By far the most debilitating symptom for me is muscle and soft tissue pain and wastage. iIs there any chance for improvement?!? severe nervous system deregulation is a close second.
i have a 15 pound Chihuahua Mix that has been super athletic since he was a puppy. He is now 7 years old. In December I became super sick. Turns out my condo had mold/water damage. He was shaking/not wanting food. So I took him to an emergency vet. They thought he had IVDD. I thought mold exposure was the cause.
i lost my mind and took him to his vet. They don’t agree he has IVDD. I don’t know what to do next. I included a video of how he walks which looks normal to me. These are the symptoms:
- Slower to rise from laying down
- Minor shifts in bed to find a comfortable position.
- More hesitation before jumping.
- Not wanting to play ball as much.
-Shifts position in my lap or jumps off my lap where before he was comfortable.
- Just does not seem himself. Much more laying down.
- Licks his lips more and more bowel movement.
What could be going on and what steps can I take next?
I just know something is bothering him.
Thank you in advance!
I am always in pain. I believe most of it is nerve related.
is this a reverse sneeze or more serious?!? Awaiting response from his vet. But, I'm scared
For those of you suffering from severe painn. both nerve and soft tissue. is there anything you have done that has eased pain?!! I need some windows of of relief or hanging on will be tough.
I was dumb enough to have a hip procedure and now have massive complications that I am trying to get Disability. Each MRI shows progressing tissue damage. No one can tell me this doesn’t have to do with PFS. My pelvic area and lower lumbar has been wrecked since I first stopped Fin six years ago. I had no idea it was PFS. I have a high threshold for pain. but, I’m straight up crippled and getting worse. They can’t save me. God. how is this medication fucking legal?!? I am going to die because of the effects from this med.
I loved life, my friends,job and my hobbies. Looking back the signs were there for years and never blamed Fin. I had Lower back discomfort on my bike and nothing helped it. I had discomfort between my balls and ass crack and I kept blaming it on my saddle for my bike. GI discomfort and bloating. I could not put on muscle like I had pre fin. Food intolerances, some weird pain around my liver when doing hard cardio. some knee pain and hip pain which I now know was more nerve related
I did all forms of PT including pelvic floor PT. I believe the source of hip pain was coming from nerve damage from Fin. Not actually bone destruction related to the hip. I fucking let an ortho surgeon talk me into surgery. Now this is what is going on.
if I can’t get disability I probably have money for about 16 months. I won’t allow my self to go homeless. I had a condo paid off. it has wayer damage and i am reactive when I’m there. I am in the process of trying to sell. No one believe me. They think I just slowly lost my shit. The more is end them info about PFS/PSSD the crazier they think I am. I had a house, makimg gray money, respected and looked up to by so many in my feold. Great personal and inyimate relationships. This drug slowly was rotting me from the inside.
• Worsening Joint Stability: The report notes "new areas of incomplete fibrous membrane formation" around the acetabular cup.Additionally, you have progressive muscle wasting ("interval progression of asymmetric atrophy and fatty infiltration") in your left hip rotators. This directly supports claims of weakness, instability, and chronic pain.
**•** **Fluid Leakage: A "focal rent within the anterior pseudocapsule" means joint fluid is escaping and decompressing into your thigh muscles, which can cause localized swelling and discomfort.**
The first place to start if you haven’t done so click on the new patient tab on the top right. it can really help with your understanding of this disease. Dont depend solely on strangers in a subreddi. I wish I had followed this advice. we see many people posting after recently stopping and not understanding the difference between PFS and side effects.
I started Fin in 2010 and we didn't have the info we do now. Social media has made us look fucking insane. Please guys, don't try to reason with people that don't get it. Sub Reddits like Tressless has a mob mentality. Why the fuck would anyone play Russian Roulette?!? It isn't out battle to wage against the deniars.
I had it all at one point. Great career spanning 14 years and an amazing salary. I travelled for my job in two countries and had a great house, car and relationships with great friends. I was close to my sister and really had it all. Now I have none of that. This poison has robbed me of everthing.I sent w info below to my sister and her reliance was “ I don’t want to hear it“ the info below was a simple Google search. As far as anyone is concerned I just went completely insane and ” I need to get myself together“
Yes, post-finasteride syndrome (PFS) is widely reported to be associated with severe and persistent mental health issues, including major depression, severe anxiety, and suicidal ideation.
The Mental Health Toll of PFS
Emerging research and databases—including the FDA Adverse Event Reporting System (FAERS) and the World Health Organization's database—show a strong statistical link between finasteride use and severe psychiatric symptoms. Reported psychological issues include: [1, 2, 3]
Why Does This Happen?
Finasteride works by blocking the conversion of testosterone into dihydrotestosterone (DHT). This process also inhibits the production of key neurosteroids (such as allopregnanolone) in the brain. Neurosteroids play a vital role in regulating mood, stress, and cognition, and their depletion is believed to trigger or worsen severe mental health conditions. [1, 2, 3, 4]
I first got off Fin in 2020 and if I had known about PFS maybe things would have turned out differently. I could have used this resource. not sure if it existed in 2020
Thinking about the lives lost and destroyed from PSSD/PFS and related diseases is insane. How does Western medicine just continue to dismiss us?!?Prescribers and big Pharma are straight up killing people. How long will society continue to ignore this?!?Someday we need this to be recognized as a legitimate disease/syndrome along with other complicated auto immune conditions.
in 2023 7,5 Million prescriptions were filled for Fin. I couldn’t find more current data. Is this so rare that it is less than 1% of us?!? is that why it is ok that our lives get fucked. Make it make sense, please someone tell me why our lives are disposable?!?
There is just so little left of the guy I once was. it feels like my brain is in a state of atrophy. I was reading this shit can cause your neurons to stop firing and grow new ones in severe cases. it is so crazy to think back. I remember thinking how much healthier I was than my parents who smoked and drank. I really thought I was healthy. I was eating right, hitting the gym. Rode my bike 30-60 miles a week.Had a great career and friemds. Meanwhile I was taking a fucking biological weapon daily peaches of my insecurities . I dismissed side effects as just getting older.
I wasn’t even fucking balding when I started this poison. Thought I was super smart taking it before hair loss became an issue. FML!! if I was told there is a 1% chance you will completely destroy your life by taking this med. I may have still thought “Not Me” idk….. but with the info we have now readily available how are people getting on this shit?! It is heart breaking to see kids not even old enough to hit a bar basically wreck their lives because of misinformation from jack asses.
I used an anti depressant back in 2020 when I first got off. I think it is what made it permanent.
On behalf of those that are severe cases and those that have crashed to a worse state due to interventions that you thought would help. please, if at all possible just look up foods and products to avoid the first 12 months. After 12 months pursue research and risk tolerance to guide your next steps. This is going to cut my life shot drastically. I would love for that to not happen to Others. Do not underestimate this disease. You are a crash away from loosing everything.
Have you guys thought about as you get older and have no chocie but to take medications. Have you thought about what you would do?!? or are you expecting to be healed or maybe a cure is available at that point?
The last crash that did me in was June/July of 25. I took an otc head cold medication. I had looked it up. But, I accidentally got the wrong one that affected serotonin. Almost immediately had vertigo and felt like my head was going to explode. I knew I would never be the same. I had tolerated Omega 3 and Magneium. After that crash everything became an issue, nothing was safe any longer.Anything can fucking crash us at anytime. Just venting and wishing I had cashed it in years ago. Things got super messy the longer I tried to hold on and in denial about my symptoms.
We are seeing folks that have found this subreddit after using Fin. But, as we find out more info. a lot of us have used a stack of some sort of different types of DHT blockers including Shampoos, supplements etc… I used shampoos along side Fin for years. Did you guys make the same mistake?!?
I am having some discussion in my previous posts. Is it possible to get PFS from short term exposure ex: one pill. or do you think it is merely Placebo effect and they just need therapy?!?
this is his take on one pill exposure:
“don’t believe that people can get PFS from one pill. Don’t get me wrong I think Fin is absolutely the devil, and shouldn’t be given to us. I myself am facing the consequences of using it. But… I think the using it once then suffering from PFS is an urban legend based off of people’s paranoia and placebo effect. Those people should also be in therapy for help also.”
I spent a lot of time on the Propecia help forum boards in the past. There is just way more data going back over ten years. While many find levels of recovery and some feel they have full recovery. The one thing that pops up even on this forum is people feeling levels of recovery then crashing. Identifying all the triggers is nearly impossible. I still believe this disease can sit dormant and recovery looks like remission. Just like cancer you can go the rest of your life with it in remission Meaning a possible crash(worsning of symptoms or new symptoms)) is always a real possibility. Also, one mans version of a severe case is another‘s mild case. No one can claim to have all the answers. We can only do our best to avoid known triggers. Food, supplements, high stress levels and medications.Also, it seems sexual sides seem to be the most persistent even when other things resolve.