r/migraine

I have had a migraine attack for more than 30 hours. I haven’t eaten anything, and I couldn’t do anything except cry and that would make me feel even worse. I tried putting a cold cloth on my head, but it didn’t help. I told my mom, but she doesn’t believe me and keeps trying to wake me up every time I try to sleep. This is the longest time my migraine has ever been this severe and continuous for so many hours, even while sleeping. My mom intentionally turns on the light and tells me, “I won’t care even if you die.” My sister also yells at me, and no one believes me. Please, I just want someone to care and tell me what to do. My temperature has also increased, I can’t move my head, and I feel extremely sleepy.

Im feeling like a Karen but I’m about to take off on a 10hr flight and somebody on this flight is wearing a strong af cologne. Oddly, I asked my friend if she could smell it and she can but not as strong as I do and it isn’t bothering her.

I wonder if we are like more sensitive to scents in enclosed spaces or something, maybe just in general? It smells like someone poured an entire bottle of old spice on themselves then soaked in Irish spring for an hour.

I feel like I’m going to faint, my stomach is in knots like I was fine and excited for this trip and the SECOND the smell it my nose it was like an immediate reaction from my body.

I just took my nurtec. My mouth is watering and my forehead/eyebrows are throbbing. My cheeks feel numb. I also have crohns so sometimes when my head gets bad enough it triggers a chain reaction of just.. bad things happening lol. IM ON A PLANE. I wouldn’t say I’m at a migraine level but it’s definitely on its way and I can’t escape fml

That’s it. That’s the post. I don’t even know what to do in this situation.

Any plane hacks? I have all night to read them.

I've never flown internationally, so I'm quite stressed about getting a migraine attack while travelling. It always happens after long drives or just sleep deprivation and the pain gradually creeps on me.

I don't have a prescription for triptans or any preventative meds to bring with me (except maybe nausea meds), so any advice? I'd like to avoid being sick as a dog on the plane and during my connecting flights.

Let me start: currently on day 382 since they've become daily 😍

(They were daily from 2022 on but where super mild some days so I don't count this)

Listen. I am aware that I am more fortunate than many; I have pretty good insurance, and I live in a part of the world where I have pretty good access to the infrastructure needed to move drugs from warehouses to pharmacies, etc.

But 3 or 4 times in the last few months, I have been told that a migraine intervention is expensive and resultantly, we should hold off on it - see if the current intervention becomes more effective.

**More expensive for who, Doc?**

My policy covers it at 100%. Its not expensive for me at all. What IS expensive is missing my whole life amd jeopardizing my job because of this chronic, constant, debilitating condition.

I don't care about the cost. Its covered. My doctor shouldn't care about the cost except for instances where they know their patience may not have adequate insurances. The pharmacist shouldn't care about the cost (i get theres the business side of things, where they definitely SHOULD care about the cost, but thats not this conversation.) My insurance shouldn't care about the cost - doctor said I need it and have tried enough options that this is the next prudent step. Why the fuck are we talking about how expensive this thing is?

It is so hard for me not to rage against the machine when the insurance, health benefit manager, and pharmacy are all the same organization who oversees the doctor and rakes in $400 Billion in costs.

Its expensive.

You're expensive. Help me get my life back, Asshole.

I just picked up a new prescription for sumatriptan. From talking with my doctor it was supposed to be like aimovig like in a subcutaneous injector. Instead I got 10 little vials, nothing else. I’m not a medical a professional so injecting via a syringe (if that was their intention) makes me extremely nervous. Thoughts?

I wake up most mornings with a headache. Some mornings it will go away after I get up. Others I can take an OTC and that will take care of it. Others, like this morning, call for sumatriptan.

I’m not able to make a connection to what causes this. Has anyone had a similar experience and figured it out?

Took first dose an hour ago. No relief 😩
What do you do about this horrible taste??

Why must I get a migraine every time I’m on the second day of my period? And why must I also then get ridiculous diarrhea as a side effect from cramps? Is one of these things not bad enough? Can I just have my period, solo, one time, no migraine, or diarrhea. Just plain old ordinary misery? No…I must suffer all 3. At the same time. Every month. Touché Mother Nature.

I'm just venting.

I've had the migraines mostly under control for months now with diet and sandomigran and Botox.

Four weeks ago they flared up badly and I've hardly had a day without migraine. I've been trying everything I could think of to work out what changed or what I might suddenly be reacting to or deficient in.

Finally got blood tests and my GP noted that my thyroid was a little low and I should increase my thyroid meds dosage. This was weird since I've been on the same dosage forever...

... And the penny dropped. I'd finished the bottle of meds five weeks ago but I'd found a few in an old bottle at the back of the meds drawer and was using those up before getting more. I checked. They're two months past the expiry date. For most meds I'm on this wouldn't be an issue but...

I got fresh meds this morning and the migraine is disappearing fast.

I have this balancing act with every one of my dozen ailments. It just never ends. Aaaaaugh.

Vent over. Thanks :)

It’s been eight years. Sooooo many meds. So little time. Alternative therapies included as well as those expensive ones online that have “” coaches to help you with your food, your mindfulness, etc. etc. thousands of dollars and supplements Botox. I’m sure I’m forgetting many of the things I’ve tried so here I am today considering going back on a preventative and the only thing left in Line is ajovy or emgality. What’s everyone’s experience?

Who do you see that you love? Who would you stay away from? Willing to travel to anywhere in the state if they’re good.

I’m 32 female and have had chronic migraines for nearly 10 years and still I always forget/ get confused by the warning signs.
Like have to pee a lot? Oh maybe I’m getting a uti
Everything smells funny? Wells that’s just weird.
Get congested? Maybe I’m getting sick or hay fever.
Tired for no reason? Maybe my sleep was crap.

Then I get a migraine and I’m like oh yup. That makes sense.
Does anyone else do this? Or am I just an idiot? 😂😂

My partner's family has a large dog, and while I admit that I never particularly liked the doggy smell of their house, it never really bothered me, especially after spending some time there and getting used to it. However, ever since I started getting migraines last year, I've found the smell to be almost unbearable when I have a migraine and really visceral and upsetting, to the point that I want to avoid being there. Is this a problem for others?

I've been struggling with daily migraines for a few months now. Every day with no relief. Yes, I've tried preventatives and abortives and all the other tricks, no they haven't really worked. I'm going to see a new neurologist who specializes in migraines in October, so maybe she will help.

Migraines have taken everything from me. I'm not active now, my hobbies aren't worth the energy, I can't enjoy days out because of the sun and smells. Basically everything triggers a migraine unless I lay in bed in a dark room all day. I'm irritated and depressed all the time and probably miserable to be around for my husband. I don't know what to do. I'm only 21 and this is taking away my life.

This is really just a vent post. Sorry I know there’s a lot of these on here but I just wanna get this out. Sorry for the formatting on mobile.

My migraines become chronic in December. I had them as a teenager but it was rare. I’ve seen a neurologist once and I had a brain MRI which was normal. He wrote me amitriptyline which I had to stop due to the side effects being unbearable. My PCP also figured out my vitamin D was extremely low so I’ve been supplementing and it helped for a while then stopped. I have another neurology appointment Monday.

Last week I had a 4 day migraine, the longest I’ve ever had. I called my neurologist and he told me to go to the ER. I went and got a migraine cocktail which fixed it, but Monday morning I got ANOTHER migraine. It’s still here. My meds aren’t helping, ibuprofen isn’t helping, showers aren’t helping, ice packs aren’t helping, nothing is working. I don’t wanna go back to the ER if I can avoid it but I’m at a loss.

I haven’t been able to do anything this week other than work. I took off 1 day last week but I can’t just take a whole week off. My jobs understanding but not THAT understanding.
I can’t do anything when I get home other than cook dinner, shower, and lay down with an ice pack on my head. I can’t enjoy anything. I haven’t been able to sleep well either due to the pain.

I’ll ask if there another preventative medicine I can try when I see my neurologist.
Thank you to anyone who took the time to read my rambling.