Wondering if anyone else has felt twitches that come with a side of mild aching.
Not an ache as a result of endless twitching. I’m talking about a pulsating/throb ache that happens with a twitch.
Anyone else randomly get a sudden urge to itch. But the itch is like only a millisecond?
Wondering what I should expect. I was slotted in for a neurologist appointment. Seems like my doctor is pretty young, so hopefully they will also have new knowledge. I would be almost three weeks in since the 24/7 twitching began. I know this is too soon, but I wanted to have a peace of mind and bloodwork done to address any deficiencies.
The doctor seems pretty young and right out of training, so hopefully there will be some new knowledge.
What should I expect?
Some of my symptoms:
Widespread twitching at rest/sleep
Twitches that can feel like light shocks/popcorns
Twitches that feel like they want to turn into cramps
Stiff and sore legs
Hotspots around the thigh and calves
Extreme and debilitating anxiety
Weird skin sensitivity/burning
M21
Been twitching non stop since May 2nd. Almost feels like it’s electrical shocking twitches sometimes.
Longest I’ve gone without twitching since May 2nd was a whole minute. I don’t know what’s going on. Doesn’t appear to want to stop. I literally have to blink when I twitch because they feel more powerful now.
So far, I think my record has been a whole minute without twitching.
Since may 2, my muscles been twitching pretty much every single minute.
Since May 2nd, I have been dealing with constant muscle twitches all over my body. It feels endless, 24/7. My symptoms are progressing and I am getting worse. My legs feel stiff and sore. I have tried walking, in hopes it gets better. I have also tried running, hoping it gets better. My worst fear is I am developing a motor neuron disease like ALS. For the longest time, I’ve also had anxiety about my heart. Whenever I stand up, the heart rate shoots up but the doctors haven’t really looked deep into it. My next few months will be overwhelming with doctor visits.
My close bros and friends — Just a month ago, I was talking with my friend about dreading being stuck in college. We’d talk about when we will be able to meet each other again (he’s currently in a different state). Just last month, we were playing games and talking to each other like there was no tomorrow. Now my mind is plagued with wondering if I have a terminal illness or not. I pray not. Just a year ago, I was hanging out with them for a whole week before they flew to their state. It was the best moment I’ve had in my life. I have only been alive for two decades, and I want to experience more.
My parents — I deeply regret the upset and bad tempers I’ve had. I turned my life around after high school at community college. Working hard to get into a prestigious university to make you guys proud. I also feel bad I had to leave that college. I did not want my parents to sacrifice so much, not having enough money for retirement and putting our house on the line to fund college. I fear that I may be diagnosed with something grim. I want to live a long and happy life, being able to care for my parents as they age. Especially since they are immigrants with my mom, having no direct family here in the United States.
I will always cherish the moments I listened to music with my dad in the car while he dropped me off to school. I will always cherish the moments my mom tried to make me happy, despite me being annoyed. I value every moment we have together, especially now that we spend time exercising and walking in the yard to forget about things.
M21
I am wondering if anyone has gone through this.
Since the start of May (2nd), I have been dealing with muscle twitches all over my body. Calves, thighs, toes, fingers, arms, neck, buttocks, back, stomach. During that time, I also went down a really deep rabbit hole with ALS and other motor neuron diseases.
Then I started having other neurological symptoms. Sore and stiff legs, muscle aches, just overall weird sensations. I have started walking 30 minutes in the morning and 30 minutes at night. I also began throwing in some running, but not too much because my heart rate is always high. I can’t quite attribute to the soreness to that.
Since January, I have been at home doing a semester online at a different college because my previous one was too expensive. It was a “dream” college, but the stress was overwhelming. But I got over that now and felt like my life was back on track.
Now, I have to see a neurologist, cardiologist, and have to get my liver checked.
I pray this is a bad episode of stress/anxiety/sleep deprivation because my symptoms feel so concerning. I fear the day I get a bad diagnosis and prognosis that I don’t have much long to live.
Not too long ago, I was talking with my closest friend about dreading being stuck in college. He’s currently in a different state, so I haven’t seen him in a while. He told me to stop worrying and that we’d have the rest of our lives to hangout. Well, now my mind is ridden with a worry that I have a disease and I won’t be living much longer. I’m worried I’ll wake up one day limping, and the onset of ALS paralysis begins. Since I’m an only child of immigrants parents, I worry who will be able to take care of them as they age. I don’t know why my mind is jumping to conclusions like this, but I have severe health anxiety.
21M Been twitching everyday since May 1. Everywhere from my face, neck, toes, feet, arms, legs, back, stomach, side of head. It never settles down. Not even for 5 minutes. I felt like I had perceived weakness, but can walk as normal. Each day I wake up anticipating I will be limping soon. I try my hardest not to manifest it. But my mind is convincing me.
But now, I am dealing with weird sensations. My right leg and buttocks is constantly sore. It gets tense especially when driving. As a matter of fact, both my legs are now sore and aches. Something is clearly progressing. On top of that, I am dealing with a weird burning sensation when I press my thigh in a certain spot. It’s like a sunburn that’s not there. My soreness isn’t even perceived anymore. It’s clearly there.
Everything is driving me nuts. I am an only child, and I hope I live long enough to support and care for my parents as they get older. They’ve sacrificed so much for me. I want to be able to live a long a happy life with my friends as well.
I went to a PCP the other day and was referred to a neurologist, but I don’t think there’s hope.
21 M
Since Summer of 2024, I was developing really bad LPR symptoms. It went from swollen throat without much pain, to excruciating burning throughout the rest of the year.
Now, I’ve noticed my symptoms have winded down. I can pretty much eat what I used to. I do get occasional flare ups, but I no longer rely on meds, or even gum.
But I’ve realized my GI symptoms have evolved now. My stomachs always growling. I feel use the restroom more often.
My tests always came back negative; h. Pylori, GERD
Still can’t stop stitching since the start of May. I got really anxious, went down an ALS rabbit hole.
Over the past week or so, I began walking in my back yard everyday for 30 minutes. I don’t notice my fasciculations when it happens, but over the past few days my legs have become really sore, achy and tense. One spot on my thigh has a sunburnt symptom when I press on it. But there’s no sunburn there and it’s not hot where I’m at.
I don’t feel like I want to walk anymore because my legs are sore. I’ve read that some lady had this as her first symptom. I’m worried my weakness is starting soon.
I went to my PCP recently and was just told to stop my supplements for now and referred me to a neurologist.
21 years on this earth and this has been my biggest nightmare.
I hope I’m not the only one. But my popcorn twitches feel like mild electrical shocks. I’m not sure I’ve ever felt this before. It’s so overwhelming.
I have my PCP appointment and I’m pretty anxious. 1000/10 anxiety.
21 M
Tomorrow, I’m going to my PCP to hopefully get all of this sorted.
Since the beginning of May, I noticed widespread constant twitching. It was persistent and never really stopped. Every waking minute, it was happening. I don’t remember exactly if this happened after or before I became anxious, but I know at one point I searched up my symptoms and it went downhill.
Restless leg, warm, buzzing, jelly, weak, stiff sensations.
Since today, I’ve noticed my Tibialis anterior being stiff and sore. Something about my right leg in general has been off since the beginning of the month. I felt something off when I was sleeping. I started walking and running today in the afternoon to get my mind off of things, and after that I was chilling. But now, I’m noticing there is clear stiffness in my right leg. When I flex my feet towards my shin upwards, there is soreness and aches. It’s most certainly stiff. Only in the right leg. I’m starting to feel like this is an onset now. This definitely won’t come back to a clean EMG.
I thought my life was on track, and it was just the beginning. Now it’s hard to see that.
Does anyone else feel twitching when they’re asleep?
Sometimes, I am not fully asleep and have some consciousness. Just because people in my house work early, and sometimes I’m slightly awake when hearing noises.
I notice that I am still twitching in my sleep. Doesn’t stop. So concerning. I definitely don’t think my EMG will come back clean.
21 M
Anyone else deal with constant muscle twitches? I hope it’s from my sleep hygiene and not something serious like a motor neuron disease, like ALS. I’ve also been immensely stressed lately.
Since I am doing a semester at home now, my sleep is usually all over the place. I have to regularly fix my sleep by staying up longer than usual maybe like every other week. Some days I sleep at 11 PM. Other days I sleep at 10 AM.
My muscles will not stop twitching, all over my body 24/7. It’s worse when I’m at rest or sleeping. If you’ve experienced this, and from pretty bad sleep deprivation, how long did this take you to reverse?
I don’t know why, but almost always my twitches stop before I can get a look at them. Not sure if it’s because I’m moving. I’ve been trying to capture clips of them to show my doctor because they happen so persistently.
They seemingly stop when I’m ready to record it. So annoying. Not sure what to do because I want to show my doctor.
So, I’ve read that fasciculations are considered benign if they’re caused by reversible deficiency. Dehydration, Vitamin B12, Magnesium…
What if your blood work all comes back normal? Or what if these supplements don’t work?
I’ve noticed this not being uncommon here. Normal bloodwork, supplements not working. If not, what still makes it benign?
I’ve noticed some people here have 24/7, constantly fasciculations and live pretty normal lives, and had clean exams.
I’ve noticed my fasciculations getting worse and progressing. I’ve never felt this much twitching throughout my whole body before. Why or why not is this not indicative of something worse progressing? My twitches seem to happen relatively rarely before the start of this month.
For a while now, since 12, I had always felt something odd about my heart rate. It was regularly high after consuming lots of tea.
Since then, I’ve noticed I had a weird symptom where when I stand or move positions, my heart rate increases a lot. It’s almost like an adrenaline surge. Sometimes it reaches 160 BPM when I stand up and walk around. But it manages to stabilize slowly after a minute or so. Sometimes it also increased a lot when I move positions in bed.
I’ve been anxious about seeing a cardiologist for almost a decade fearing it’s something really bad. I have seen my primary doctor when I was younger about it, and for an ECG and chest xray but nothing was found.
I’ve looked into everything. Every disease, condition, syndrome. I asked ChatGPT. I look through Reddit. Some days, im scrolling for 13 hours, barely studying for classes. My symptoms don’t seem to align with POTS because apparently my heart rate is too severe. When a trainer at a gym was helping me work out for the first time, she said my heart rate was higher than usual and working overtime. I’m also a M21, and apparently POTS doesn’t affect men as much.
Ever since then, I had a persistent fight or flight feeling. Anxiety has been going on for so long, and I’ve built a habit of searching symptoms. I’m trying to balance controlling my anxiety and being normally concerned.
Anyways, I’m seeing my doctor again soon and will be referred to a neurologist and/or cardiologist. Just don’t know how to deal with the uncertainty. It feels like I’m just waiting for bad news and I can’t sleep. I’m just too afraid to leave my friends and parents too soon worse case scenario. We’re all very close to each other. Whatever it is, I hope it’s something benign or at the very least curable/treatable.
I've notice that when I ball my first, and lay it on a table, I am unable to flex/lift only my pinky fingers without it causing tremors. When I try that with my fourth finger (left and right ring finger), it tremors my hand uncontrollably. I'm concerned.
21 M
For the past week and a half, I have been dealing with relentless widespread body twitching. I am struggling everyday to the point where I am crying when I wake up if I can even sleep. I have never dealt with a scare this bad. Ever since I took a LOA from my current university, I have been taking up online community college classes at home. So I find myself scrolling endlessly through BFS, ALS, ALSorNot, MuscleTwitch, and Scleroderma subreddits. Some days, 13 hours doomscrolling.
I have to hide my crying from my mom, because I stressed her out enough with wanting to transfer out of my current college. She also seems to be prone to sickness more presumably from all the recent stress.
I have been noticing that my balance isn't stable. When I self test myself, I am unable to hold myself on a tiptoe without shaking or wobbling. I am able to catch myself though. Even more so, trying to tiptoe on one leg. I can, however, heel walk. I feel my hot spot is in my right leg throughout. From the toe, to pelvic joint. On the other hand, I do get it all over my body. Face, feet, toes, fingers, hand, neck, back, buttocks. I think I am also developing Restless Leg Syndrome trying to test my right leg. Some of these self-tests have also lead me to self-induce cramps. It never feels like it's resting, and I always have to move and test it. It's become sore, warm, jelly-like, stiff/tense, tingly, with perceived weakness. That same leg also feels immensely tense when I'm trying to drive. Additionally, I have a one sided duck foot with this same leg. It's prominent when laying down. My left leg remains straight, meanwhile my right leg is angled. I am noticing everything that comes in contact with my skin, I become hyper reactive to. Hopefully from anxiety and fight or flight; wanting to make sure I'm not going numb. I do notice this all started after google searching my symptoms, but it feels so real and my body feels cold, and I feel more jittery overall.
I will be going to my PCP on Friday, and I assume it will probably be the start of this scary journey as I may get referred to a neurologist. My worst fear is having a new concerning discovery. A dirty EMG, or some kind of neuropathy from my weird sensation. I worry this whole trek will further exacerbate my mom's stress. I am an only child. My heart rate is at an all time high.