2,8 months
Hi everyone! Just checking in 2.8 years after my first symptoms and fasciculations.
I’ve been dealing with MANY fasciculations every single day, all over my body, for the past 2.8 years. My last EMG was done 7 months after symptoms started, and it was normal.
So far, I haven’t noticed anything else abnormal. However, I recently went back to the forum after years away and saw a post from a guy saying he had fasciculations for 4–5 years before eventually developing weakness. He was a 36-year-old man. That really caught my attention because it goes against the logic we usually learn here, what we see online, and even what doctors generally say. Right below his post, another person replied saying it was fake and that he was impersonating another user from the group. Even so, I think that alone was enough to increase my anxiety.
I’m still doing everything normally. Sometimes I feel like one side of my body looks smaller than the other — for example, one glute — but I try to remind myself that body asymmetry is normal.
I wanted to ask you all: after 2 years and 8 months since the first fasciculations, would you personally feel reassured?
I still have multiple fasciculations in all possible areas of my body — at least one per minute.
Big hug to all of you.