r/diabetes_t1

Heya! Jin here, looking for some advice to start exercising / working out. Not sure if I should tag it exercise or seeking support / advice as its a bit of both.

Tl;dr: need help planning exercise, and tips to avoid frequent hypos without needing massive carb loading as it makes losing the weight challenging.

Main goals im looking to accomplish is to become more toned (i think that's the right term?).

Im not sure what kind of routine I should start with or any ramping schedule. My sugars tend to tank very quickly when I exercise, to the point I've almost passed out on the treadmill since the hypo came on so fast. Like I have to eat a slice of banana bread without taking any insulin (0 IOB) to kayak for an hour and a half to keep my sugars stable. Which they then spike after I stop moving again. Its a right nuisance.

Some generic details about me that may / may not help. 5'8", 175lbs. Used to do cross country, long distance biking. (Before I was t1d, only been 4-5 ish years).

Any help would be appreciated! Everyone is welcome to join the conversation. Ive been trying to do my research, but its frankly overwhelming and I have no clue where to start. Analysis paralysis is real.

Thanks!

Hi all! I am in desperate need of some advice. I will obviously consult my endo with these same questions, but I'm really hoping to hear from other Diabetics with a similar experience.

I am currently an Omnipod 5 and Dexcom G7 (10-day) user. I have been having consistent issues with Omnipod, including leakage, insulin buildup, and malfunctioning adhesive. I feel like I waste so much insulin thanks to the amount of leaking I experience, despite consistent site rotations and use of overpatches and/or tegaderm.

Next summer, I (from the US) am planning on visiting my boyfriend who lives in Germany. I will be spending a fair amount of time there (~1 month), so I am already beginning to think about how much medicine I should bring. The past two summers, travelling with Omnipod was pretty terrifying. Although the company is pretty great about sending replacement products, the rate of faulty products that I receive always makes me wary about the dependability of my supply. Additionally, being out of town outside of the USA makes it unlikely (to my knowledge) that I'd be able to easily obtain replacement products.

Currently, my idea is to switch to insulin pens while traveling next summer. It seems like a more dependable measure of my supply. It also seems like something that would be easier (and more affordable) to get ahold of in Germany if my Omnipods all fail me.

Do any of you guys switch to pens while traveling? Do you feel safe traveling with Omnipod? Alternatively, is there another pump that you feel safer traveling with?

Hello,
I’ll keep this nice and short.
I’m a diabetes specialist in a country where open-source AID is virtually unheard of in a professional setting (I.e., patients do it themselves and nobody’s trained to support them).

So, we learn the way our patients learn. The internet.

I want to provide meaningful care. If you have more established care in DIY AID, I’d love to hear your experience when it comes to:

1- Did you have to build the system yourself or did the practice invite you in?
2- How’s the overall support and troubleshooting? This is my main concern as a provider because I wouldn’t have any support.
3- What do you wish your doctor knew or was more experienced in?

Please feel free to give details in your experience. I’m trying to learn and see if this is something I can confidently take on given no official support or acknowledgment by any authority in my country.

Thank you!!

My girlfriend has diabetes and I monitor her Libre readings through LibreLinkUp.

Today I was at work when I got a warning that she was dropping fast. I messaged her something like "you're on the rollercoaster again?" and saw her go steep dive down to 2.9 mmol/L.

She didn't respond, so after a while I called her. She was very panicked because she had been cleaning and had accidentally broken some glasswork belonging to her son. She was extremely upset about that and didn't really seem able to process what I was saying about the low.

I tried explaining that I don't monitor her because I want to interfere with her privacy, but because I'm worried she could pass out if she doesn't notice the low. I also tried reassuring her that her son would care much more about her being okay than about the broken glass.

But it was obvious that logic wasn't really getting through while in panic mode. She was still at 2.9, although the arrow eventually became flat, and stayed so 45 minutes. (i'm actually typing this while she is that low)

What I'm struggling with is what happens afterwards. Even when the hypo/panic has passed, she can still seem somewhat angry with me, almost as if my calling her and monitoring her was a violation of her privacy. I understand that she doesn't necessarily want someone watching her glucose all the time, though we agreed upon this, but from my side it's difficult to just ignore an alarm when I see her at 2.9 and she's not responding she may pass out as well (so far that happened only once in our relation though, but still i worry such). If she didnt pick up the phone i would have left office work (not my prio then) and driven 20 min home to her.

For people who have a partner, family member, or friend who remotely monitors their glucose:

How do you handle these situations?

Do you have an agreed procedure for when the alarm goes off? Do you only contact them if they're below a certain level or don't respond? And how do you deal with the emotional aftermath when the person is angry or feels watched, even though you were trying to keep them safe?

I'm not looking to control her glucose or tell her what to do. I'm mostly trying to figure out how other people balance: privacy/autonomy with the fear that something could actually happen.

Thinking of moving to Australia and will be eligible for Medicare if so.

I have been doing a lot of research into the healthcare system (..and concluded I might be best going back on pens :( omnipods are expensive!), one query I have is the following:

Why does NDSS recommend only ordering a month’s worth of CGMs at a time due to the ‘short shelf life’?

It seems to be the opposite of what happens in the UK. I get three months worth of sensors delivered at a time, but can only get one month worth of insulin at a time. Whereas in Australia it’s 5 lots of 5 pens at a time.

Do they store the sensors somewhere for a while? Do you frequently have short expiry dates on the CGMs when you receive them? Or is this just a precaution from the NDSS?

TLDR: do you actually only order a month’s worth of CGMs at a time? Is this guidance just that, guidance?

I'm about to start insulin pump therapy (minimed 780g), so I've been wondering what the general consensus is on the preferred way of wearing one to get about your day - keeping it in your pocket? Belt clip? Any others? Ideally I'd like to have both pockets free... that being said, having 1 pocket permanently "in use" is a small price to pay for the privilege of having a pump.

Any advice from long-term pump users would be a huge help 🙂 Thank you!

No more diabetes… in my eyes! After 4 hears of Avastin injections, my scans show no signs of diabetes. I’ve gotten them every 10 weeks and now pushing out to 12. Now if only the 25 years of insulin injections worked the same

Hello everyone, i'm 26F T1D for almost 16 years.

Since diagnosis i got a very good glyceamic control. (I'm portuguese, sorry for the bad english).

First ten years with insulin pens and now with 780G pump.

I had a coma and GTS seizure with 23 years, with a so low hypo that the meter dont even read the BG. Driven to hospital with an ambulance and the paramedic gave me the horrible glucagon and glucose, and recovered.

Then 1 year later i started having seizures with not so low blood sugar (~50 mgdl) very recurrent. Sometimes i seize even with normal BG. One day i was with 50 mg/dl and had a seizure, got treated with iv glucose and seizures meds (diazepam and levetiracetam) and still seizing even with glucose raising to 240! Had 3 or 4 seizures without recovery so they gave me more diazepam, general anasthesic (propofol), and another seizure med (lacosamide).

They sent me to neurology apointment and multiple tests, like normal eeg and videoeeg for 4 days, all normal but i never got a episode while doing the exams. The neurologist just discharged me with no ansewrs, some of them said that i faked or its psychological, the mine one said it's from poor diabetic control and just "symptomatic" seizures, not epileptic.

I am concern because it happens a lot now, with hypos that are not so hypo if i made me understand. I dont fell safe driving or working (im a nurse working in med surg with some critical patients). I really try avoid hypos but it's hard with my job.

Also got appointment with psychiatry and psycology and he says that im good, there's no reason for "psychological seizures".

Anyone with the same issue? Should I search for another neurologist?

Also my endo says it's pretty rare someone have seizures with low blood sugar without epilepsy.

I got several problems at work because of this shit. My boss its a bitch. I love what i do and dont want to change.

I 'm not taking any seizures meds on a daily routine.

Just got a Eversense CGM and thinking I'm going to love it. This is my first cgm and not sure if smoking weed or taking an edible will screw with the sensor or give inaccurate readout? I was told not to smoke/vape for 7-10 days for the incision to heal, but wouldn't elaborate any further.

Dummest thing you’ve been told by someone when you said you are a T1D?
My son is T1D I was in a dinner and the mom next to me asked me why do I weight the rice that my son is eating so I explain her that my son is T1D blah blah blah and her respond was?! “Did you get a second opinion “?
I honestly couldn’t even respond
I have to admit when my son was diagnosed two years ago the first thing I said but he doesn’t even like sweet I really didn’t know what is T1D but still…

Just started on the Equil wireless insulin pump, how do you guys manage to avoid spikes right after taking a shower?

Cause since it's not waterproof I have to take it off for 8 to 15 minutes (doc said it would be alright but ehhhh) and every time I go high even if I start at somewhat steady 110, I end up going 160 and arrow up minutes after.

I need help/some advice cause it's just pissing me off to see a simple shower ruin my blood sugar. Is there a trick? For reference, I've been on MDI for the last 10 years so I got close to none experience with this pump-attached-to-your-body stuff 😅

Hey, all,

Posted here not long ago. TLDR previous post - 16 month old was recently diagnosed with T1D.

He's currently on Lantus for Basal and diluted Humalog for his fast acting.

The doctor is pushing him to get on a pump ASAP, which would also allow us to get him off of diluted and on to regular Humalog. This is better from an insurance perspective for sure (currently paying $70/week after insurance).

The question I have, though - how would this realistically work with a pump? The doc says it can dose small enough he doesn't need diluted. But what about in the event the pump fails? We wouldn't be able to dose him with the regular Humalog. Do we need to keep a rotating stock of diluted in the fridge as well for emergencies?

Just curious what other people have done who have gone through similar things. Thanks!

I was diagnosed yesterday and I have been in and out of crying since then. For the last 6 months we were treating my high blood sugar as type 2 and I was eating better to get my A1C down and was like great its lower I'm working out I'll be back to normal in no time. After this visit, I realized that's not the case. I am going to live like this for the rest of my life and I was trying so hard not to get prescribed insulin because I have a huge fear of needles. I can't fathom injecting myself 4 times a day. I keep seeing theres a risk for other autoimmune illnesses too and I'm scared I have more and the rest of my body will fail soon. I'm so scared of everything I know a lot of people see it as nothing but I feel like my life is shortened and my quality of life will just deteriorate from here. I was already depressed before this and now I feel this has made me suicidal as I don't know if a life of pain and suffering is worth staying alive for. It's hard to keep composure at work, I feel like breaking down everytime I think about it.

Update: Writing this at night same day. Reading everyones comments have made me feel so much better about having type 1 and reassured. Thank you everyone for sharing your words of wisdom and comfort it really came at a time where I needed it. I will come back to reread everyones messages whenever I am feeling down again.

Dose anyone also get really nauseous and like cotton mouth while high and like after symptoms idk what to call I still might be high but like I’m not feeling good at all and I was just wondering maybe it’s something I ate because or my blood sugar because it’s 309 am and my blood sugar at 480 and idk if i should take insulin or not oh and also i feel indigestion but idk

Update!!

Thank you everyone for helping me calm down im no longer feeling sick and freaking out i have really bad health anxiety and i honestly think weed just isn’t my thing and i got scared because I heard that weed is bad for diabetics and I would get into a diabetic coma or something like that it was stupid now that I think of it but thanks again for all the advice!! Sorry for yapping

My daughter was diagnosed at age 7 and she's now 10. We still use pens because I've been so nervous to switch to a pump. I hear different things about them. Is it a really big adjustment? Or pretty easy to learn? She has decent control with MDI, but the shots and everything is a lot of work.