Long time patients
People who has this for more than 6 years, how has it been changing for you ? Is it getting worse ? Better? No change, I’m a long time sufferer and I feel like it’s changing, like mostly getting worse I guess
People who has this for more than 6 years, how has it been changing for you ? Is it getting worse ? Better? No change, I’m a long time sufferer and I feel like it’s changing, like mostly getting worse I guess
It’s interesting that, with all the havoc this creates, the body can still somehow manage to survive. With the majority of extreme illnesses, the endgame is death, but it’s strange that this one just doesn’t seem to kill the host. It almost looks like it was bioengineered for some kind of social/state funded study.
Flair: night time pfs thoughts.💭
Looks like I'm going through another random crash. I can't think of anything new that could've caused this shit. Damn, I don't know what to do or where to turn. Pray for your brother in need.
Sometimes I feel like my hands are about to shake or I’m gonna implode or explode, fuck it comes random, and also I feel pressure in my head and around ears, has anyone have any advice that I can use ? Godbless
I know insomnia is one of the issues, but even when I sleep, it doesn't feel like real sleep. It actually feels like sleeping makes me even more tired. I think sleep is one of the main problems. Brains doesn’t get the chance to repair or recover itself, This shit is brutal.
Shit feels like it kills one of the body’s key organs, like one essential thing just stops working. It’s like running a car without engine oil. Unbelievable.
Just a venting post. Wanted to share my frustration because misery loves company. One of the darkest things about this illness is that it doesn’t go away, even for a bit. Even on good days, it can come back instantly, and even if it doesn’t, you still end up thinking, How long will this good window last?
For the past few days, I’ve been feeling crippling anxiety. I’m not sure where it came from. Just trying to lay low and hoping it passes soon. Take care and god bless.