r/BFS

https://www.reddit.com/r/BFS/s/fk1xhXFrCb

Since this original post I have had a progression of symptoms which are concerning. I have been to another neuro that performed another emg/ncs and clinical exam and stated that there’s no way imaginable I could have a serious disease with what she has assessed especially being 30y old.

Symptoms that I have ongoing that concern me but she didn’t care to listen or link to anything serious.
I Can’t put on weight. Have been eating excessive amounts of food for 3 months and have not gained a kg. I track everything I eat in terms of calories too which is how I know. My forearms get strained really easily by doing difficult hands on tasks but nothing out of the ordinary that you’d expect excessive pain. I wake up nearly every night with numb hands on both arms. If I go for a walk my feet go numb or start burning. My fasciculations are constant like many of you have in calves but mine are in my forearms, calves thighs, triceps and back. In my case I’m starting to believe there is the chance of operator or unskilled neurologists performing tests and not listening to presenting symptoms.

Should I get a 3rd opinion from a neuromuscular specialist give the progression of my symptoms? It’s been 3.5 months since sudden outburst of full body fasciculations and 6 months since fascics started in my calves.

Follow up to my initial post: https://www.reddit.com/r/BFS/s/wnUIoxY0ng

Since then I’ve been mostly successful in putting the twitching in the background and I have been back to enjoying my life and back to sports and walking an average of 13,000 steps a day in August even though my twitches are now literally everywhere. They pop up every few seconds in a different muscle in my body and stay there for a few seconds to a few minutes and then move with my calves and foot arches being constant 24/7.

Something that started happening 2 days ago is that my foot arch fasciculations have become so heavy and severe that they cause popping but also cause my big toe to move away from the other toes and this causes a very painful cramp. It mostly happens when I have no shoes or socks on and when I am laying down on a couch or bed. It is extremely painful and uncomfortable and while I have been able to ignore the twitching, this is tough to ignore and is leading to difficulties sleeping. The cramps also happen whenever I am swimming. Magnesium glycinate used to reduce my twitching but now it does not anymore and certainly does not reduce the cramping.

Has anyone experienced this and found any solutions and something that has helped them sleep?

Thanks

The last few months felt like pure hell.
Everything felt so real.
The weakness, the atrophy.
Crying every day, nightmares every night.
Painful twitches and spontaneous cramping.
Every movement causing twitches.

Pinpricks all over my body, and myoclonus even in the day.

Everything felt so wrong.
Every time I remembered I had an EMG coming up, I would have severe panic attacks.

Over the past month, I slowly de-escalated and now enjoy life. I completely forget I even twitch sometimes. It still happens, but it's less intense. Even though my EMG is tomorrow, I am surprised at how chill I am. I do not think this is ALS is whatsoever, especially at 21.

Original posts:

https://www.reddit.com/r/BFS/s/DWIjDzGB22 https://www.reddit.com/r/BFS/s/PlKa6lSarf

After the mri/blood results came back clean and the neurologist in Thailand recommended I see an MND specialist I flew back to the UK and went to see specialist at one of the leading MND clinics in the country.

He told me I clinically do not have MND as I have absolutely no weakness or physical signs of MND. He booked me in for a follow up in 6 months and said he expects me to be exactly the same and does not expect to see any weakness then. He said he believes the abnormal EMG results were incidental and not related to MND. However he didn't really have a real explanation for them. He was entirely unconcerned by the twitching/fasciculations.

It has helped reassure me, however it doesn't really feel resolved and I still have this underlying anxiety that it's just early stage MND. I can't help but link all these things from the past few months/year or two together.

My latest spiral is that I've quite clearly been suffering from mild depression/apathy, lack of interest in being social, brain fog and difficulty with articulating myself for a few months. Which again is apparently something that can be caused by early stage ALS. I had initially blamed this on being unhappy with moving to a new city combined with lingering long covid brain fog.

Rationally I can see how the anxiety about this illness can spiral, but it feels impossible to not construct these scenarios that explain everything in the context of having the disease.

I don't know if it's worth getting a 2nd opinion in the UK? I'm booked in for an initial call with a therapist on the NHS next week as well as it's clear that I am spiraling mentally as well.

Tell me, how did you do it? I have had it for six years now and they remain as annoying as in the beginning. It certainly didn't help that they increased.

I haven’t posted here in a while because I’ve been trying different avenues on getting better. My main symptoms was I felt off in a little bit weak in March 2025. I was diagnosed with Hashimoto’s from there. I started levothyroxine August 2025 I started noticing muscle twitches and even more weakness. I ended up getting a clean EMG in October 2025 and then in November 2025 from two separate neurologist, the first one showed fasciculations in my lower extremities. The second one was normal. Both nerve conductive studies were normal. I’ve been dealing with full body weakness since September 2025 we are now in August 2026. I’m so weak I’ve been out of work because of it my legs get super stiff. My quads are very weak. My shoulders are weak, and I experience on and off like muscle twitching, flareups flare, and I’ll notice more weakness in that area. When these twitches initially happened, they were my thighs. My legs have overall gotten a lot weaker in a year. I’ve been less mobile. I feel like my knees are always collapsing. My neurologist have been trying to treat me for a variant of unknown significance in the SC4NA Gene, which is a form of Periodic Paralysis which he thought was paramyotonia finding out from a genetics specialist that this variant is only 5% pathogenic and I’ve been treated with Diamox and doesn’t really seem to show any advantages. I went to the university of Penn med and saw a Dr Lauren Elman who is the MDA clinic chairperson and was the head of the ALS clinic for a while at the university of Pennsylvania along with a professor of neurology . We had about an 80 minute chat about everything going on. I passed a clinical. I was able to squat get back up walk on my heels and toes strengthen my hands she said my muscle bulk was normal. My reflexes were normal little brisk on my knees my walk was normal. My tongue was strong. Showed her the two previous EMGs that were done and she told me hand to God. She does not think I have ALS. That I do not have ALS after a year I would show worse symptoms or at least a clinical weakness or clinical failure. She said I had peripheral nerve hyperexcitability syndrome. With a root cause of possibly from Hashimoto’s back in March 2025, causing an idiopathic syndrome. She really only prescribed tonic water at night about 7 ounces and to try to start PT. Since then, I have felt extreme amount of weakness definitely in my legs if I start driving, and I hold my arm up too long on a steering wheel, my arm can hurt for a week the shoulder could feel weak for a week. She didn’t think it was medically necessary for another EMG. She said I show no signs of atrophy and my CK levels have always been in a low normal like 60 or 70. I’m very limited on what I can do. I’m just tired easily walking and I feel internal vibrations. I get tremors sometimes, but the biggest thing is the weakness mainly in like the biceps and in the thighs I’ve had work ups like you wouldn’t believe I’ve seen every single doctor. You can imagine besides a gynecologist and I’m a male. How do I get this fear out of my head I feel like I’m just waiting for a clinical failure. I’m completely exhausted almost all the time. Should I demand another EMG? I’ve noticed a lot of younger males especially that were physically active Seem to progress a lot slower, and don’t show clinical weakness for a while. Please if anyone has any insight, please let me know.

I noticed a few months ago that my right calf was slightly smaller in circumference than my left one. It is about 1cm smaller or so.

The difference has not changed since I noticed it and I had an EMG a few weeks ago in that exact calf/leg that came back normal. Also a recent spine MRI that was normal.

My right leg with the smaller calf has a slightly crooked knee that makes my foot kind of go outward when I walk. Maybe that could have caused some muscle imbalance explaining this?

My rheumatologist says because we just EMG’d the calf and my MRI was normal, that it probably was always that way and I never noticed it before freaking out about ALS. She said the actual muscle looks healthy and full in and of itself despite being a bit smaller. She didn’t feel it looked atrophied.

Anybody else have unexplained calf difference? I’m trying not to freak out but I am lol.

I am writing this post because, more than two and a half years ago, I would probably have been looking for exactly this kind of personal account. Please don’t be surprised if the writing sounds a little too polished at times. I’m not a native English speaker and used AI to translate the text. Although I now know that, when you suffer from health anxiety, it is often better not to spend hours browsing forums like this, reading positive experiences from other people may still help as a first step.

I cannot diagnose anyone or offer medical reassurance. I simply want to share what symptoms such as muscle twitching and a subjective feeling of weakness—and the fear associated with them—did to me, and what gradually helped me escape this spiral.

How It All Began

For me, it started in March 2024—or at least that was when I first really noticed that something did not feel right. Initially, I experienced a slight feeling of weakness in my hand. Shortly afterwards, the sensation spread to my forearm and thighs. I noticed it more strongly on my right side than on my left.
At first, I thought it might be caused by a trapped nerve or my thyroid. I have Hashimoto’s thyroiditis, so I suspected there might be a connection. However, when I suddenly woke up one night short of breath and feeling as though I was having difficulty swallowing, I went straight to the emergency department.

I spent almost a week in the neurology ward. Numerous tests were performed, including blood tests, nerve conduction studies, SEP, MEP, EMG and an MRI. None of them revealed anything significant. I was discharged without a diagnosis and was told: “Come back if one of your limbs becomes paralysed.”
I was devastated. The symptoms were still there, but apparently no one could find a cause.

Over the following weeks, the feeling of weakness in my legs became even stronger. Walking for any significant distance or length of time felt almost impossible to me, even though I had always been physically active. Naturally, I began searching online for possible causes. I continued to suspect my thyroid because I was also constantly tired and losing weight.

When the Muscle Twitching Started

About three months later, muscle fasciculations began—and that was when everything became considerably worse. At first, the twitching occurred in exactly the same places where I had felt the weakness. It then spread throughout my body, although never in several places simultaneously.
The duration also varied. On rare occasions, a muscle would twitch in the same place for several hours. Most of the time, it lasted only a few seconds before appearing somewhere else. My tongue was an exception, as the fasciculations there sometimes lasted longer.

When I added “muscle fasciculations” to my search terms, I quickly came across A**, and my anxiety shot through the roof. It did not take long before I ended up in the emergency department again with a panic attack. Another EMG was performed, which once again showed nothing abnormal. I was discharged the same day—again without a diagnosis.

A whole carousel of additional symptoms now joined the subjective weakness and muscle twitching. I increasingly experienced pressure or a lump-like sensation in my throat, the feeling that I had excessive saliva in my mouth, alternating pain in tendons and muscles, and eye floaters.

This marked the beginning of an odyssey through different medical specialists: neurologists, rheumatologists, endocrinologists, orthopaedic specialists, radiologists, ophthalmologists and others. Yet nothing significant was found. I spent a fortune on doctors, blood tests and mineral analyses while constantly trying to find the answer myself.

The Anxiety Spiral

The good news was that, during the first year, there were repeated periods in which the symptoms improved. Although I felt the subjective weakness and muscle fasciculations almost every day, their intensity fluctuated.

Despite this, the fear of A** and of my symptoms getting worse was almost always my first thought when I woke up and my last thought before falling asleep.

I also started strength training again. Initially, it reassured me that I could still lift weights and even improve my performance slightly over time. However, that reassurance never lasted very long.

Quite the opposite: I became obsessed with constantly testing my strength and monitoring every tiny detail of my body. Naturally, I suddenly discovered areas I had probably never consciously looked at before. If, for example, my forearms looked different from a particular angle, my mind immediately jumped to possible muscle atrophy.

My wife supported me as well as she possibly could throughout this entire period, and I am incredibly grateful to her. Still, I repeatedly asked to squeeze her hand as hard as I could so that I could check whether I still had enough strength. I would also ask her to perform certain exercises that I had convinced myself I could no longer do as well—such as yoga poses that involved standing on one leg.

Every form of reassurance lasted only briefly. Then I would discover a new area, a new sensation or a new test.

The BFS Diagnosis

Within that first year, I consulted another neurologist who also had experience with rare neurological conditions. She took my concerns seriously and carried out a number of examinations. These included another EMG in several different muscles, which was normal apart from a single fasciculation.
She reassured me and diagnosed me with benign fasciculation syndrome, or BFS. She also showed me a publication that specifically mentioned that BFS can be accompanied by a subjective feeling of reduced performance or weakness, as well as other symptoms.

For the first time in almost a year, I was able to calm down a little.
Unfortunately, that feeling lasted for only about three months before the anxiety spiral was triggered again. A short time later, I returned to the same neurologist. By that point, I had already been examined by a total of seven neurologists.
She performed another EMG and tested me for various antibodies. Once again, nothing significant was found. I felt reassured again—this time for a little longer.

To be on the safe side, I also arranged an MRI of my brain, cervical spine and thoracic spine. Again, nothing was found that clearly explained my symptoms.

Therapy and an SSRI

By the middle of 2025, I was back at my neurologist’s office because of my fear of A**. This time, she raised the subject of anxiety in connection with BFS. Therapy was recommended, and I was prescribed an SSRI.
At that point, therapy did not help me very much. Looking back, I think the main reason was that I remained convinced that my problem could not be psychological and that an undetected illness had to be causing it.
As long as I held on to that belief, I could not genuinely accept that the anxiety itself might be part of the problem. To me, the symptoms were the only problem—not the way I responded to them.
The SSRI did, however, help me remain calmer for a longer period. Whether that was due to the medication itself or a placebo effect honestly does not matter to me. After almost two years, I finally experienced a longer period during which I was nearly symptom-free, apart from occasional muscle twitches.

New Symptoms, New Fear

Then new symptoms appeared. The pressure in my throat became stronger, I once again noticed more saliva in my mouth, and I had the feeling that the left corner of my mouth was constantly wet and that saliva was leaking from it.

Naturally, my mind now jumped to bulbar A**, and my anxiety shot up again. I went back to my neurologist, and once again the EMG was normal. This time, however, even that was not enough for me.
I became convinced that I needed to see an absolute expert. Eventually, I found a doctor who had previously led an A** specialist clinic and booked an appointment with him.

He was very direct—and at that moment, that was exactly what I needed. After I described my symptoms, he asked how he was supposed to help me. After all, I could still move everything normally, I had strength and I looked fit. He had already guessed that I was afraid of having a motor neurone disease.
He smiled and told me that almost every month, someone my age or even younger came to see him because their muscles were twitching and they felt weak. I am now almost 40. He asked me to guess how many of those patients had actually turned out to have A**. His answer: not a single one.
He also told me that he had treated hundreds of people with A** and that only two had been under the age of 30. The others had been considerably older.
He also explained, in essence, the difference between a subjective feeling of weakness or rapid fatigue and objectively measurable loss of strength. By that, he did not mean feeling as though you have less strength. He meant, for example, genuinely being unable to push against even light resistance.
He said that a few clinical examinations often allowed him to assess quite reliably whether there were signs of a serious neurological condition. In my case, he saw no such signs whatsoever.
At the same time, he emphasised that my symptoms were not imaginary. In his assessment, however, they were not caused by a neuromuscular disease. Instead, he thought that several factors might be interacting—including anxiety and possibly metabolic issues or deficiencies involving substances such as calcium or potassium.

What Ultimately Helped Me

So what actually helped me? Honestly, it was not one appointment, one examination or one sentence that suddenly changed everything.

It was a combination of the statements made by my neurologist and the specialist, the long period without any real deterioration, exercise, the SSRI and—above all—doing considerably less research.

I still experience symptoms today. I continue to have a subjective feeling of weakness and muscle twitching. The crucial difference is that I no longer give them much space in my life.

I accept that they are there and do not immediately start another round of research. I do not instantly test my strength or search for a new explanation.
When the urge becomes particularly strong, I deliberately distract myself. Often, after about 30 minutes, I realise that it has already become better. In the past, I would probably have spent those 30 minutes testing my body and searching for symptoms online. By doing that, I might have kept the anxiety alive for hours or even days.

Today, I try not to react to every thought and every physical sensation. It does not always work perfectly, and there will probably be moments in the future when the anxiety becomes stronger again. But I now know that I do not have to follow it every time.
I am also going to begin therapy again. This time, I am approaching it with a different mindset. I no longer want to prove that my anxiety is justified by an undetected physical illness. I want to address the anxiety itself and learn behaviours that will help me deal more effectively with both the fear and the symptoms.

That does not mean that I think my symptoms are imaginary. They are there. But I have realised that I can influence how much space I allow them to occupy in my life.

Why I Am Writing This Long Post

First and foremost, I am writing it as a conscious conclusion for myself and for a period that consumed an enormous amount of space in my life. For the past two and a half years, a large part of my thinking revolved around my symptoms and the fear of a serious illness.

Fortunately, I have a job that I was able to continue doing well despite everything. I also have an incredibly patient and understanding wife, as well as friends who supported me.

But things could have turned out differently. I could have fallen much deeper into this spiral and potentially jeopardised my job, my marriage or my friendships.

That is why I want to make other people in a similar situation aware of what such an anxiety spiral can do to your life. I am not trying to tell anyone what their symptoms mean. I cannot and do not want to do that. But perhaps my story can help someone recognise their own patterns of behaviour sooner.

What I Would Tell My Former Self Today
Have your symptoms assessed by an appropriate specialist, and speak openly about your anxiety as well.
For a long time, I spoke only about my physical symptoms and treated the anxiety as a logical consequence of them. Looking back, I should have explained much earlier just how completely that fear was controlling my everyday life.

Take the specialists’ assessments and the actual course of your symptoms seriously.
After every normal examination, I found a new reason why it might still not be sufficient. I kept moving the point at which I would finally allow myself to feel reassured. As a result, the spiral started all over again every time.

Stop searching online for absolute certainty.
ChatGPT, Reddit, Google and other online sources do not have the one answer that will silence your fear forever. Quite the opposite: You become increasingly consumed by the subject and eventually convince yourself that you are the one exceptional case to whom none of the previous assessments apply.
You can spend years trapped in this cycle without ever finding the certainty you are searching for.

Do not turn exercise and everyday activities into constant strength tests.
Exercise helped me. At the same time, however, I used it for a long time as a way of continually checking myself. Every exercise became a test, and every bad day became possible evidence of deterioration. Movement, strength training, endurance and flexibility should be part of your life—not your daily self-administered neurological examination.

Do not use your wife or someone else as an instrument for measuring your grip strength :-)
She can support you, but she cannot give you the absolute certainty your anxiety demands. No handshake and no yoga pose will provide lasting reassurance if, only a few hours later, you are already searching for the next piece of evidence.

Do not see therapy as an admission that your symptoms are imaginary.
That is exactly how I viewed it for a long time. I thought therapy could not help me because my symptoms were physical. Today, I understand that both things can exist at the same time: real symptoms and anxiety that determines how I respond to them.

Have potential deficiencies investigated within a reasonable medical framework, but do not keep ordering new tests in search of one hidden explanation.
I spent a great deal of money on doctors, blood tests and mineral analyses. Yet my anxiety always found another possible cause that might not have been investigated thoroughly enough.

When the urge to research appears, do not react immediately.
Distract yourself first and give the feeling some time. Today, I often find that it has already improved after about 30 minutes. Not every thought needs to be pursued, and not every physical sensation has to be explained immediately.

My Personal Conclusion
Perhaps moving on does not mean that the muscle twitching or subjective feeling of weakness has to disappear completely. Perhaps it simply means that these symptoms no longer get to decide how my day unfolds or how I spend my time.
I do not know whether every symptom will eventually disappear. But I no longer want to make my life dependent on that happening.
I cannot tell anyone what their symptoms mean, and my story is not a substitute for an individual medical assessment. All I can say is that I spent more than two and a half years terrified of a future that, to this day, has not happened. At times, the anxiety—and the way I responded to it—took more of my quality of life than the symptoms themselves.
Writing this post is another step towards bringing the past two and a half years to a close and no longer giving my symptoms more space than they deserve.

Does anybody feel belly twitching after sneeze too hard? So anoying

Update from my previous post, I know this fine be childish compared to people actually having issues, but other than my various twitching, I don’t think I have weakness though sometimes I wake up and feel sluggish, though it could just be poor sleep due to worrying about this awful disease. I’m only 22, and I start school in a week, so my nerves aren’t helping me either. I’ve been constantly testing my strength and going on 4 mile jogs lately to make sure my motor functions still work, and really nothing has progressed over the week I’ve been worrying about it.

This is mostly a post so maybe people can help or call me irrational. Any help kind redditors I guess??

Please let me know if anyone had an ENG report like this.Thanks

I posted my symptoms today in this group and when I checked my health chart,my EMG results were posted which was done 10 days ago by a neuro muscular department.So thought of posting my results as well along with the symptoms that have progressed.I had another EMG done 1 month ago by a physiatrist and it did not show anything.Please see my previous post for the detailed EMG report by a physiatrist.Wondering why the first report did not mention anything
Summary:
The right sural and median sensory nerve response shows normal peak 
latency, normal SNAP amplitude and normal conduction velocity.

The right median, peroneal and tibial motor responses show normal distal 
latencies, normal CMAP amplitudes and normal conduction velocities.

F-wave latencies are normal.

Needle electromyography of the bilateral gastrocnemius, tibialis anterior, 
and vastus lateralis muscles demonstrates chronic neurogenic changes, most 
pronounced in the bilateral gastrocnemius muscles, characterized by 
increased motor unit action potential amplitude and duration, increased 
polyphasia, and reduced recruitment. There is no abnormal spontaneous 
activity, including fibrillation potentials or positive sharp waves. The 
remainder of the muscles examined is normal

https://www.reddit.com/r/BFS/comments/1v41x6e/my_emg_test_update/

the above link is the result of my first EMG which was done one month ago and it did not show snything

Below are my symptoms after my EMG

Hi.I had my EMG done 10 days ago and it was normal and it showed pinched nerve in the Lumbar spine.I wanted and tried to move away from this rabbit hole but the increased frequency of twitching and increased stiffness in legs and calf’s causing me not to move away from this.

I was getting twitches before but not so often.But from the past one week ,the frequency has increased and I am getting twitches in multiple parts of the body almost through out the day.

My legs have become week it seems and tight as well.I am getting more twitches in my knees ,elbows,thighs,calves,face,spine.My legs have also become very stiff and they were paining even if I walk for some time or stand for some time.My upper foot is also paining along with this.I feel like I would loose my strength to walk

If I put some pressure on any body part,I am getting twitches in that part which was not the case before.if I rest my hand with little pressure on my thigh,I am getting twitches near to that area.If I bend while working to look at the computer,I get either in chest or spine.If I raise my leg in one angle,My whole leg shivers.Twitches even increasing with movement or bending.If if I bend leg,Getting twitches in my calves/thigh
Lately,I am feeling twitches almost mist of the day

I have bulbar symptoms below which are more concerning.

constant urge to swallow even with out saliva.If I don’t swallow,I feel like some irritation feeling in the throat or need to take a breathe

1.When I lie down on my back with out any pillow or head rest,I feel difficulty swallowing as the bone in my throat feels protruding out and muscles were tight.

I feel lump in my throat when I swallow with out saliva

2.If I talk to speak fast,sonetimes words will not come or my tongue touches mid roof and makes tap tap sound as well as it feels like I am slurring few words..Lately I am observing that My tongue feels tight in the front and difficult to pronounce few words and later auto correct.

3.Pills getting stuck in the throat and some nuts

4.I am unable to talk as loud as before.If I try to talk loud,I feel like my vocal cords does not support and feels shortness of breath

5.I am unable to talk few sentences with out gasping for air.Itfeels like I should pause before proceeding to next sentence.

Iv been having buzzes in my leg and calf feels like im shaking and twitches all over my body im only 16 it drives me crazy and gives me s3cide thoughts.
Blood test came back and my b12 levels are
B12 301 magnisium 0.78 calcium 2.45
Sodium 139 potassium 4.4. Are any of these causing it?

Hi friends, I’m super curious on how often, and where your hot spots are? Do they change frequently? How long has it been going on for you?

Thanks!

What do you guys do to help ignore the non stop twitching when trying to sleep? I have had non stop twitching in my left foot since June 2025 and my right foot joined in December 2025. Both go nonstop and it makes sleep so difficult. What do you guys do that helps you ignore the sensation and eventually fall asleep? I've tried compression garments, lidocaine, magnesium spray and a weighted blanket but when they're bad they're nearly impossible to ignore.

Hi everyone. I wanted to tell my story and see if anyone has experienced it.

Two weeks ago I was having terrible stress and anxiety and all of a sudden my right arm and leg felt heavy. Then it was my whole body, then it went back to just my right and left arm, I can still perform basic tasks and feel Much better when distracted. I started having full body ”popcorn” spasms all over my body That started in my eye lid. I have been a total wreck. I check my body constantly I swear I found a dip in my calf and hand muscles. my muscles in my leg and arm feel weak. But when I walk around the block they feel better and the popcorn sensation subsided. I can’t sleep and I can’t eat. I’ve had throat Tightness for a while that is fine when I’m distracted.

I went to my doctor who sent a referral to a neurologist. I’m scared to death of waiting. And getting bad results. If anyone has been here before please let me know. I truly need some helpful words.

Hi.I had my EMG done 10 days ago and it was normal and it showed pinched nerve in the Lumbar spine.I wanted and tried to move away from this rabbit hole but the increased frequency of twitching and increased stiffness in legs and calf’s causing me not to move away from this.

I was getting twitches before but not so often.But from the past one week ,the frequency has increased and I am getting twitches in multiple parts of the body almost through out the day.

My legs have become week it seems and tight as well.I am getting more twitches in my knees ,elbows,thighs,calves,face,spine.My legs have also become very stiff and they were paining even if I walk for some time or stand for some time.My upper foot is also paining along with this.I feel like I would loose my strength to walk

If I put some pressure on any body part,I am getting twitches in that part which was not the case before.if I rest my hand with little pressure on my thigh,I am getting twitches near to that area.If I bend while working to look at the computer,I get either in chest or spine.If I raise my leg in one angle,My whole leg shivers.Twitches even increasing with movement or bending.If if I bend leg,Getting twitches in my calves/thigh
Lately,I am feeling twitches almost mist of the day

I have bulbar symptoms below which are more concerning.

constant urge to swallow even with out saliva.If I don’t swallow,I feel like some irritation feeling in the throat or need to take a breathe

1.When I lie down on my back with out any pillow or head rest,I feel difficulty swallowing as the bone in my throat feels protruding out and muscles were tight.

I feel lump in my throat when I swallow with out saliva

2.If I talk to speak fast,sonetimes words will not come or my tongue touches mid roof and makes tap tap sound as well as it feels like I am slurring few words..Lately I am observing that My tongue feels tight in the front and difficult to pronounce few words and later auto correct.

3.Pills getting stuck in the throat and some nuts

4.I am unable to talk as loud as before.If I try to talk loud,I feel like my vocal cords does not support and feels shortness of breath

5.I am unable to talk few sentences with out gasping for air.It feels like I should pause before proceeding to next sentence.

Has anybody ever had these going simultaneously in the same arm? I had it today for some time, quite agressive. I have never found anyone with BFS doing that, but I did find some not so comforting examples from the other camp…

Does anyone have hotspots that last hours ? My thigh has been going through fasciculations for the past 2 hours. Same spot.

The last 2 times I got my blood drawn, my arm started twitching slightly after the little rubber tourniquet was applied.

Anyone taking this? Does it help? I'm really considering it because my symptoms continue to worsen.