r/diabetes_t1

There is a senate bill that is capping the price of insulin!
▲ 136 r/diabetes_t1+2 crossposts

There is a senate bill that is capping the price of insulin!

Hey guys, I hope you have all had a chance to see the new senate bill thats in committee that is proposing a mandatory cap on insulin copay at 35$ a month. They tried this for medicare patients with great affect and are now trying to do it for everyone. PLEASE contact your senator and tell them to cosponsor the bill. I've been working for the last several weeks to rally diabetics and non diabetics alike. The bill already has 26 senators cosponsoring it I really think this could be the first of many great steps to make diabetes affordable. I made a YouTube video explaining it and backing it with research but I'm not sure if that counts as self promotion so I won't tag it. BUT PLEASE, contact your senator and tell them to co-sponsor the bill it's very easy and the bill is S.4189!!!!

edit: mods please dont ban me or delete im not trying to self promote but my video discusses the current caps that are available for insulin and why they arent sufficient. I swear im trying to do a good thing here! Everyone please watch and you will see just how bad the problem is https://youtu.be/HifNXl7HXDk

u/movingpandas — 6 hours ago

Pregaming mowing the lawn

Gotta hit that sugar before I start! 😂

u/jni8498 — 13 hours ago
▲ 49 r/diabetes_t1+1 crossposts

What should I do? I'm recently diagnosed with type 1 diabetes so I'm new here

Hey everyone, I'm recently diagnosed with type 1 diabetes and or it can be type 3C Because I had an operation of pancreatitis two years ago and a few months ago I was diagnosed with type 1 diabetes, and some doctors are calling it type 3C. I will tell you my full story later, but right now I want to know what should I do when my sugar level drops this low while I was sleeping, I have just eaten half a packet of biscuits but what else should I take like i don't have glucose rn that's why I ate biscuit so is it fine?

And I want to know so much about type 1 diabetes so please guys help me out with it.

u/ConsciousTie6173 — 15 hours ago
▲ 5 r/diabetes_t1+1 crossposts

Stuck over 200 resistance, only me?!

I seem MUCH more «responsive» to boluses when I’m UNDER 200 than when I’m over 200.

Tips?

I do everything i can to stay under 200 then as glucoses rises over 200, it’s almost a lost cause. …. Killing me, obviously literally. 😵‍💫

I use very little insulin generally. Recently just began bolusing 1-2u as I get up for no good reason but to avoid sliding over 200 accidentally, figuring I can grab something to eat if I start sinking.

Did that today, counted up 35 carbs and boluses around 4 units for that, all seemed fine. Then glucose starts rising, and I kept bolusing hoping it’d stop, like:
0.2
0.2
0.2
1.5
0.1
1.0
Then it tops 200 and I keep stacking hoping it’ll turn the top corner, but no… now 241.

Grrrrrrrr!

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u/INTPj — 13 hours ago

Any advice on how to decrease insulin resistance without switching insulin

So I was fairly high took 12 units at about 3am I was a 23mmol I run high often. ((I went in to hospital with a bsl of 44mmol and was some how alive)little bit of a back story) I took 12 units and am only down to 13 in about 3 hours Whitch is a big down but 12 units and not at a target range or close to is crazy. Yes I go to the gym often. But just any advice

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u/Key_Foot_46 — 14 hours ago

Not waking up to alarms

I am a very deep sleeper and my sugar will just drop low for a an hour straight in the middle of the night and ill sleep right through it, what do you guys do to solve this issue

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u/Choice_Farm7139 — 14 hours ago

Tracking every gram of food is wrecking me mentally

Hey everyone,

Just wanted to share my story and hear your thoughts/advice. Please don’t compare yourself to my situation or my blood sugar numbers, everyone’s dealing with different stuff in life.

I got diagnosed at the start of this year, at 22, and honestly I was in total shock that something like this could even happen to me.

These days I weigh and track literally every single meal so I know the exact carbs. I try to keep my meals at roughly a 2:1 ratio of carbs to fat to avoid spikes as much as possible. I can’t really enjoy food anymore without thinking about my blood sugar levels and checking them 50 times a day. It’s messing with me mentally more and more, and even with all that effort I put into this, the only reason my numbers look this good is because I’m still in the honeymoon phase.

Diabetes really sucks and I hate the thought of dealing with this for the rest of my life. What’s weighing on me right now is knowing things can pretty much only get harder once the honeymoon phase wears off, and I’m just trying to keep everything under control somehow.

Wishing everyone reading this all the best <3, and I’d love to hear your comments and advice for a newbie like me.

u/PrestigiousFennel342 — 18 hours ago

Power outage last night til now

I was told rhat nobody knows how long it could take to get power back on.

My backup pens are in the fridge and it still seems relatively cool In there and I’m purposely not opening it until I must.

Would you guys wait it out? If I drive the pens over to my moms house the extreme heat wave will probably effect the insulin on the 45 minute drive over.

I think I’m gonna wait it out a bit but if it doesn’t turn on soon I’ll ask around to see if any neighbors still have power and can store my Insulin

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u/Buddybuddhy — 19 hours ago

what are some cool/funny ways to put T1 in your social media bio

I could just go with the good old "proud T1D" or something classic or cliché but I want something fun, yk?

I really like "diabaddie" but any other ideas?

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u/RemarkableArrival240 — 19 hours ago

advice needed

Hi all, hope this is the right place to post this, im potentially going on a date with someone who has type 1 diabetes, is there anything i can/should do to make her feel comfortable, and anything i should avoid doing? thank you! keeping this intentionally vague but we're teens if that helps

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u/somethingunique4002 — 19 hours ago

No insulin for 12 hours, what's going on?

I am a type 1 diabetic, diagnosed about 20 years ago, I am 35 years old. I have an insulin pump with Novorapid, I don't take any long acting insulin.

Last night some time, at least 12 hours ago, I accidentally pulled the pump off while I was asleep. When I woke up I found the pump completely detached from me. I was meaning to refill the pump and reattach it this morning but I forgot and then went out for the day and only just got home. So it has been over 12 hours since I last had any insulin.

I had two pieces of toast with jam for breakfast and a big lunch of meat and salads, and potato, not a huge amount of carbs but definitely had some carbs.
My blood sugar all day (measured by a dexcom CGM) has never gone above 20, it has been sitting around 12-18 for most of the day. I checked my ketones just now and got a reading of 0.1. I also just did a manual blood glucose test strip reading, which was 11.2.

How is this happening and I am not even close to DKA? I thought being a type 1 diabetic I would be in serious trouble by now without insulin for that long?
How can I be a type 1 diabetic (confirmed presence of anit GAD antibodies on two different blood tests) and be so ok without insulin for this long?

Thanks in advance.

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u/Fancy_Canary_1826 — 24 hours ago

all i did was sleep..

what did i do to reach 270 last night you may ask? absolutely nothing but sleep. genuinely so confused LOL, but it’s a bit funny to think about how that just randomly happened (and no, i had no fats that i know of last night that would’ve delayed the spike).

one of many firsts i suppose!

u/supanovadawg — 19 hours ago

My method to preventing leaky/loose pumps

Hey all, thought I’d share a method I recently discovered to prevent leaky/loose Omnipods. I’ve been having a lot of issues as of late, I wear my pods on my thighs and after about 2 days they start to leak pretty bad. People on this thread suggested I put a Tegaderm patch on first, then put the pod on top to prevent leakage, and that has really helped, but I still would experience leaky pumps. I’ve started to cut my Tegaderm patches in half, and I put the first half on my leg and put my pump on. Once it’s on, I take the second half and lay it over the top of the pump adhesive where the cannula is. It may sound pretty simple but having a patch under the pump and over the adhesive has seemed to help A LOT. I haven’t experienced any leakages yet since I started doing this and I thought I’d share if anyone else is going thru something similar!

u/SufficientWill428 — 1 day ago

I’m hoping I’m not alone

Serious question… how many Type 1 diabetics here are also struggling with drug addiction? I honestly never see anyone talk about it, and it’s made me wonder if I’m really that alone. Alcohol has never really been my problem. I had my phase in my early twenties, but I hated feeling a hundred times more hungover than everyone else, and I made some terrible decisions, so these days I rarely drink. My struggle has always been drugs. I was diagnosed with Type 1 when I was 14, and somewhere along the way they became how I coped with all of this. Now I’m at the point where I’m terrified of the damage I’m doing to my body, but I’m just as terrified of trying to live without them because they’ve been my way of coping for so long. The hardest part is I have an incredible family that loves me, and it would absolutely destroy them if they knew this is how I’ve been surviving. I’m not looking for sympathy or a lecture. I just genuinely want to know if anyone else with Type 1 is fighting this battle too because some days it feels like I’m the only one. If this is your reality too, what’s your story?

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u/Ok-Object-4815 — 1 day ago

Do you get violent if your blood sugar is low?

So I have a question, it‘s not me that got Diabetes t1 but my ex boyfriend.

We had a Situation where he choked me while his sugar was low and I told him multiple times he should eat something, because he had‘nt eaten yet. (Mind you it was nearly 8pm)

So yea he pressed me against the door and I panicked and screamed at him to let go of me and only did he let go when I nearly started crying.

We talked afterwards and he is fully aware that he did it. I saw someone online that said you don’t remember if something like that happens.

I am just so confused and I wanted to just have maybe a bit of closure(?)

Sorry if it doesnt make sense my first language isnt english

Thanks

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u/elsaflora — 1 day ago

Suggest a new pump for me

The omnipod sucks, im so tired of it not combating highs and sending me skyrocketing after every meal. Ive only been on it since february and it has sent me skyrocketing like this after just about every meal. I havent been almost 400 in almost 4 years and this just makes me so disappointed and mad at myself even though i know i put in everything correctly. I feel like shit almost daily because of these highs and i dont want to feel like this anymore. Ive adjusted the omnipod settings several times since getting it to be more aggressive and i feel like it doesnt do anything unless i take like 8 units through a pen or if i dont eat anything. Hated medtronic pumps bc 3 failed on me and put me in the hospital so please dont suggest those. I dont know what else to do but im probably gonna end up in the hospital tn bc of the pod :(

u/nibblerthebetta — 1 day ago