r/Type1Diabetes

My OB said I’m doing “..ehh alright..”

17 weeks pregnant.
5.7 a1c

But hey I’m doing “..eh alright..”

u/mickc0137 — 1 day ago

As a T1D in the US, I am beyond pissed….

going to try to keep this story short but i realized i lost my insurance coverage when I had to get a new debit card and when i went to go update payment info i saw that i had lost my coverage. not sure how. i was set up on auto pay and had coverage for 3 months then lost it. in the process of getting new insurance, my endo mov d to a different city so i have to find a new one. with the insurance i have i need a referral so i schedule my appointment. i go to said appointment and ask for prescriptions because i know i wont make it to an endo appointment and im already running low. they tell me they will send them to the pharmacy and i confirmed 3 times before i left the office. that was this last thursday and still no prescriptions and no update as to when they will be sent over. i asked what i would have to do in the unfortunate event i run out and there answer was urgent care. as if i could afford that. like can we be so ffr?? i really don’t know what to do. in all my years being t1d i have never had to deal with this and i am truly stumped! the health care system in America is a fucking joke.

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u/and_ree_uhhh — 2 days ago

After 3 months of being on the Tandem Mobi Pump, took my A1C from 8.3, down to 6.9. 🙏🏽

u/type1ish — 1 day ago

It’s Always the Bloody ones that work best

Had this pump on for 3 days and had no issues with blood sugar spikes or leaks. It didn’t even hurt, and I gotta say that if I didn’t see the blood I wouldn’t have even thought there was an issue. Any of yall experience the same? Didn’t even really smell like insulin, just iron lol

u/Rude-Abrocoma-4031 — 1 day ago

My A1C was 5.1 today!!

Almost cried at the endo but for a good reason instead of bad haha, im like in shock right now because it's NEVER been this low. When i was first diagnosed up until i was around 12 it was in good range, then i went through a lot of my teenage years avoiding caring for myself because i just didnt wanna deal with it anymore. A1c was regularly 12-14+ during those years. Last endo appt it was 7.2 and he just wanted me under 7, and my sugars have been pretty good, so it being 5.1 was a good surprise for both of us! Im really happy and proud of myself :')

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u/nibblerthebetta — 2 days ago

cruising as a diabetic

hello my fellow t1s, i am going on my first cruise next month and while i'm super excited, im a bit nervous as ive never really traveled anywhere except by car with diabetes. im obviously going to pack a ton of supplies and low snacks, but i was wondering if theres any expert travellers/cruisers in here that have any tips for cruising with diabetes! i just wanna make sure i take advantage of any perks/extras that i could ask for since im a diabetic and don't wanna forget anything!! thank u to anyone that offers tips :33 <3

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u/cowgloss — 2 days ago

Just a little bragging moment...

I remember when last April, my TIR was 20%.

Look at my last 90 days!

I eat almost anything I want, use around the same amount of insulin a working pancreas for someone without insulin resistance* uses each day.

If I can do it, so can you. It DOES get better.

Edit because I was unclear: The major reduction in insulin resistance is a huge win for me. I was using about 100 units a day a few months ago. I have lost 40lbs, gained a ton of muscle, and have lowered my use to about 35-40 units a day and doubled my carb to insulin ratio.

u/StarlitCydney — 2 days ago

School jitters

My nephew started back to school today. He's autistic. I made the decision to put him back in school after homeschooling him last year. For those who don't know I do have custody of him. While he did great with homeschooling academically, he really regressed socially. After I dropped him off at the bus stop this morning I bawled my eyes out. He has a bad history of being bullied relentlessly and I'm worried especially with the cell phone ban in my state that he's going to struggle. Bc he's a type 1 diabetic he does have a medical exemption from the phone ban as he needs it for his blood sugars and that's in his 504 but it's also never stopped some teachers before. I'm not so sure I made the right decision. So far I haven't gotten any calls from the school so I want to say thats a good sign? Im also trying to keep in mind that he does have a support system in place. He has a 1 on 1 aide that can walk with him to his classes and can walk with him to the nurse if he needs. I have spoken with his guidance counselor she says that he can always go to her if he he needs to. He's able to call me from her office if he's feeling uncomfortable or unsafe or having any issues with his teachers not letting him go to the nurse or taking his phone. My daughter is also in the same building he is. I made sure all of that was in place before he started.

Ik he needs to be around people his age and he deserves to go to school with his peers and feel safe. I'm just not sure if it's worth it. I'm hoping he will be okay. This is hard.

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▲ 32 r/Type1Diabetes+1 crossposts

I smoked weed now I’m freaking out

Dose anyone also get really nauseous and like cotton mouth while high and like after symptoms idk what to call I still might be high but like I’m not feeling good at all and I was just wondering maybe it’s something I ate because or my blood sugar because it’s 309 am and my blood sugar at 480 and idk if i should take insulin or not oh and also i feel indigestion but idk

Update!!

Thank you everyone for helping me calm down im no longer feeling sick and freaking out i have really bad health anxiety and i honestly think weed just isn’t my thing and i got scared because I heard that weed is bad for diabetics and I would get into a diabetic coma or something like that it was stupid now that I think of it but thanks again for all the advice!! Sorry for yapping

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u/Ill-Ad-6384 — 3 days ago

Anyone else with T1D struggle with really bad dental health?

I’ve had type 1 diabetes since I was 4, and I’m turning 29 soon. I’ve struggled with my blood sugar pretty much my entire life. It’s been extremely difficult to manage at times, and I’ve been hospitalized several times because of it.

One thing I’ve always wondered about is my dental health. My teeth have been horrible for as long as I can remember even tho no one else in my family seems to have the same issues. I’ve had alot of cavities and other dental problems and I can’t help but feel that years of extreme blood sugar swings and prolonged highs have played a role. At one point I also developed severe insulin resistance while my endocrinologist kept pushing to increase my insulin doses and overall my diabetes was just a roller coaster for years.

I haven’t been to a dentist in over 10 years. I know that sounds bad, but a huge reason is shame. Every time I’ve gone in the past, I’ve felt judged about the state of my teeth rather than like the dentist understood that living with poorly controlled T1D for so many years could potentially be contributing to what was happening.

Now my gums are looking really inflamed and I’m noticing some other issues, so I know I can’t avoid the dentist anymore. I’m going to have to make an appointment soon, but I’m honestly really nervous. I’m especially scared of being judged or made to feel ashamed after already feeling terrible about my teeth.

Has anyone else with T1D dealt with significant dental or gum problems, especially after years of difficult blood sugar control? Did you find a dentist who actually understood the connection between diabetes and oral health? I’m so embarrassed and I feel disgusting

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u/Alert-Shame-7280 — 2 days ago

Struggles as a new diabetic

Im not looking for advice at all, just ranting. was diagnosed with diabetes roughly 3 months ago, where I went to the hospital with diabetic ketoacidosis. Coming out of the hospital and starting insulin was the best feeling in my entire life. I was doing very good exercising every day handling the situation completely fine. Now things have completely changed. A couple weeks ago my legs started hurting badly out of nowhere and this has completely sent me back. It’s like a switch that went off over night. I am missing a significant amount of time at work going to doctors and getting different tests done to find out what the cause of the pain is. I have spent hundreds of dollars trying to find ointments medicines and remedies for the pain. I’ve been tested with an ultrasound and d dimer for blood clots, and artery disease and nothing came up. My doctor keeps telling me I’m too young to have neuropathy and keeps trying all types of different things. I’m just completely frustrated. This is ruining my life. The leg pain has made it to where I can barely sleep at night. I’m losing money every single day. It’s getting harder to pay the bills and keep up with managing my diabetes. I just don’t know what could have caused this pain.

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u/jackserosa — 2 days ago

What am I doing with All of these?

I've got an old Medtronic pump, 4 boxes of infusion sets, and 15 boxes of reservoirs that I do not need and have been sitting in storage.

Should I try to sell them? eBay?

Giveaway? Trade?

u/TrippingBaal — 2 days ago

I hate the Dexcom G7.

So I'm autistic, type one diabetic, and I overheat in my sleep and wake up sweaty every single time. I don't like change. I wear my G6 sensors on my abdomen. They're not making g6 anymore, and I'm out of them now after yet another sensor failure message on warmup. So, I've had to switch to one of my G7s and I'm already enraged by it. I can't have it on my abdomen. It has to go on the back of my arm. I am clumsy and walk into things constantly, and I am physically disabled with back issues, and can barely even reach where it wants me to put it. My girlfriend had to help me insert this stupid sensor. Oh, and don't get it wet or sweat for the first 12 hours of use? Guess I just don't get to sleep at all today.

In conclusion, I can't wear the sensor where it has always been safest anymore, and I am also now less independent as a diabetic than I was before, all because the powers that be seem to hate me, personally. I hate the G7 as it currently exists. Dexcom doesn't seem to take our actual lived experience into account when they design these things. I'm so tired and so angry. I want to go back to G6 so badly but I can't because they just do not exist anymore. Why do we type ones get shafted at every turn? Why do type twos get to take a stupid pill and get better? Why does type one even still exist anymore when I know for a fact it could be cured in a snap if anyone actually cared to cure it? I'm finally understanding why type one diabetics are eligible for the MAID program. I'm so tired of this disease. I've had it for 20 years, since I was 9, and it's only gotten harder for me to handle over time. I'm burnt out, and now they're taking away the thing that I was comfortable using.

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u/MercyMeowX — 2 days ago
▲ 237 r/Type1Diabetes+1 crossposts

Tell me your “I didn’t know this had carbs” food

Doing the weekly shop, my bf (T1D for 3 years) had his world view shattered when he learned that cow milk has carbs.
Mine was tomato. I got diagnosed 20y ago and was told I could have as much tomato and cucumber as I wanted, as they didn’t have any carbs. But somehow, in the past 20 years tomatoes have been one quite sugary.

u/DoEsNtReAlLyMaTtErD — 3 days ago

I hate when type 2s think that we are the same.

I was unfortunately on Facebook when I came across a post where someone asked whats the highest blood sugar someone had was. Someone said idk, it just read hi on the meter. A type 2 comes along and says "you need to go to the emergency room immediately" mind you, this was in the past and obviously the person didn't die.

So I commented, as a type 1 I wouldn't go to the ER if I wasn't feeling nauseous/vomiting. It would be a waste of time to go to the ER if I could fix it myself.

This man commented how his doctor says otherwise and he was almost 400 as a type 2 and peed himself (? Not sure why he told me this ngl), then he went to the ER that his A1C was 14 and that I should never tell another diabetic like him not to go to the ER. And basically said good luck when I die from this.

Like dude, that's not what I said and we are not on the same level at all. Type 1 and type 2 are not the same and I hate when they act like we are.

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u/Nothingsomething7 — 3 days ago

How do you manage insulin when you’re extremely insulin-sensitive but still spike over 200 once a day!?

What should I do if just 1 unit of rapid-acting insulin after a day of more exercise can send me toward hypoglycemia while I’m sleeping? I currently only take 6 units of basal once every night.

If I eat a carb-heavy meal without rapid insulin, my blood sugar will usually spike to around 180–250 mg/dL, but it’s typically short-lived. Within 1–2 hours, I’m often back around 115-125 without taking any rapid insulin especially on days I’m active. If I take even 1 unit of rapid insulin I’ll prevent that spike but I’ll undoubtedly plummet to hypo within an hour! It’s like I have to pick my poison.

The frustrating part is that my rapid insulin seems to take 45–60 minutes before I really notice it working, which makes preventing those post-meal spikes difficult. But I’m extremely afraid of going low because I seem to be so sensitive to insulin and have nightmare experiences recently. I also don’t feel comfortable pre-bolusing that far ahead because I occasionally seem to have episodes of delayed gastric emptying/gastroparesis, where the carbs don’t hit my bloodstream when I expect them to. On those days, the insulin could potentially start working before the food does.

I’m also still in the honeymoon phase, so I assume my own insulin production is contributing to these unpredictable responses.

Despite all of this, I’m 92% in range, so my overall numbers are actually pretty good. I just feel like managing the timing and dosing is incredibly complicated, and honestly, I’m exhausted from constantly trying to figure out the right balance.

For anyone who has experienced extreme insulin sensitivity during the honeymoon phase, how did you handle meals, exercise, and insulin timing without constantly risking lows and spiking over 200 once a day?

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u/Zuesssssssssss — 2 days ago

Zero Sugar Drinks

I’ve been a T1 diabetic for 20+ years and have always been on the hunt for new Zero Sugar / Diet drinks to try.

Do any of you have any recommendations as to where I can find an assortment of flavors ? Either website or In person

I am local to Texas , United States.

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u/IHaveGreencard — 3 days ago