with my family and my leg started feeling funny there after walking a few miles. Around this time I was having a LOT of twitching in that area of my leg.

I took a month off thinking on whatever and tried to run a month later and the problem had not gotten better at all. I saw an ortho they did an mri of my lumbar spine and found nothing. I went to Legoland with my family and surprisingly my leg didn’t feel bad. However I did start cycling and this seems to make it start feeling weird again. I went on a very relaxed vacation and honestly didn’t notice many symptoms and the twitching has gone away.

I had a neurologist appt scheduled after my vacation and almost cancelled it. However I kept it and he said I have a positive Babinski sign on my right leg and said my gait was off. My strength was normal. He seemed freaked out and wanted me to get an MRI to make sure I didn’t have a stroke. MRI was mostly clean except for “very slight calcification of basal ganglia”??. He ordered an EMG but I can’t get it for a few weeks. And now I swear I’m feeling some weird tightness and “funny” feeling in my right arm.

How concerned should I be about the the Babinski sign?. Or my leg not “working” right? I also have scoliosis and a short leg length discrepancy if any of this matters. I am just a nervous wreck. I’m a mom with a four year old and she depends on me.

My Story might not be your story.....Who are the other bulbar people that have been progressing for a bit? If any that have had subtle signs that have continued to progress? Anyone digging into any natural holistic things that have seemed to help at all?

Reality is setting in more and more despite what some on here have said that no way have I had subtle symptoms for 3.5 years and this be MND. Within the last 2 months swallowing has definitely become more and more of an issue. Stiffness in both upper thighs have become evident and a struggle. Weakness in all areas continues to decline despite trying to maintain what I have. Yes I still work, Yes I still enjoy my days, Yes family is going on vacation so I still count my blessings daily! No I'm not controlled by anxiety or by assumptions of whether or not my body is continuing to decline. Do I have all the answers, nope. What I do know is that I have had very minor symptoms that all started 3.5 years ago and have continued to progress for what some may say slowly but for me not so much. Does it seem equally symmetrical all the way around, yes. (Left hand being a little weaker and smaller than right but not by much but can still tell, balance issues worsening. Upcoming swallow appt. again this month after not being able to complete the manometry. Which is the doctor who said this was bulbar ALS almost 2 years ago, but since neuromuscular teams aren't able to identify anything, welp we wait and keep pushing the best we can to stay mentally and physically strong. Pretty sure they will look at throat and say irritation again because well you can feel that. Hoarse voice, pain when talking more and more. Some on here say it's not possible for it to be ALS(Bulbar), how do we really know? Subtle symptoms for 3.5 years with swallowing and tongue issues and more and more other areas progressing. Testing hasn't shown any major issues but I certainly have issues happening can we chalk them up for other things welp we can but not convinced that we also can't say its the progression that has been happening for multiple years now and that a private neurologist detected some PSW and then others didn't. Minor Swallowing issues that showed on MBSS and minor PFT issues. Is this the case that some researches will say welp their tests weren't 100% clear before so they never had a normal test from the beginning? That honestly drives me crazy. Will they say those issues were none related....I scratch my head when we can't detect anything when your body is functioning at a much lower ability than before. Progressive weakness that has now caused more and more twitching and buzzing, pain, burning. Ive never been one to say much about the twitching because I see those beat down from mentioning it. Have I had it from the beginning yes, is it worse now in the weaker areas, yes. Has my glutes been the worst and now the face and hands, yup. Vision effected yes, eye lids effected yes, temples and scalp effected yes. How in the world are we not able to detect anything when we have lost most muscle in areas that is quite noticeable. Mind blowing! When at the end of the day you know you've lost measurable muscle and a test can't detect it, that's unimaginable. Is that due to the muscles being effected are small ones so the damage is not detected as easily. Tongue has thinned considerably how can you tell, well you can definitely "feel" that, do people say you can't "feel" mnd, yes, but I can tell you, you can absolutely tell when you have tongue issues.....This may irritate people but reality is for me, multiple emg's full body (last one a year ago) no sign of neurodegenerative disease, and a face one in November that didn't detect anything (all by neuromuscular clinics). Multiple NFL by an off lab that doesn't factor BMI show regular, yes, every other test possible showing nothing, yes. At the end of the day, still have to think we absolutely are facing what some call " the rarest of rare" which I disagree with I believe that testing isn't able to detect until a certain threshold (failure) is met. I believe the medical society where I live is so blind to subtle symptoms they turn their heads. Have I read some studies, yes not as many as some, but nothing shows us really how long things are happening before an obvious clinical weakness, only then do we have statistics, from what ive seen. Recent things Ive seen by a doctor who studies mnd showing differently that possibly years that people are dealing with symptoms before it's detectable....What I have done is for over a year, taken lots of lion mane, L serine, larger doses of b12 at times, alpha lipoic acid, not regularly but cut lots of carbs and sugars. Taken some additional supplements inconsistently. Taken care of my mental health cause well doctors are brutal and not very help besides trying to mask symptoms, lol, if I have one more "migraine" med thrown at me I could start my own pharmacy. I know what a headache is and that's not what I have. I have pain in my head due to muscle loss and the strain of holding my head up from weak neck muscles....Been thankful for everyday that Ive been given because none of us are promised tomorrow. Thankful for a supportive family and friend base that has watched the decline and not able to do anything about it. Sorry it's long and trust me when I say this those of you that have to guess if you have weakness then it's probably not weakness. You know when you have weakness ,you absolutely can feel it. Your ability becomes altered and things become more and more challenging. Normal everyday things.

I’m a 29 year old female, I’ve been worried about als for 11 months, with problems with my thumb, but I got therapy and actually resolved my symptoms, but since I’ve started to use my thumb as normal, 4 weeks ago I noticed my shoulder started twitching and hasn’t let up, it’s persistent and also comes with heavy, tired arm, and I find it hard scrubbing overhead, I’ve read that muscle twitches that persist in one muscle is always bad, I’ve had brief muscle twitches everywhere for years but never one that stays, I’m that worried I’m losing weight because I cannot eat through the worry, I’ve called my GP and they’ve just sent me antidepressants. Any advice welcomed right now!

Video is on my profile.

Took blood tests for Myasthenia Gravis/MuSK

Hi everyone I need some talking off a ledge is possible my right hand has just felt off for the last year.

It feels heavy, not as strong, stiff, and like I can’t use it as well as I used to. I haven’t noticed any visible strength loss yet but I have been hyper focusing on my right hand all day everyday. I am a 31 year old new father with another one on the way and deathly scared of not being here for my family who I love and adore so much. Should I see a doctor or could this be normal and health anxiety, nervous system issues? Are there things at home I can do to help me calm myself down and move on with life and not fixate on this?

What do I tell my doctor for them to not think I am nut?

To start off I'm female and 20 years old, which I know makes it very unlikely to be als, and i also have bad health anxiety 😭

Around January I started to feel like my left arm shook when I kinda leant on it. I went down the als rabbithole and made my anxiety so bad, my legs hurt and I was getting twitches all over which then went to just my left leg. I put it down to anxiety and kinda forgot about it but around may I started to think about it again, now at the start of July I feel like its worse.

My left leg and arm feel weak, and they're smaller than my other side and it's been driving me crazy(tho this could just be me, maybe not noticeable to anyone else😭). I also feel like my left leg and arm have a kind of constant shake? It's more like a very slight buzzing thats always there. I dont get many twitches it's just a few a day probably. My left leg and arm sometimes feel kinda cold too, like a shiver just goes through my left side.

Swallowing has been worrying me a bit too, but I've put that down to my tonsils being stuck enlarged after multiple bad bouts of tonsillitis at the end of last year and start of this year.

I can still do everything I can before, I can still walk even if sometimes my legs kinda awkwardly jut forward, I can still carry things and pick things up but my left arm gets tired faster. I tried to put it all down to anxiety but I feel like it's getting worse and more and more symptoms are appearing (only thing making me feel better is that some symptoms kinda come and go) and i honestly am not sure what to do.

I'm also type 1 diabetic.

Any reassurance or possible answers would be greatly appreciated 🫶😭