r/migraine

I was about 7 years old and it happened right after I ate goldfish crackers for the first time ever. I would not eat a goldfish cracker again for a decade.

On a better note, I finally got affordable healthcare which means I spoke to my provider about my migraines last month. She gave me muscle relaxers (positive that my main trigger is my extremely tense neck and shoulders) and zofran and I love them both so much. I still get 1-3 migraines a week but they go away quicker now.

I used to be able to wear pretty much anything, but after developing migraines I became much more sensitive to fragrance.

I’ve already had to sell Cacharel Noa and Dior Poison Girl because they reliably made me feel awful, which sucks because I love floral gourmands.

For people who get migraines from perfume, are certain notes or fragrance families worse for you? I keep hearing florals are a common trigger, but I’m curious if that’s actually true for others too.

Did you eventually find a “safe” zone, or is it mostly trial and error?

Was so happy to finally be put on a preventative. 10mg was alright but no noticeable positive effects on migraines. 25mg gave me a lot of side effects including difficulty peeing, an increased heart rate and cravings.

50mg gave me depression to the point I couldn’t recognize myself. I’m crying out of nowhere, sleep very poorly, panick all the time, I became obsessed with my weight (was underweight and gained 2 kilos quite fast but I see myself as fat and weigh myself obessively), and also my migraines are just as bad, actually I need more triptans to stop them.

I had already called with the doctor after getting the side effects of the 25mg dosis and she told me to double it and take 50mg. Took it for a month and then desperately asked for an appointment because I wanted to taper it safely. Got an appointment in a month lol so started slowly tapering it myself.

This is so awful, I feel like I lost myself, I just hope this will eventually get better.

the WORST MIGRAINE I’ve ever HAD in my 26 years of migraine. and I’ve had status migraine last TWO MOMTHS PEOPLE!

I took a ubrelvy. 30 minutes pass. go to er for another round of ‘your ct is fine here’s a cocktail that doesn’t work’.

and then the magic hits at the one hour mark. GONE COMPLETELY. NIGHT AND DAY DIFFERENCE. THEY PUT MF MAGIC IN THESE PILLS PEOPLE!!!

skipped my happy ass outta there with an embarrassed ‘hey im good now????’.

WOOOOOO!!!

So I've only just started having migraines, just before my periods as a kind of tortuous PMS

However the curious thing is these only started when I was like 28

The only other severe PMS symptoms I've had started around 25yo when my fatigue used to kill me for a day or two, the fatigue is still there but the migraines are killing me now.

Anyone else got period migraines later in life? Any good long-term cures (except birth control pills)?

It all started with me saying to my neurologist (chronic pain and headache pain expert) that I sometimes vape and it somewhat helps dim the pain and maybe he can offer a specific subscription. He gave me a license and I got 20g (10T10C) a month. I never finished it but my tolerance was rising and I was vaping daily. I slowly started vaping during daytime as well (when working from home, on weekends etc. In parallel and regardless, I was diagnosed with (suspected) endometriosis and adenomyosis. When the pain was bad I didn’t care if I was vaping was too much because I was in such a dark place that it was the only thing that helped me cope. That’s what I also told my partner when he (rarely) said anything about it.
After some time, I started thinking that this is really affecting me in a bad way and I’m not sure how much it’s helping the pain. I was also much better with the endo after my Laparoscopy.
I reached out to my psychologist who suggested consulting a psychiatrist who suggested quitting cold turkey. I did. But after about 2 months I started vaping “only in the evenings” and then it was back to basically the same as before.

So, is it just an addiction and I’m better off? Did it just become my “pacifier” or is it normal to have to use it when living with daily pain?

I have had migraines since I was 8 - Like horrible writhing in pain, crying etc. Nothing seems to help, doctors were no use, never even got a referral to a neurologist. Now 42, I am tackling this issue again as I am so tired of being in pain! A new pcp prescribed Ubrevly. Of course a PA was required and denied, but I used the bridge gap savings card and tried it. Omg. I am a person again, an hour after I literally smiled and said, "is this what it feels like to be migraine free"?!

On another note since my insurance denied the medication. I looked at AbbVie Assist. I do have insurance but unclear of what is actually needed to apply for this program - Any one can advise?

To add I have tried triptans, muscle relaxers and propranolol. - seemed to make them worse and me so fatigued.

Hello folks! This year I started experiencing some strange sensations that seem to be related to migraine, but I'm not really sure...

Usually, screen use leads to eye pain, headaches, and eventually a migraine. However, I also started experiencing some very strange sensations, such as a weird tinnitus-like sensation that seems to muffle my ears and fill my head like a wave, usually lasting for about half a second.

I started experiencing these sensations this year, around the same time my light sensitivity got worse (I've had it 24/7 for the last few years). I recently noticed that they seem to become more noticeable during or after a migraine, especially on the day following a stronger attack.

On the days when I'm feeling less sensitive, using my phone usually results in a normal headache and/or eye pain. During or after a migraine, however, the same use seems to trigger those weird sensations instead of the usual pain. I actually prefer having a headache to experiencing them, because they're so strange and frightening. It's like my head is glitching!

It feels like my migraines may have developed in a way where, instead of getting a headache from screen use, I sometimes get these other sensations.

I don't know if these kinds of sensations are common with migraine. Has anyone else experienced something similar?

I have migraine with aura maybe about once a month sometimes more or less. I also have severe social anxiety and do not perform well in interviews or really anything like them. I am wondering if anyone here has a similar situation and has tried taking a beta blocker to help anxiety. I’ve seen people online say these drugs have caused migraines, but also research shows it prevents them? Just asking for personal experience.

Long time lurker. First time poster. I've had migraines since high school and I'm 36 now. This post is mostly for venting, but advice isn't unwanted.

About a week ago, my Nurtec stopped working. I shouldn't be surprised. It seems like I was heading that way since I've been on it for a couple of years. I take propranolol as my preventative and it's been so good for me.

I've been stuck in a headache cycle for over a week. I messaged my Neuro's office and asked to try an oral steroid to break it. I feel stupid that I didn't also ask for a different abortive since my Nurtec stopped working, but they didn't offer nor give me any instructions. I had a terrible migraine Sunday morning at 3am. I refused to take Nurtec since I didn't want a rebound and it was too late. I took probably 4-5 showers and used all my ice packs. The pain would go away if I was standing. I couldn't lie down. The back and right side of my head was so sensitive. The shower was the only place I could sit down and get relief. My partner found me asleep in the chair where I had curled up and found a specific spot on my head that I could rest it against the back of the chair. I haven't had one like that in years.

I called the after hours nurse line later. My stomach was so upset, I skipped the steroid dose (I was on day 3 of a day 6 pack) since you have to eat to take them. I was barely eating crackers and water. The nurse told me to take ibuprofen to take the edge off. So I did while I waited for a virtual appointment with a doctor (not my neuro). The doctor wants me to take my Nurtec with a triptan. I told her that zolmitriptan nasal spray is the only one that's worked for me in the past. Guess what? It's been 3 days and my pharmacy can't get it. It's out of stock. Luckily, my migraine died down shortly after the call with the doctor, but it's been up and down headaches the past 3 days while I wait. I've been using Tylenol, ice packs, and I unfortunately used Nurtec for two days, but last night I pushed myself through with Tylenol, shower, and ice packs. Telling myself the rebound will be bad.

I messaged my neuro last night asking for the oral tablets of zolmitriptan instead. I know I need to make an appointment and change my meds, but I'm just tired. I went back on the steroids the next day with some anti nausea meds. I just feel like a rollercoaster. The steroids make me wired during the day and then tired in the morning. Tomorrow is my last dose. I don't know if I did the steroid pack correctly. I didn't get any instructions not to take Nurtec. They just sent over the prescription. I'm just very tired and really need to break this migraine. Thanks for reading if you got this far.

Edited to add: I need to push asking for physical therapy for my neck and shoulders. They're always tight. Even if they show me what I can do from home. Has this helped anyone?

i love migraines don't you just love migraines isn't head pain the best headaches too so fun yay

maybe i can convince this one to go away with reverse psychology

Im getting off topirimate / topimax by doctor advice and starting qulipta. (Not working well enough as a preventative and still having too many side effects.)

Anything I should know for getting off it? She is having me go down to half dose and then off.

I know it's a hated drug. It gave me some much needed relief from migraines that were so bad I thought ai was going to die, but I am grateful yo try something else.

I am trying a 15 day steroid taper for the first time. Prednisone 25 mg for 3 days, 20 mg for 3 days, etc. I am on day 6 and feeling a bit “tired but wired”. The hope was to break a long never ending cycle. Anyone else try this and have luck? How did you feel while doing it? Any feedback would be appreciated. :)

33F, been having migraines for the past 4-5 years. They always affect the left side of my head, behind my left eye and at the temple, going down my face and the back of my head. There might be some bad posture involved too that makes the pain at the base of the head worse. The current flareup has been going on since Saturday. This time it spread into the teeth on the upper left as well. My dentist said I am severely grinding on my teeth in sleep and all the muscles there were sore. My pcp prescribed 25 mgs of Sumatriptan to begin tonight and I am just so nervous after reading so many of the bad experiences. I don’t have any of the health risks but I do have health anxiety, which does not help at all. Ibuprofen has not been helping and I am exhausted at this point.

I've been drinking alkaline water with electrolytes all day and my head a lot feels better for the first time in while. What does this mean?

I’ve had chronic migraines for seven years and have tried it all. Triptans don’t work, not sumatriptan, rezatriptan, none of them. Ajovy didn’t help. Botox didn’t help. Nerve blocks didn’t help. Vyepti didn’t help. Neither did these three drugs taken in their own but I’ve started taking Propranolol in the morning and Aquipta and Amitriptyline at night and I’m finally feeling human again. Thought I’d share.

Every two or three years i have to make an 3 month treatment of Topiramate, and i don't remember what can i expect the first days... i feel very full, and i'm on 12,5mg starting for going later on 25mg permanently