r/FinasterideSyndrome

Hi guys, just wanted to put this out there in case it helps someone.

This is what works for me, but tread with CAUTION and potentially start on a lower dose (3mg). I have no idea about the crash risk of said subtances, but ive been using it for a long time and they seem relatively harmless. Citrulline is like a very mild version of cialis.

I started taking l citrulline and beetroot powder together (9 gr l citrulline, 2 spoonfuls of beetroot), and notice slightly better flaccid hang (i have flaccid shrinkage) and getting erections is a little easier. Hope it helps somebody, be aware though I heard citrulline could maybe give tinnitus (not sure though, i used it on and off for months and didnt do anything bad to me).

I regularly have pain in my perineum. I can’t really tell whether it’s in the corpus spongiosum, pelvic floor, or prostate. Of course, you guys can’t feel what I’m feeling, but has anyone else experienced similar issues and been able to identify it somewhat?

Hello.

Checking to see if anyone here used BPC-157 and has it worked? Also state what has it fixed or improved and what dosages you were taking and for how long? Those that used it, have you gotten side effects (which side effects), and which dosages were you taking and for how long?

Also state whether you were taking oral or injectable(where), or whatever other form of BPC-157 there is.

(Apparently some people on the PSSD group had experienced sexual benefits with this, including some people on this pfs group but not a lot of comments and posts on it on here.)

Please answer thoroughly. This is for research and I'll be doing this for other compounds, drugs, n meds.

I think this shit made my acne scars worse, or something. Im 19 told I look 22 because of the skin .

My sexual function and insomnia seems to be slowly recovering after the crash. Can the skin also?

Is there any point in continuing an HCG protocol (500 IU, 3x/week) if I’m feeling worse on it?

I’ve been on it for 5 weeks. Initially, it seemed to help quite a bit, but lately my sleep has become much worse and I generally feel unwell. I’ve had PFS for several years with no improvement, so I’m trying to figure out whether this could just be an adjustment period or a sign that the protocol isn’t working for me.

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Im curious if they presented as normal for some of you yet still had symptoms or did it present as low ?

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As the title says, I’m thinking about contacting a TV program that features dramatized reenactments of real-life stories and asking them to cover my experience with PFS.

The program often covers rare diseases and other poorly understood medical conditions, so I think there is a good chance they would be interested. That show is quite popular.

At the end of each episode, a medical expert or someone knowledgeable about the condition usually explains the illness in more detail. If this were to happen, I would like someone from PFS Network to appear and explain PFS.

I haven’t submitted my application yet, so I don’t know whether it will actually happen.

I’ve seen that a lot of people have a tight pelvic floor, but I feel like it’s the opposite for me. I have:
• more skin around the scrotum / balls
• my balls hang lower than before
• the skin feels looser / more slack

Does anyone else have the same thing? What could it be related to? Thanks

Who has the link

I saw people who heal their gut also improve mental side effects. But can it help erections and libido too?

I don’t know if I have SIBO or something else, but my stools are greasy and float even with a healthy diet.

I still have low libido and ed (I have side effects since 5months. Tooks only 4 pills. I hope i’ll recover)

For some reason my sexual stuff is almost normal these few days but my eyes have been feeling dry and sensitive for a bit now. Can this go away ?

I tried finasteride 3 times, and the most recent time was the worst of them all. I got hit with side effects I’d never felt before, mainly persistent testicular pain. It’s been 4 months since I stopped taking the medication and the side effects persist but they fluctuate wildly. Since stopping in January, my mood and focus got better after a few weeks but the sexual sides and testicular pain persisted. I had a 2 week period in March where the sexual sides disappeared completely and I felt totally normal except for the testicular pain (which also fluctuates), but then my libido completely disappeared for a few weeks. My only symptoms at that point were sexual. I had another 2 week period in late April where I felt totally normal except for the testicular pain, but that ended last week when I started sleeping terribly again and I got horribly depressed for about a week. My mood and focus got a lot better since then again, but the sexual sides persist. I have been getting morning wood again and I have a spontaneous erection here and there, but my libido is just absent now.

Is it a good sign that I’ve fluctuated this intensely this early on? Is it a bad sign? Compared to stories I’ve read on here it doesn’t look like I’ve crashed as bad as others and it seems like I’m a mild case. I’m curious to your feedback because you guys probably know better than anyone.

For context I had pfs for 5 months after a single pill I had all the symptoms except ED . Through a blood test it was confirmed I had low free test and available test my levels were 6.52nm/ol . Now they are in the normal range . I was also taking 2 DHEA tablets daily which helped significantly, which helped contribute in my recovery since I stared this protocol I now feel more motivated , more energy drive , ect. I get some brain fog and fatigue here and there but it’s not nearly as bad as before when I first had this . I understand this will now work for most people , and there isn’t a cure for pfs yet but I think it’s worth a shot ; and you don’t know what will happen if you keep trying stuff instead of waiting to naturally recover and reach a baseline.

I started taking Finasteride/Dutasteride for hair loss thinking it was safe, but ever since then my life has completely changed.

I’ve been dealing with:

• almost no libido
• erectile issues
• depression/anxiety
• constant fatigue
• emotional numbness / feeling empty
• brain fog and lack of motivation

Before this medication I felt normal, energetic, and emotionally connected. Now I barely recognize myself. It feels like something in my body and mind completely shut down.

I know some people will say it’s psychological, but these symptoms started after using the medication and never fully went away. I’m posting because I feel isolated and want to know if anyone else experienced the same thing and whether things improved over time.

If you recovered partially or fully, what helped you? Lifestyle changes, hormones, time, supplements, anything?

I honestly just want my old self back.

I know PFS is not related to serum DHT levels, but I did a test just to be sure. I got 0.9 nmol/L, which seems normal, although I see different reference ranges when I look it up.

Anyone familiar with proper reference ranges for serum DHT?

Other stuff:

Test: 13,2 nmol/L

Estradiol: 51 pmol/

LH: 3,9 IU/L

F.S.H: 4.8 IU/L

SHBG: 35 nmol/L

I’m 5 years into PFS, and for a long time the physical changes affected me even more than the sexual symptoms.

Last month I started trying to improve my appearance again because I felt like my face had changed a lot over the years. I looked tired, softer, less masculine compared to before. Then I added tongkat ali every morning, and surprisingly my face started looking much more masculine again. I also started putting on muscle more easily.

I honestly don’t fully understand how tongkat ali is helping me, but the difference has been very noticeable for me. When I compare pictures from before, I looked really bad compared to now.

The biggest difference is social reactions. Just 2 months ago people ignored me, women never looked at me, and I felt invisible. Now when I go to bars or nightclubs, women approach me a lot more and I receive many compliments again. It feels like I got my old face/vibe back.

I just wanted to share my experience in case anyone else noticed physical/facial changes with PFS and found improvements with certain protocols.

Yesterday I was impotent and shrunk with moderate mental sides

Today I easily got a 90% erection but the mental is unbearable I want to die