r/Type1Diabetes

Mine is “I can’t get no sleep, I can’t get no peace” from the song Girl Crush

It’s almost been 2 years since I got diagnosed with diabetes, and one weird thing I’ve noticed is that how badly I handle temperature now.

In summers I feel insanely hot compared to everyone around me. Even when other people seem completely fine, I feel like I’m overheating and about to faint. I genuinely can’t tolerate heat anymore.

What’s even stranger is that in winters I barely feel cold. I can’t wear layers because I start feeling suffocated. Most of the time I’ll just wear a t-shirt under a worn out sweatshirt with summer trousers and that’s enough for me. I can’t even wear socks.

I don’t remember being like this before diabetes, instead I was the complete opposite, so I was wondering if anyone else has experienced something similar after getting diagnosed?

Anyone experience a sensation in their nostrils when they get high blood sugar? I am finding it difficult to explain... as it is not a "smell", but a feeling when I inhale through my nostrils that shows up when I experience high bs.

Sorry if this has already been discussed/answered... just joined the group. Excited to discuss "advanced" topics on T1D here (sick of the FB groups with "I just ate a bowl of fruit loops and my glucose is 310")

Hi. So I was reading about hypoglycemia treatment whole past night, staring at a flatlining Dexcom. I've read what a T1 person should eat glucose immediately to start getting back, and my question is what to eat after that, at what interval, with out without insulin? I read in some old topic here that it should be sandwiches, pasta, rice etc. But outside of bread it requires cooking time, how do you deal with that? And how much bread is ok?

I've given a hypoglycemic relative sweets and sugary water and a small ham sandwich in that order and it almost didn't register for like 2-3 hours, and then after another round of fast sugars closer to morning, blood sugar rapidly spiked from 50-ish to almost 400 in a span of an hour and then I had to give fast insulin shot to stop that. By morning she's ok, but this night was crap. Any advice for such unexpected events? (I have one GlucaGen and didn't use it)

i have had both the g6 and the g7 and have had so many issues and dexcom just being entirely unhelpful. I am on a omnipod 5 and was thinking of asking my endo if i can switch to the libre because I cannot keep dealing with dexcom anymore quite frankly!! would love to hear other people's experiences and thoughts!

This is probably going to sound kinda silly to others, I mean it sounds silly to *me*, but I almost feel.. emotional? About my pump slowly breaking. I'm not usually one to get super attached to my pumps or devices but this is the first pump I've had that is slowly dying basically. And like yeah I'm sad about it but a little beyond just "oh that sucks oh well" it's more like this pump lasted beyond the expected lifespan and warranty and I'm grateful for getting me through these years. IDK I guess it's kinda like a bittersweet "thank you for everything you've done for me" kinda feeling. I guess also the fact that it's slowly leaking lubricant is like an equivalent of slowly bleeding out in a way. I will also add that I'm autistic and that sometimes it's kind of an autism thing to anthropomorphize items. I'm not like sobbing heartbrokenly sad but it feels like "Aw man this little pump worked its little motors out" (I mean it's thankfully STILL going while I painstakingly wait for a new one, it's kinda like pump hospice right now sorta...)

Carb counting can be a challenge but as I’ve been doing it for awhile now, I have noticed that some nutritional information labels are just plain incorrect. I buy frozen hash browns to eat in the morning and they’re labeled as being 15g of carb for one. After going high a few times after eating them, I weighed one on my kitchen scale only to find that the carbs by weight for potatoes (they’re nearly all potato with just some onion powder and a preservative) are nearly double that. There are gluten free breads (I’m also celiac) labeled as 18g per slice that I have to call 25g just to stand a chance of not going very high. My carb ratio is pretty dialed in so I really don’t think that’s the issue. Anyone else notice this? Do you all mainly count from food labels or do you have other methods?

I hate this heat so much! The past two days I have been unable to get my blood sugar down and now I cannot get it up! I was 200 and gave myself 1.5 and now I can’t get it above 80, I am on my second 20oz regular soda in the past 2 hours. I fucking hate this shit!

Hi guys! I’ve posted in here a couple of times already, but for anyone who missed it, at the end of last month I was admitted to ICU in DKA with ketones of 6.9 (blood sugars were fine but the running theory is I’d had gastroenteritis the week before and it had really knocked my body out of whack). I was ill, didn’t eat for a while, then I started getting better slowly, managing some food etc, and was eventually discharged two weeks ago.

I was still a bit sick when I got home but since then I’ve been doing okay, lots of rest and recovery etc. until last night. I’d felt alright during the day, albeit a bit sleepy. Then around 6pm I suddenly started feeling awful, these horrible cold feelings right through my core, really nauseous and light headed and generally out of sorts. After a bit I checked my bloods as I started feeling low as well, and I was 4.1 and dropping. I had treatment, they dropped to 3.8 before coming back up, but I didn’t stop feeling low even after I was in double digits. By this point id not eaten since lunch and the thought of food was making me feel even worse. I had a real panic attack since this was exactly how my illness had started when I had gastroenteritis. I waited an hour or so but it didn’t pass, so I went to A&E. They did the usual bloodwork and said everything was fine there, gave me some IV fluids for dehydration and then sent me home. I’ve felt pretty rubbish today too, but perked up briefly a couple of hours ago and got some food in me.

Now I’m trying to settle down for the night but the nausea and tummy discomfort are really bothering me. Part of me feels I should be readmitted to hospital for observations because I’ve been sick since 14th April at this point, I should be getting better but I feel like the past two days I’ve taken several steps back. My main concern is the nausea and the wooziness, I’m finding it so hard to concentrate and it feels like my brain isn’t in the room with me. My GP prescribed some anti sickness this afternoon but they aren’t ready to collect until tomorrow, and they did put me on antiemetics during the gastroenteritis that didn’t help at all. If I get so sick I stop eating again, I’ll go into DKA again and have to relive this whole ordeal. I feel like nobody is really taking me seriously or listening to me, they just keep saying “stay hydrated” and I really am trying, but I feel so rough and out of it. Again, that part of me saying I need admitting back to hospital is so loud but nobody I’ve seen is listening because my blood work came back okay.

What do I do? Is this all normal for DKA recovery? How long will this take? I honestly thought I was getting better but the past couple of nights seem like such a step backwards. I’m confused, I’m scared, and I could really use some advice :( thanks in advance

So I've got a bunch of u100 vials and u200 pens of humalog I no longer need (switched to lyumjev) and was hoping someone here could use it. All you need to do is come pick it up (central MA) or pay shipping.

Hi y’all idk what to do and I was wondering if anyone had advice. I do see a therapist about my anxiety but she knows very little about diabetes so it isn’t much help around that area but I’ve always had a fear of taking insulin.

When I was first diagnosed 3 years ago it was fine, but since then I’ve had a couple bad lows from taking too much fast acting so I’ve mainly been sticking to a lower carb diet (I’m still in my honeymoon phase).

I’ve always been ok with my long acting but a few weeks ago I hit a vein and went LOW while on a walk with my dog and have been having mini anxiety attacks about taking it since.

It wasn’t the first time I hit a vein but it’s been sending me spiraling since then and I don’t have anyone in my life that understands what I’m going through so I wondering if anyone else could relate.

I do that my fast acting if my bg goes high enough, but it had a track record of my taking less than what I need and plummeting down so fast.

I use an insulin pen and dose per meal - making my own call each time. I was never really into carb counting. Too much work, not that accurate anyway - and there are so many other things that play in. Exercise. Stress. Sick days. What you eat alongside the carbs. I just started trusting my experience instead, and taking more or less the same doses. Sometimes that was fine. Sometimes it wasn't.

I tried keeping notes on paper for a while. Never really stuck - and even when it did, finding a similar day later was too much work.

Then smartphones came along. I started keeping a log on my phone, and eventually built a simple little app just for my own use. Nothing fancy. It worked surprisingly well - better than counting carbs, and much faster. I have been using it for years. Last week we had homemade lasagne. I can tell you exactly how I dosed each of the last ten times we had it, and what my glucose did in the hours after. Same with different kinds of exercise. That is what years of logging actually gives you - not charts for your doctor, but your own experience, right there when you need it.

I have searched the App Store plenty of times over the years. Never found anything I liked better than my own thing. Most apps are either built around carb counting, or they produce nice statistics for your doctor. Nothing built for the person who just wants to manage their own day - fast, and without the math.

So I finally took the time to rebuild it properly as an app I can share. It is not on the App Store yet - but I could really use help from people like me who manage by feel and want to try this approach.

If you are T1D, use an insulin pen, and make your own dosing decisions per meal - I could really use your help. iPhone only for now. Comment below and I will send you the details.

Hi I’m currently on Omnipod 5 and I’m just not satisfied with the algorithm. It’s not strong enough to bring my sugars down or keep them from falling too low, resulting in me having to be more hands on with my diabetes. O5 runs hybrid so it won’t bring my sugars down when it’s rising or high on its own is why I’m interested in the loop systems, my question is which one? Feeling very type A i want my numbers to be between 70-100. I do love the no tube though which is why I’m hesitant about tidepool having to switch to twist. But overall I’m focused on algorithms. Looking for insight on any information that will help me choose thanks :)

Hi everyone, I'm still kinda new to all this, since I was diagnosed not even one year and a half ago.

It was my understanding that when we get night lows, our body automatically wakes us up. But reading here, it seems that it's not the case.

I tend to not go to bed before at least one hour and a half has passed since the last fast acting shot. I never had a night low, but since it is such an unpredictable condition, I figure it's better to be prepared.

so I’ve been having an incredibly difficult time lately. I was kicked out of my childhood home in August and my ex dumped me on the same day, lost my health insurance for a couple of months, my job is losing funding and I just can’t catch a break.
Because I was kicked out I had to move into my grandparents house, with my grandfather who is also insulin dependent. He has issues with his memory and had began falling due to lack of diabetes care. And now it’s mostly been dumped onto me to handle it. We’re having a family meeting to get me more support managing it (I live with my uncles, gma, gpa) but even then it’s so overwhelming and I haven’t even been able to take care of my own glucose levels. I’ve done days without even checking anything because im just so burnt out.

Realistically it’s not a lot to help my grandpa. It’s just a couple injections a day, pills, and changing out sensors. But I seem to be the only one in the household who understands how serious this is. And it’s just not fair that im having to manage not only my own diabetes but my grandfathers too. I keep telling my family that we really need to get some sort of professional help, that it’s too much for any one person to handle, and they say they understand but we can’t afford it. And that they’re also making sacrifices. (some of them genuinely have but we really could be getting more support. I’m the only one of the grandkids who even know about any of this going on) My glucose levels have been consistently 300+ and I can’t even take care of it because I need to take care of my grandpa first. I have adhd in the first place so it’s already so difficult to remember my own medications and keep track of my own things. And now they want me to keep track of his medications and let people know when his sensors, pen needles, insulin, pills, etc are all running out. I don’t understand why it’s been mostly on me. Supposedly this family meeting is going to make it less on me but with how my home is (im the only girl here) I really doubt it’s going to help much. But I don’t know. I’ve been trying to drill it into them that it’s just too much for me but they just pretty much say “im sorry but that’s how it is” and it’s just not fair and I really just need to get it out there. I’m debating moving out just so I can focus on myself but I don’t have a good paying job and I really just don’t know what to do at this point. I feel helpless. I’m already so burnt out from my own medications and doctors appointments. I don’t know what to do. I can’t just not help my grandpa. He’ll get worse again. And they keep telling me that it’s just for the time being but that’s not true. It’s going to be like this, even get worse, until my grandpa dies. Which hopefully won’t be for a while. And I don’t want to be in charge of all this indefinitely. I don’t know what to do. I feel like im yelling into a void and just idk. It’s not fair. I don’t know how I can get them to understand that all of these things we’ve been doing for my grandpa, I also have to do for myself, and it’s a lot. I don’t know what the mental block is. I really want to move out, and then I get this guilty feeling that I’ll be letting my grandpa get sick, or leaving them behind or I don’t know. I don’t think they’ll even take care of him properly if I did leave. I went on vacation and when I came back it was a mess. Anyways thank you all for reading this. I’m just so incredibly burnt out.

I’ve never been able to gain weight as a type one and I’ve recently been super self conscious about how little I am (5’11 132lbs) I’ve recently started taking my blood sugars way more seriously and have gotten my average down to around 140 mg/dl.

My biggest concern is I am absolutely stressing about what diet to eat regarding gaining weight as to keep my bg in this range. I’ve been eating quite a low carb diet around 40 carbs a day and I genuinely don’t know how I’m going to achieve a calorie surplus of about 2,200 calories a day, while also staying relatively low carb. I’m also not even sure if low carb is sustainable for type 1 diabetics as I’ve seen conflicting results online.

My question is, can anyone that’s also bulking give me any advice on a diet or meal plan? I’m not opposed to eating the same foods daily I would really just like to gain weight and keep my bg in a good range.

Hello my Beetus friends! I use a Tandem T-Slim now, and have been for several years. My warranty is now up, which means I can change pumps. I had the OmniPod before, and loved the freedom it brought, but had sooo many occlusions and made my A1C jump up. So I moved over to tubed pumping which did make a difference with my A1C and I have really good control over it. But. Maybe things have improved over the past 6 years or so?

What are your thoughts on pumps? Anything you’d recommend for me to check out? I also use a G7. TIA!