r/diabetes_t1

Hi Everyone! I wanted to ask here because I just want more info. My bf (45M) is T1D and was diagnosed at 13. He is very guarded about the fact he has diabetes. He rarely says anything to others who aren't close friends or family because, as he says, he doesn't want to be pitied. I don't expect him to wear a shirt and announce it daily (even though he does have a Walter Brimley shirt that he wears) but it is challenging at times when he wants to know the carb count while traveling but refuses to ask or is struggling with a low/high day and doesn't want to say what's going on. I let him lead in regard to how he handles things because it's his body and he's been doing it for more than half is life.

Is he just stubborn or is this a common feeling?

Edit 1: I want to clarify that I don't care either way. I do agree it's his personal life and he doesn't have to share but I just was curious if it's a common feeling. He lives with it every day and I don't. All I can do is help when he asks and carry low snacks for when we need them.

Edit 2: Thanks for all the feedback and insight. To put a cap on this I don't care if he does or doesn't tell people, I was curious. And to some messages and comments...no I am not trying to save him or manage it for him. The things I do to help have been things he's either asked or I noticed he appreciated when I did them. Again thanks for the insight.

I know I sure do.
Numbers are high despite my correction, “I hate my life”
Numbers are low despite me being full, “I hate my life”
The night time sleep is screwed because the numbers don’t cooperate, “I hate my life”
Know it all gives me some fortune cookie nonsense about handling a disease I am burdened with that said know it all has no idea of what it’s like to live (that’s my father by the way), “Fook off you pompous ol windbag…”

Of course I don’t truly mean this sentiment (except the last one)…
I like to think of it as a bit of downer humor.
It’s a cope.

Are we all in the agreement that if some shit pops off we’re kinda screwed harder than most? Like we’re all raiding the pharmacies and then what. We all get a few months? The people who didn’t make it to the pharmacy get a week at most? Then no one gets in the labs to make more insulin for a decade? If ever? Sucks everyone else gets to play “what if” talking about end times/survival/walking dead situations. But we’re like yeah that’ll be a rough 2 weeks for me.

In all seriousness, anyone with T1D deal with an uncomfortable amount of itchiness in the butt area!? I went to demonologist about a year ago and they did a biopsy; found nothing. Googled it and saw this… fml

I’ve been a type 1 for a couple years now and since getting diagnosed I try to avoid carbs as much as possible, I eat them when I’m getting low and what not but most of the time I’m eating chicken and vegetables to try and steer clear of spikes. I just started using the Omnipod 5 and my diabetes educator is on me about my carb intake saying I need to eat more because in my app I haven’t been having to bolus really as I see myself low more times than high. Do I have a closed minded approach to carbs? Are others this way? Don’t get me wrong I like to eat pizza every once in a while but then I’m fighting to get back in range. I was on pens for most of my diabetic life and with my insurance the Omnipod didn’t cost much so I started it 2 weeks ago and I find myself wasting more insulin with that.

I've been limiting my hiking trips to less than 2 weeks at a time because after the first few days my liver is releasing glucose and making it impossible to eat and not run sky high. After a while I get tired of eating nothing but tuna packets and so I go home, gain some weight, and eventually return to the trail.

Limiting my time on trail is taking too long to complete the long trails on my bucket list. I'm now faced with a situation where I'm running out of healthy time where I will be able to continue my endeavors, so I need to be able to stay on trail for months at a time if I am to finish the bucket list trails.

Any thru-hiker T1s or other ultra athletes out there who have successfully dealt with this? Any advice would be greatly appreciated, as I've been dealing with this for years and need to step up my mileage ASAP without starving to death in the process. Thanks!

Not a cure. sorry guys.

For me being able to just carb count… nothing else. a dream. just input my carbs and site change and then just not care.

or even a system that accurately corrects like 15g carbs so you don’t have to bolus for snacks. ugh

Pretty sure I broke my big toe today. I’ve got it wrapped and stabilized and am icing it, and as far I know that’s all you can really do for a broken toe so wasn’t really planning to go to the doctor.

Never broken a bone before though. Anything diabetes-specific I should be concerned about? My blood sugar is “well-controlled” (a1c under 6) if that makes a difference.

EDIT: thank you all for the advice! i made a doctors appointment for tomorrow morning :)

So I'm traveling for an extended period of time and have 6 vials of admelog that were being stored in a frio bag. They were placed in a hotel fridge and the frio bag itself is frozen but the insulin is still liquid. It looks normal. I'm on an Omnipod pump and it's change day. Is this insulin safe to use or do I need to do a runner to an ER? Please help me figure out what to do.

I just discovered that I don’t have one more transmitter left but I still have 6 sensors left before I’m forced to swap to G7 (I’ve tried it before, I hated it, sorry I don’t wanna hear it). Are there any legit websites or suppliers left that have any leftover stock that anyone knows of? or any resources?? I’m distraught 😭

Quick heads up for anyone on Android having the same problem. I’ve only been back on 192 for about an hour so I can’t promise it’s fixed for good yet, haven’t had a full night on it, but it’s looking good so far and I wanted to share in case it helps someone else tonight.

My setup is a YpsoPump and Dexcom G7 on a Samsung S23 Ultra, Android 16. I only started this week. On the recent builds, 1.4(193) and (194), Auto mode stopped twice overnight for 5 to 6 hours while I was asleep, with no alert from the app or the pump. It just quietly dropped back to my programmed basal and my sugar climbed. The weird part is CamAPS’s own Statistics screen showed the sensor and pump connected the whole time, and only logged the interruption as reason “Other”. mylife have it with their software team but no fix yet. Going back to 1.4(192) has it running normally for me so far.

Before you start, read this bit:

• Copy your Dexcom G7 pairing code from the CamAPS sidebar BEFORE you uninstall. You need it to reconnect the sensor afterwards.
• Have your pump serial number and the pump itself handy (you re-pair it), plus your CamAPS and Dexcom logins.
• Uninstalling wipes CamAPS’s data on the phone, but your profiles and the algorithm’s learning come back down when you log into your CamAPS account. I didn’t have to re-enter any settings.
• While you’re doing this the pump is only on programmed basal, so don’t do it at bedtime, and let your team know you’re on an older version.

The steps:

1. Install Aurora Store (open source Play Store client, auroraoss.com) and sign in. Anonymous mode is fine.
2. Uninstall CamAPS FX. You can’t put an older version over a newer one so it has to go.
3. In Aurora find CamAPS FX (mmol/L) or (mg/dL), hit the menu, pick Manual download, and enter version code 524. That’s 1.4(192) for the mmol build, which is the one I went back to. The mg/dL build should be the same code but double check the version it shows before you rely on it.
4. Let it install and allow Aurora to install apps when Android asks.
5. Open CamAPS, allow the battery optimisation thing, log in with your CamAPS account and let it sync your profiles back.
6. Pair the pump (put it in pairing mode, enter the serial), then pair the G7 (Dexcom login plus the code off the sidebar).
7. Reboot the phone for good measure (My auto mode wasn't kicking in initially, so I assume it was a bluetooth issue, or perhaps I didn't wait long enough)

Two gotchas that nearly made me give up:

Gotcha 1, the tamper warning. On the very first launch after sideloading I got a scary “possible tamper” warning, the screen stayed orange on Attempting and the pump link kept dropping. Just reboot the phone. After a restart it went green, Auto mode kicked in and it’s been solid since. Don’t panic at that first warning.

Gotcha 2, the follower/Companion sharing. You might get repeated “Unable to send data to Companion, encryption key not available, your phone may have been tampered with” popups. This does not seem to touch your pump or Auto mode, mine kept running the whole time, it’s only the data sharing side and the annoying popup. In my case I had two share targets set up, one companion that I thought was required for feeding xDrip and a separate Glooko. I unlinked the one the Companion one, and unlinked and readded my Glooko credentials for good measure, although I'm not sure if that was required. And the popup stopped while my xDrip feed carried on fine. So if you get it, trim your shares down to just the one you actually need. If you actually use the companion share feature, I'm unfortunately unsure how to solve that.

Last thing, turn OFF auto update for CamAPS in the Play Store (app page, menu, untick Enable auto update), otherwise it’ll quietly put 194 back on. An overnight update also stops the app at least on v194, which was behind one of my two dropouts overnight.

⚠️ Not medical advice, it’s an older build of the software so use your own judgement and keep your team in the loop.

⚠️ From what I can tell, Aurora Store is grabbing APKs directly from google play store, so they apparently eventually do drop off from there, but I've also not done a deep analysis on them, although a high level look they seem like a safe source.

🙏 And please report the 193/194 dropouts to mylife or CamDiab with your logs before you uninstall (Menu, Contact, Submit logs) so they actually fix this for v195!!.

---

Major credit for comments and posts from u/croemer and u/Cyndersan for helping gather information and reporting that sideloading works 🤲

I just have one thing to say and it’s a little bit of a long one, but pls let me know if i’m insensitive or if maybe you also can relate ! 😗

I genuinely hate hearing this. It’s something I heard when I was diagnosed, something doctors say, and something I constantly see in diabetes ads and on social media. And while technically, yes, I can eat whatever I want, I wish people would stop pretending it’s that simple. Because my life DID change. Before diabetes, I ate without thinking twice. I didn’t have to stare at a plate and calculate how many carbs were in it. I didn’t have to think about how much insulin I needed, when I should take it, whether I was going to spike two hours later, or whether that same insulin was going to send me crashing afterward.

Food was just food.

Now sometimes eating something I want means watching my blood sugar shoot up, giving a correction, watching it refuse to come down, giving more insulin, and then suddenly fighting a low because now there’s too much insulin in my body.

And somehow we reduce all of that to “just take insulin.”

My blood sugars were all over the place until I completely changed the way I ate. At this point, I eat probably 80% less than I used to. Less food. Less carbs. Less sugar. Less of basically everything that makes managing my blood sugar harder. Could I eat those things? Yes. Do I sometimes choose not to because I don’t want to spend the next several hours fighting my own blood sugar? Also yes.
And I think we should be allowed to say that without someone immediately responding, “But Type 1 diabetics can eat anything!”

I know we can.
That’s not the point.

The point is that being allowed to eat something and being able to eat it without consequences are two completely different things.
I understand why people say, “Your life doesn’t stop after diagnosis.” And no, my life didn’t stop. But it sure as hell changed.

I wish instead of trying so hard to convince newly diagnosed diabetics that everything can stay exactly the same, we were more honest about how much this disease can change your relationship with food, your body, exercise, sleep, going out, and even the most basic decisions you used to make without thinking.

I don’t want pity. I don’t want to be told what I can or can’t eat.
I just want people to stop sugarcoating how exhausting it can be to live with a disease that requires you to make decisions your pancreas was supposed to make for you.

My life didn’t stop because of Type 1 Diabetes. But pretending it didn’t change doesn’t make me feel empowered. It makes me feel like we’re not being honest about what living with this disease actually takes.

for context, i’m 31 weeks pregnant and have had type 1 diabetes for 25 years.
for those who aren’t familiar with type 1 diabetes in pregnancy, the glucose targets are INSANELY strict (to me at least), you’re expected to maintain blood sugars within a much tighter range, around 80–140 mg/dL, with some doctors recommending even tighter targets of 80–120. so suddenly, a reading above 140 is considered “high” which was completely foreign to me. but i did it, and throughout my pregnancy, i’ve had the tightest glucose control i’ve ever had in my life. before getting pregnant, i struggled with pretty severe diabetic burnout for about 2 to 3 years. i reached a point where i genuinely stopped caring about managing my diabetes, didnt check my bs, barely took insulin, honestly i dont know how i even survived but regardless pregnancy has helped me get back into the habit of taking care of myself, and for the first time in a long time, i felt motivated to manage my diabetes properly.
sadly lately i’ve started feeling myself slowly slipping back into those old feelings of burnout. i find myself reaching a point where i stop caring again but then i snap out of it because i feel this immense responsibility towards my baby.
i’m genuinely worried about what will happen once she’s born and i no longer have the same immediate motivation to maintain my sugars.
i still want to take care of myself, especially now. my daughter has given me another reason to prioritize my health. i want to be healthy, present, and around for her for as long as possible.
but i’m just so, so tired. 25 years of constantly thinking about blood sugars, insulin, food, and everything else, and especially after pregnancy with t1d and an impossible range to maintain, i feel beyond exhausted.
for those of you who have experienced diabetic burnout, how do you pull yourselves out of it? what has genuinely helped you regain your motivation and maintain it long term? please help me..

Talking with my mom today I learned about a friend of family. I was too you to remember meeting him. He was a friend of my grandfather.

Jack McCarthy, diagnosed at 3, in 1937, and lived to 74. A T1D for 71 years.

Odds at the time said he wouldn’t make it to 20 years of age. He beat those odds and raised a family, 10 grand kids and 3 great grandchildren.

A large portion of his life was before CGMs, pumps, mRNA insulin, and test strips.

This is Impressive and encouraging to hear about him and what could be done with the old treatment options.

Jack even did a few fundraisers, walking 850 miles for one.

https://manufacturingchemist.com/jack-walks-the-walk-31039

So I’m a 25F from the UK and I’ve been type 1 for 10 years now, I’ve been seeing my partner for 3 years and we don’t live together.

Basically whenever my partner comes over I tend to have a hypo after lunch or dinner, and yes this happens even when we aren’t intimate and are just rotting on the couch next to each other.

I’ve started reducing my boluses by around half on my pump and have stopped pre-bolusing for my meals when he comes over because I’m tired of having hypos so often.

Is there a reason for this or a fix for it? I’m at my wits end here