Worried about als symptoms

To start off I'm female and 20 years old, which I know makes it very unlikely to be als, and i also have bad health anxiety 😭

Around January I started to feel like my left arm shook when I kinda leant on it. I went down the als rabbithole and made my anxiety so bad, my legs hurt and I was getting twitches all over which then went to just my left leg. I put it down to anxiety and kinda forgot about it but around may I started to think about it again, now at the start of July I feel like its worse.

My left leg and arm feel weak, and they're smaller than my other side and it's been driving me crazy(tho this could just be me, maybe not noticeable to anyone else😭). I also feel like my left leg and arm have a kind of constant shake? It's more like a very slight buzzing thats always there. I dont get many twitches it's just a few a day probably. My left leg and arm sometimes feel kinda cold too, like a shiver just goes through my left side.

Swallowing has been worrying me a bit too, but I've put that down to my tonsils being stuck enlarged after multiple bad bouts of tonsillitis at the end of last year and start of this year.

I can still do everything I can before, I can still walk even if sometimes my legs kinda awkwardly jut forward, I can still carry things and pick things up but my left arm gets tired faster. I tried to put it all down to anxiety but I feel like it's getting worse and more and more symptoms are appearing (only thing making me feel better is that some symptoms kinda come and go) and i honestly am not sure what to do.

I'm also type 1 diabetic.

Any reassurance or possible answers would be greatly appreciated 🫶😭

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u/ilovegojo11 — 4 days ago

Bolt merch at disneyland paris

Hiya!! I'm heading to disneyland paris soon and I was wondering if there is currently any bolt merch available there? It's always been my favourite film since I was little, and I'd love to add to my collection, but I'm also expecting to not see a lot😭

(I already have a baby bolt, the large sitting bolt, the little bolt with the big feet, and bolt from i think 2010 Disney store, mr carrot, a small rhino plush and a Christmas decoration!!)

Thank you!!

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u/ilovegojo11 — 6 days ago

Omnipod wait times

(20f)I've been diabetic for coming up to 18 years, At the end of last year I decided to go through with getting an omnipod, doctors had always suggested getting a pump for years but I was never a big fan of the tubes and always having a bag around your waist etc, I don't like talking about being diabetic or bringing much attention to it, so I'd been very against it until the omnipod came around that wouldn't be too different from my libre, plus I'm putting so so much work in for not even the best results.

Firstly spoke about it with my main doctor in January and he said that he used to be able to give them out immediately but now he can't and I could be waiting a while, and i understood that but ended up getting a pump assessment appointment around march time where I'd been told that the omnipods would be ordered at the end of April and I'd get a call for training in May or June. Me and my family left the appointment feeling super hopeful because my quality of life with the omnipod would just be so much better.

Then a phone call never came, and my parents decided to call them just to ask about it, and suddenly the diabetic clinic were telling us that there was no funding and that I may have to wait for another five months. I understand that a lot of people are waiting but they proceeded to completely gaslight us and say that they'd never told us it was happening may/June time.

I had a general diabetic appointment yesterday and ended up crying twice during the appointment because my family are all annoyed at the doctors but they just keep telling us there's no funding, then i was crying because at my last eye test they told me i had stage 1 retinopathy which has always been completely clear before, and I'm always anxious about my health and I'm so worried my body is just gonna give up.

As nice as the doctors are, their advice doesn't help, they always ask me why my low alarm is set at 5.3 and tell me that I shouldn't treat until I'm below 4, by then I'm shaking and feeling awful, the other night i was in bed for 30 minutes low and it wouldn't come up after treatment and they they couldn't even see it on the graph. We try the things they say and non of it ever works.

Sometimes I just wont eat certain things or I wont have something my friends are eating/drinking while we're hanging out because I don't wanna deal with my blood sugars afterwards, and it's just generally exhausting, it feels like the doctors don't understand.

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u/ilovegojo11 — 1 month ago

Repeated tonsillitis

(20f) all of my life I've had tonsillitis each winter, usually once a year or every other year (my mom also suffered from it very badly but had her tonsils removed) but last winter was the absolute worst, I had it so many times and it just kept coming back, the one time doctors wouldn't immediately give me antibiotics and I thought I was going to die that night because it got so bad and I couldn't breathe, so it's been pretty bad😭 a doctor then brought up a tonsillectomy and my mom did today too after i noticed just how big and like lumpy my tonsils have gotten again (struggles swallowing for the last couple of days).

I'm still deciding what I want to do, but I don't know if anyone who's had it done could give me some reassurance or give me an idea of what it's like, as I've never been under anaesthetic or had something like this done and it just seems scary 😭

(I'm also type 1 diabetic, so I'm a bit nervous on that side with going under and my blood sugars, but my mom did say that you can choose somebody to keep an eye on levels while in surgery.)

Thank you:)

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u/ilovegojo11 — 1 month ago

Arm and leg twitches and shakes

(20f) hiya, a week or so ago I started to get twitches all over my body which made me fall back down the als rabbit hole, and since then the twitching in my body lessened but feels like its now contained to my left arm and leg. My left arm and leg also shake more, I feel like I can always feel the slightest shakes running through them and now I've convinced myself that my left leg is thinner than the other and ive lost muscle (this could have already been the case maybe I just never noticed) I've also just had a few cramps, never very bad just there for less than a minute.

I noticed more of a shake in my arm when I put pressure on it a few months ago, initially worrying about als then but forgetting about it after it didn't get worse, until now at least.

I can still do everything I used to do, I can still walk long distances, pick things up and grip onto things etc, so I'm hoping it's just anxiety, as I suffer with health anxiety quite badly. I also know that I'm very young so it's extremely unlikely to be als.

For any extra information I'm type 1 diabetic, I've never smoked and barely drink. I go to the doctors quite a lot already so I don't really want to go unless it gets any worse, so I'd love any reassurance or answers to what's wrong with me from anyone here😭

Thank you

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u/ilovegojo11 — 2 months ago