r/diabetes_t1

Can you taste your insulin after a significant dose?

Like the title, I didn't really notice this when I was on an insulin pump, but I switched to injections a few years back, and when I have a dosage of 15+ units (so often my long acting doses) I can taste it in my saliva

Anyone else?

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u/Hot_Accident_3817 — 14 hours ago

I hate the morning rise. What are things (not necessarily food related) that unexpectedly make your blood sugars rise/lower?

u/krummykim — 19 hours ago

What do you use to carry insulin

What do you use to carry around your insulin daily ?

I assume you don't need to carry around the long acting one, just the fast.

And if you carry one pen, do you need to bring a spare along too?

Thank you

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u/heggy123 — 18 hours ago

Failed pump sites have ruined my day already.

I’m so exhausted from my pump site failing last night. I woke up at 4am to a high that just read HIGH on my dexcom.
It was like 367 and just kept going up when checked with finger sticks. Didn’t throw up, but I still feel nauseous 4 hours later, even though I’m finally falling back into normal range.
I haven’t had a high like this in months, so I feel totally drained, and now I’m just waiting for the inevitable low from taking way too much insulin over the last four hours.
Now I get to work 8 hours. Yay! 😭🙄
My hour lunch break will be used to sleep, and my lunch that I brought will be used to treat my incoming low.
Ugh days like this make me hate this disease ten times more than I already do.

Update:// I ate a sandwich and took an hour nap during my lunch break and feel significantly better than I did this morning. So I’ve got that going for me now. lol thanks for the well wishes. 💚💚

u/julesb210 — 16 hours ago

I hate flying 🫠

Apparently flying makes me high af

The insulin i injected during and after the flight didnt do shit, needed a new pen to finally drop

Ketones at 0.5

Managed to get both down and mostly under control, but fuuck.

Caught me by surprise and was a little scary, I haven't been this high since my hospital release.

u/Earwigss — 21 hours ago

Pharmacy Issues

So I guess this is a bit of a rant but also looking for advice. We are new to the T1D community and my 6 year old was just diagnosed in February of this year. We currently fill out prescriptions through Publix but I feel like the way they have been operating is just not ok. There have been several instances where there were issues with a prescription and there is always ZERO communication. Example 1, I requested a refill of the pen needles for my child along with all of his other supplies that he needs. I get to the store to pick everything up and I list out everything that’s supposed to be in the bag and the woman at the counter is like yes everything is here. I grab the bag and walk off and go to give my kid some insulin because he was running a tad bit high. I look through the supplies and no needles. I go back to the counter and tell them the issue and they research it and tell me the insurance wouldn’t cover the again until the following month. Sooooooo…….where was the communication to let me know that? They just sent a T1D child away from a pharmacy with insulin and no way to administer said insulin. I feel like the proper thing to do would be to communicate that and give me the choice to pay out of pocket or not. Luckily we had more at home but I did end up telling the to just charge me cash price. So I ended up paying $76 for a box of needles (which is insane but that’s another conversation anyway). Today I had requested another refill of basal insulin and dexcoms. I called to check the status and she tells me the insurance doesn’t cover lantus so they faxed the doctor to ask them for a prescription for basaglar instead. 😒 Needless to say I let her have it because WTF. Not only is it NOT the same insulin but who are they to decide to switch someone’s prescription ? Again no communication whatsoever and she had the issue wrong anyway. It was a timing issue with insurance. Needless to say I’m livid. Long story short…..looking for better pharmacy recommendations. I hear mail order pharmacies are better but I’m afraid of having insulting mailed because sometimes the mail carriers drop the ball with packages too. Any recommendations?

Edit to add: the Lantus is definitely still covered. It was a timing issue and they just didn’t pay attention to what they were doing. Which makes this even more infuriating.

TLDR: Publix has dropped the ball one too many times. Looking for a new pharmacy.

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u/Kt32347 — 1 day ago

Have been wearing a pump for 10 hours, for the first time since 1993, and...

I LOVE IT.

49 YEARS INTO T1D, listening to house and chilling with my dog. All kinds of music genres and artists over here.

Love to you all. xx

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Does anybody have one of these bags?

It was my go to bag for years until my mom threw it away without asking! It had a cooler pocket on the lower back area, incredible bag. I’ve been on the lookout online and found someone a while back on Facebook that said we could have theirs for free! It was the newer version of the bag, no cooler pocket. Now the only evidence of this bag is two pics on Google images and that’s it.

best country to be a diabetic?

hi all!

i am a t1d living in america but in a relationship with someone who lives within the EU. i am currently preparing my graduate school applications and am seriously considering ways to leave the country. i know it may be ambitious, but i am really hoping that i can somehow turn my academic career into a life outside of the US.

are there other countries that are especially accommodating towards us? from my perspective, the US seems pretty easy to beat.

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u/dotdotdotidk — 1 day ago

Why do hospitals DO this?

Besides T1, i have asthma and we’re having the worst pollen season ever right now (freeze, then everything came roaring back and blooming all at the same time). Having problems, ran to urgent care on Sunday to get prednisone, doc said, ”Prednisone! You need oxygen and an ambulance,” and off they sent me.

At first it seemed like the hospital was going to be reasonable and let me manage my own diabetes, but then they made me disconnect my pump and put me back on lantus and novolin. The dosage would have been fine normally, but made no allowance for the huge amounts of steroids they were pouring into me. Normally my A1C is around 6.2 with about 97% TIR, but I immedi shot up into the 200s and stayed there or higher for the rest of time I was there.

They also put me on something called the Carb Balance diet, which meant that every time ordered meals i had a long argument with the staff over the fact that i wasn’t ordering enough (60g) carbs for each meal.

i pointed out to them that i even have a Prednisone profile for my pump, but no. As soon as i got home I got back down to 111, no problem

Why the hell can’t they accept that we can do this better for ourselves?

UPDATE Argh. Despite everything I said to them my chart notes all say I have Type 2!

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▲ 15 r/diabetes_t1+1 crossposts

Hot Weather Sucks

I hate this heat so much! The past two days I have been unable to get my blood sugar down and now I cannot get it up! I was 200 and gave myself 1.5 and now I can’t get it above 80, I am on my second 20oz regular soda in the past 2 hours. I fucking hate this shit!

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u/DuctTapeSloth — 1 day ago

CT Scans and devices

Hey everyone! I am an Omnipod and Dexcom G7 user. I will have to have a head CT scan in the next week or so- does anyone know if this will interfere with either Dexcom or Omnipod? I know they both have the generic warning about not wearing them during but does anyone have any experience keeping them on if the scan is just going to be from the shoulders up?

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u/liverdawg — 1 day ago

Reached a funny number today

what even makes it better is that it is my first hypo reading, kinda feel good and bad at the same time from it

u/AJ_Empire — 1 day ago

Skin Tags

Not to be too personal but I have a Skin Tag that I really want to get rid of but all the Skin Tag removers I have seen say not to use if you are diabetic. However, if I look online for a diabetic safe one they recommend the same removers (I.e. Compound W). Are these okay to use? If not what can I do that isn’t a dermatologist? Please and thank you.

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u/Almanackerd — 1 day ago

Libre 3+ FAIL AFTER FAIL??

hi everyone. i am beyond frustrated. this is my 4th libre 3+ in a row to fail within a few days and this one only lasted a few hours. the company will replace them but 4 in a row is so crazy. it costs me $120 every time for 2 of them, they shouldn’t keep failing like this. i trade off arms each time and move them around so as not to hit scar tissue and it just keeps happening. is it a bad batch or what? i’m literally in tears im so sick of this

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u/mpaige33 — 1 day ago

i wanna sleep...

i am so fed up with this, i cannot go to sleep even while my eyes are closing slowly while i am sitting here and typing this rant... i am going low - hypoglykemia and i already ate so much sugar i DONT WANNA EAT ANY FUCKING SUGAR I AM NOT HUNGY JESUS CHTIST, I WANNA SLEEP NOT TO BE EATING STUPID ASS SUGAR...

i wish this stupis ass illness just dissapear when i wake up next morning, and then i would be free from all these stupid shits....

bye, thats all, thanks for reading my rant

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