u/wittwlweggz

Just got home from my parent’s place to make myself a meal that won’t make my blood sugars crazy. There was an expectation that we would BBQ, but somehow we never did…? There were snacks out all day and somehow I was making a scene that I wanted to start eating at 6-7p, but nobody else was hungry because they had snacked all day and I had no interest in the snacks (cookies, crackers, pie, etc). So I just kinda left to go home and make sure I got some good nutrients and food in so my blood sugars will be good overnight.

I was diagnosed at 13 and am 31 now. I take really good care of myself and it’s all good.

But I have this inner-child screaming though when my parents go well out of their way to get dairy and gluten free options for my sister (who does not have celiac or allergies) and alternative foods and treats for my adult brother who cannot stand eating fruit. I find it weird that I actually have this terminal illness, but my parents ignore it, but show up when it’s easy for my other siblings. They tell me “oh you manage it so well,” but I think that was how they copped out from learning what I deal with.

Since I was diagnosed, NOBODY but myself has given me injections. Nobody helped me carb count. They’d send me to church camps without medical supervision. I’m just so confused how I’m alive. I’m just sad and kinda looking for connection here. I know a lot of you have experienced similar things.

Edit: also, if anyone has tips how I can forgive my parents, not be so jealous of my siblings, etc, please throw a comment in… I don’t want to feel this way. But I’m angry I’m still alone. I talk about T1D all the time, but I know now they’ll never see it differently.

Hi!

I have used the Tandem T:slim for 4 years. The warranty is up tomorrow and I meet with my endo in a month.

I currently have infusion set problems like never before. I use the Autosoft XC 6mm and rotate best I can, but it seems like every site in every location I have ends up occluded or red, puffy, and just not absorbing.

I’ve never tried the Omnipod. I hear the algorithm is worse and I’ll “regret” downgrading from Control IQ, but I like that it has an angled infusion set, I can put it anywhere by myself, and the tubeless benefit is interesting because I’ve been on a tubed pump for 16 years. I also have better pharmacy benefits than hard medical equipment insurance at the moment.

I’m tempted to just try a pump break for a bit too.

The mobi is… small and screenless. But I’d be using the same infusion sets. I just am not excited by that nor excited to wait for the upcoming Steadiset or tubeless option.

I’m extremely active, body builder, inflammatory at times (not diagnosed with any inflammation disorder tho), and calculated as hell. So maybe I wouldn’t mind something more manual because I feel I’m intervening constantly with control iq and my Dexcom g7 anyway.

What are your thoughts? What are your experiences? Am I missing something to consider?