r/Type1Diabetes

There is a senate bill that is capping the price of insulin!
▲ 106 r/Type1Diabetes+2 crossposts

There is a senate bill that is capping the price of insulin!

Hey guys, I hope you have all had a chance to see the new senate bill thats in committee that is proposing a mandatory cap on insulin copay at 35$ a month. They tried this for medicare patients with great affect and are now trying to do it for everyone. PLEASE contact your senator and tell them to cosponsor the bill. I've been working for the last several weeks to rally diabetics and non diabetics alike. The bill already has 26 senators cosponsoring it I really think this could be the first of many great steps to make diabetes affordable. I made a YouTube video explaining it and backing it with research but I'm not sure if that counts as self promotion so I won't tag it. BUT PLEASE, contact your senator and tell them to co-sponsor the bill it's very easy and the bill is S.4189!!!!

edit: mods please dont ban me or delete im not trying to self promote but my video discusses the current caps that are available for insulin and why they arent sufficient. I swear im trying to do a good thing here! Everyone please watch and you will see just how bad the problem is https://youtu.be/HifNXl7HXDk

u/movingpandas — 3 hours ago

Substance abuse with T1D

Hi i’m 19 years old (in 13 days)
I’ve had T1D for 15 years but it always feels like way longer. I’ve had so many times where i’ve been mad about being high and ripping my hair out, breaking shit on my room, smashing my head into walls and all of that kind of thing. I felt like it was my fault for eating. Yes, this is a rant but i also wanted to yap a bit to see if anyone else has experienced this?
And about the substances- i started drinking heavily at 16-17- and the second that i turned 18 i was buying full 700ml bottles every 2 days. Its changed a little bit (as in i’ve been buying super strong but super cheap box wine haha)
I have also experimented with the fun sniff sniff stuff ( i don’t know if i can say it on here)
The snow ❄️ makes me feel normal? like my diabetes is apart of me for once in my life - instead of feeling like it controls me. i’ve been doing the stupid snow bs once every week or two but i do a lot and in a short period of time cuz i want that freedom!!!
Also any tips to stop drinking? I canf go a single afternoon/night without getting atleast a bit tipsy/drunk.
And yes im drunk right now which is why all of this rant is probably awful and poorly worded. If any of you want to be harsh on the comments- that’s okay. I need someone to give me a wake up call. The only wake up call that i’ve had recently - was my mum yelling at me for eating pizza and fcking up my bloodsugar. Yk… all my fault. TAKES ME BACK TO THE TEEEENAGER 13-14 YEAR OLD DAYS 😭😭😭

I’ll stop typing now- if you made it this far- thankyou 💗

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u/AstronomerNo9831 — 6 hours ago
▲ 47 r/Type1Diabetes+1 crossposts

What should I do? I'm recently diagnosed with type 1 diabetes so I'm new here

Hey everyone, I'm recently diagnosed with type 1 diabetes and or it can be type 3C Because I had an operation of pancreatitis two years ago and a few months ago I was diagnosed with type 1 diabetes, and some doctors are calling it type 3C. I will tell you my full story later, but right now I want to know what should I do when my sugar level drops this low while I was sleeping, I have just eaten half a packet of biscuits but what else should I take like i don't have glucose rn that's why I ate biscuit so is it fine?

And I want to know so much about type 1 diabetes so please guys help me out with it.

u/ConsciousTie6173 — 13 hours ago
▲ 3 r/Type1Diabetes+1 crossposts

Stuck over 200 resistance, only me?!

I seem MUCH more «responsive» to boluses when I’m UNDER 200 than when I’m over 200.

Tips?

I do everything i can to stay under 200 then as glucoses rises over 200, it’s almost a lost cause. …. Killing me, obviously literally. 😵‍💫

I use very little insulin generally. Recently just began bolusing 1-2u as I get up for no good reason but to avoid sliding over 200 accidentally, figuring I can grab something to eat if I start sinking.

Did that today, counted up 35 carbs and boluses around 4 units for that, all seemed fine. Then glucose starts rising, and I kept bolusing hoping it’d stop, like:
0.2
0.2
0.2
1.5
0.1
1.0
Then it tops 200 and I keep stacking hoping it’ll turn the top corner, but no… now 241.

Grrrrrrrr!

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u/INTPj — 10 hours ago

Absolutely perfect for low blood sugars. I needed something to switch up what I treat those with.

u/Lijey_Cat — 11 hours ago
▲ 4 r/Type1Diabetes+1 crossposts

Where can I find G6 sensors?

Long story short, I'm going overseas in August. I have not started G7 yet, but I know the G6 works perfectly for me and would prefer to have one during my vacation (7days). My pharmacy is not carrying it anymore (Walgreens), so are there any online sources that are legitimate to buy from?

Thanks!

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u/ValentinesGh0st — 10 hours ago

What to do?

Recently, my BG always becomes high after eating, i suspect im a little sick or something because why else.

Anyways when this happens, i just manually inject insulin, but im concerned if the smart guard algorithm will now conclude that giving only a small amount of insulin will return the BG to normal. Inturn messing with the overall algorithm for keeping the BG normal.

u/Thomas_LTU — 12 hours ago

GLP1 anyone?

Has anyone here taken a glp1? Is that even a thing? I’m thinking about asking my endo next month. My bloodsugar is well controlled with tslim and dex. I’m tired of being fat 😂

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u/Civil_Top_4591 — 21 hours ago

Can anyone diagnosed with T1D as a teen/adult relate?

Just got home from my parent’s place to make myself a meal that won’t make my blood sugars crazy. There was an expectation that we would BBQ, but somehow we never did…? There were snacks out all day and somehow I was making a scene that I wanted to start eating at 6-7p, but nobody else was hungry because they had snacked all day and I had no interest in the snacks (cookies, crackers, pie, etc). So I just kinda left to go home and make sure I got some good nutrients and food in so my blood sugars will be good overnight.

I was diagnosed at 13 and am 31 now. I take really good care of myself and it’s all good.

But I have this inner-child screaming though when my parents go well out of their way to get dairy and gluten free options for my sister (who does not have celiac or allergies) and alternative foods and treats for my adult brother who cannot stand eating fruit. I find it weird that I actually have this terminal illness, but my parents ignore it, but show up when it’s easy for my other siblings. They tell me “oh you manage it so well,” but I think that was how they copped out from learning what I deal with.

Since I was diagnosed, NOBODY but myself has given me injections. Nobody helped me carb count. They’d send me to church camps without medical supervision. I’m just so confused how I’m alive. I’m just sad and kinda looking for connection here. I know a lot of you have experienced similar things.

Edit: also, if anyone has tips how I can forgive my parents, not be so jealous of my siblings, etc, please throw a comment in… I don’t want to feel this way. But I’m angry I’m still alone. I talk about T1D all the time, but I know now they’ll never see it differently.

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u/wittwlweggz — 1 day ago

G7 & omnipod

I just recently switched to the g7 and I really do not like it. How do I get it to stay connected to my omnipod if it’s not on the same side of my body? I have them both in my arms but one is in the left arm and the other is in the right arm. I can never get the d7 to stay connected to my omnipod. What am I doing wrong? It’s super annoying. I tried to see if I could find a post about this but wasn’t able to. Thanks for any help.

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u/perceptionoutside669 — 16 hours ago

Hopefully I’m not alone.

Serious question… how many Type 1 diabetics here are also struggling with drug addiction? I honestly never see anyone talk about it, and it’s made me wonder if I’m really that alone. Alcohol has never really been my problem. I had my phase in my early twenties, but I hated feeling a hundred times more hungover than everyone else, and I made some terrible decisions, so these days I rarely drink. My struggle has always been drugs. I was diagnosed with Type 1 when I was 14, and somewhere along the way they became how I coped with all of this. Now I’m at the point where I’m terrified of the damage I’m doing to my body, but I’m just as terrified of trying to live without them because they’ve been my way of coping for so long. The hardest part is I have an incredible family that loves me, and it would absolutely destroy them if they knew this is how I’ve been surviving. I’m not looking for sympathy or a lecture. I just genuinely want to know if anyone else with Type 1 is fighting this battle too because some days it feels like I’m the only one. If this is your reality too, what’s your story?

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u/Ok-Object-4815 — 1 day ago

do you think this will pair??

i can’t really tell but i think the needle is bent, my sister says it’s fine but should i let it pair or not waste my time?

u/nadiasworld- — 1 day ago

9 year old son just diagnosed

Hello all, as the title says, my 9 year old son was just diagnosed as T1D. It’s been a rollercoaster of emotions the past 2 days, as we have been bombarded with information. Our son was experiencing headaches and nausea for the past few days. He had an off color, almost looking grey, and seemed tired. he was also drinking lots of water and he almost had 2 accidents in his sleep, which was not normal. I also noticed he was losing weight. I remember at the beginning of June he weighed 95 lbs and yesterday he weighed 85lbs. We took him to his pediatrician and she wasn’t concerned, said she thought it was constipation. I knew something was off, and begged for blood work. She called me back an hour later and told me to go drive my son 2 hours away to the children’s hospital because his A1C was 10 and his fasting glucose was 224. When we got to the hospital his glucose was 650 and he was almost in DKA. They took us back right away and we’ve been admitted since. My son has level 1 Autism so he does struggle to understand what is actually going on. My husband and I are doing our best to explain everything to him, but I know he still doesn’t really understand what’s happening. He thought once we left he would be able to no longer have shots, but I told him this would be forever & he had a breakdown. He’s ok now, dad and I are learning, but it’s a lot. His blood sugar has been all over the place, up, down, all around. I’m just overwhelmed with what is to come, what to expect. I don’t want to mess up and make him sick with a wrong dose. I’m scared to make a mistake. My son also spends a lot of time with family members and I don’t know if I’ll ever be able to trust him being out of my sight or in anyone else’s care. I’m really just going through it right now, just trying to find any advice, tips, tricks. Anything to help us get through this initial diagnosis time. I’m an extreme over thinker, so I’m trying my best to stay calm and strong for my son.

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▲ 17 r/Type1Diabetes+1 crossposts

I injected short acting instead of long acting

I am freaking outtt idk what to do please help i injected 16units of Novorapid instead of tujeo please reassure me that i will be okay i drank two juice boxes and ate 4 sweetened yoghurts with honey i am really scared what else should i eat I’m newly diagnosed and never experienced this if anyone ever went through this please help

Edit: i forgot to mention that before 30 minutes of making this mistake i took 2 units of rapid acting as a correctional dose
Edit again: Thank you guys so much for your helpful advice I really appreciated it thankfully I survived lol i have no fast acting on board anymore

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u/SprinklesSquare7379 — 1 day ago

i have a deep yearning to rage bolus

my blood sugar has been high since noon. it is now 5 pm. my pump says i’d be putting 1.58 extra units on top of what i already have active. i almost want to bolus more than that. should i just drink a ton of water instead and wait it out? probably! do i want to do that? no. i have to eat hot dogs tonight. i need my blood sugar to be reasonable to have my hot dogs.

edit: had 3 hot dogs. keto bread as buns to balance it out. blood sugar came down quite a bit beforehand. 173 is good enough for me.

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u/Master_Spinach1441 — 1 day ago

Got a Google laugh out of this

I know we take about all the inaccurate details portrayed in movies/TV shows so I thought maybe yall could get a good laugh about this one. I find this guy hilarious all around and this definitely made my laugh.

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New quickset canula and sugar spike

I have observed a pattern whenever i put in a new quickset at fresh site, the first bolus i take gives me huge spike in sugar levels. Anyone faced the same and any solution to this?

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u/Rich-Elderberry-7665 — 22 hours ago

Rash from showering

Hi so basically whenever i shower i develop thumb sized rashes for a bit (~30 mins or so each time). It doesn’t hurt it’s just really itchy. I was wondering if maybe this was another diabetes symptom or if anyone knows what it could be related to?
It’s not that bad but i’m just annoyed right now

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u/erha2 — 1 day ago