Diabetic seizures
Hello everyone, i'm 26F T1D for almost 16 years.
Since diagnosis i got a very good glyceamic control. (I'm portuguese, sorry for the bad english).
First ten years with insulin pens and now with 780G pump.
I had a coma and GTS seizure with 23 years, with a so low hypo that the meter dont even read the BG. Driven to hospital with an ambulance and the paramedic gave me the horrible glucagon and glucose, and recovered.
Then 1 year later i started having seizures with not so low blood sugar (~50 mgdl) very recurrent. Sometimes i seize even with normal BG. One day i was with 50 mg/dl and had a seizure, got treated with iv glucose and seizures meds (diazepam and levetiracetam) and still seizing even with glucose raising to 240! Had 3 or 4 seizures without recovery so they gave me more diazepam, general anasthesic (propofol), and another seizure med (lacosamide).
They sent me to neurology apointment and multiple tests, like normal eeg and videoeeg for 4 days, all normal but i never got a episode while doing the exams. The neurologist just discharged me with no ansewrs, some of them said that i faked or its psychological, the mine one said it's from poor diabetic control and just "symptomatic" seizures, not epileptic.
I am concern because it happens a lot now, with hypos that are not so hypo if i made me understand. I dont fell safe driving or working (im a nurse working in med surg with some critical patients). I really try avoid hypos but it's hard with my job.
Also got appointment with psychiatry and psycology and he says that im good, there's no reason for "psychological seizures".
Anyone with the same issue? Should I search for another neurologist?
Also my endo says it's pretty rare someone have seizures with low blood sugar without epilepsy.
I got several problems at work because of this shit. My boss its a bitch. I love what i do and dont want to change.
I 'm not taking any seizures meds on a daily routine.