u/Impressive_Aerie7270

I went into this game not really knowing what to expect. I found the storyline a little vague, but the exploration was a blast and I enjoyed hunting things down. I am somebody with a lot of chronic illnesses, so the drifter coughing up blood at random was weirdly really relatable to me. Just reminded me a lot of my episodes/issues happening but life goes on and you just get back to your usual shit after it happens. I finally got to the final fight and figured I'd just finish the game and go back for the rest of the achievements after. The ending fucking shredded me. I was weeping the whole time. I literally havent been able to go back for achievements lmao. Never in my life had a game's ending feel that personal to me out of nowhere. My illnesses are chronic and I've been fighting them for a long time, so having a game where the MC does everything right, wins against the boss, and dies in the end anyway was absolutely devastating. Too damn close to home lol. Curious if anybody else here is chronically ill or had similar feelings.

Hi all

I guess as the title says, in the span of a few weeks, we realized my mom has this and she was quickly diagnosed. I am late 20s and disabled. I also have autism. My mom has been my biggest comfort, constant, and medical help. I am a bit numb right now but I am desperately hoping other people with autism in this situation can help me figure out how to navigate this. She is my safe person and she is fading. I don't know how to be ok with this. I don't know how to explain to non autistic people how this feels.
My mom is only 60 and this was the farthest thing on our minds, but she is forgetting major facts like which car we own or how to get to the local grocery store.
Again, she is my constant and my safe place. I have a therapist but I need to figure out a game plan to handle myself before this gets worse and I break. I have meltdowns and periods of complete non-functioning so I am trying to figure out what to do as this situation unfolds. I don't want to be a burden on my dad, so Im more asking about tips for ME rather than specifics on what to do with my mom. I know as it gets worse I will be non-functioning if I don't figure out what to do so I am really trying. Im not sure if an autism page would be better but figured I would start here. Im so scared. Im so sorry you all are dealing with this feeling, too.

TLDR; Work is on medical leave rn, I need money, unsure how dangerous it is to push through fatigue, seeking advice.

I have a variety of chronic illnesses, but the fatigue is by far my worst symptom. Over the past year I had worked a part time job that was on my feet, and I was unable to function work days despite the part time hours. I'd come home unable to shower or feed myself or do anything but go to bed. I quit that job one I had enough savings and it took a few months to find my next, an office job. I tried it for a week, had a severe medical episode, and have been on leave ever since. I had the month of may off, and really need money, but am unsure what to do now.

Currently, I am able to drive again but if I leave the house for long, I need 1-3 days to recover. I can run brief local errands, but more that that I need 2ish days of extreme rest. I do feel like my capacity has slowly gotten better over the weeks, but I don't know where my energy level will settle. My new workplace is EXTREMELY accommodating and has been very understanding and kind, and it pays well, so I would really like to give it a shot. I could probably swing more leave, but I doubt more than another month would go over well, and again I really need more money.

I moved and my primary care doctor is new, so he only knows about the recent work issues and I don't have documentation of the last job situation since I'd just left. I am wondering how risky it is to try and push through and just get back to work? I am inclined to just give it a try and see how it goes, but its a bit messy socially since they keep wanting specific dates and times and I can't give them that. I've thought about disability but would really prefer a normal job, plus I appear pretty normal when I have good days so I don't think itd be easy to get.

I honestly don't know much about ME/CFS. I get better when I rest but I can't do that forever. I would PREFER a remote job but it was really hard to even get my current job, my resume is scary looking since my last 2 jobs I left for medical issues and I have big gaps between them.

Thoughts or advice in this situation? My healthy friends don't really understand the nuances of this stuff so I really appreciate any advice you all have <3

Another q for you all- I have suspected MG but am still waiting on my single fiber test. I deal with severe acne and have cycled through all the more conservative treatments, and was hoping to try accutane. From my glance online, accutane is a big no for MG. I messaged my neurologist but while I am waiting on his thoughts- has anybody here done accutane? I was considering doing a lowered dose of it and just seeing how my body reacts/stopping if I notice increased weakness, but I am obviously kinda scared.

I reacted to Metronidazole recently and had severe neck muscle weakness on top of limb weakness that had me bedbound until I stopped it, but now that I know what to watch for I feel a little more confident in just stopping if I feel that coming on? Unsure if that is a famous-last-words sentiment to have though lol.

Hi all- my neurologist has me scheduled for a single fiber test in a month. My symptoms are super random day to day, I'm seronegative and had 2 normal EMGs. I'm trying to figure out how best to go into the single fiber test that would give the most accurate result? When I'm at my best (extra sleep, rest, etc) I have almost no symptoms, but when sick/tired/exercise I am usually flaring pretty severely, especially my ptosis. Is it ok to try and trigger a flare for a single fiber test? Like would that mess with the results or be more accurate? I just want to be as confident as possible if it comes back normal that I should rule out MG.

Thank you!