u/3wildflowers-5

Hello, for my girl turning 12 I was thinking of doing a room makeover with new bedding and small area rug, maybe a lamp. My question is, should I let her pick everything out? Or surprise her? I think I know her taste pretty well and it would be amazing to surprise her. On the other hand, I really want it to be things she loves but not as much fun as surprising her. I remember my mom did this for me in4th grade as a surprise and I loved it. What do you think?

Hi, I have an upcoming titration study + MSLT at Dr. Jerald Simmons' lab. It will include a PES.

-First sleep study I did was a diagnostic study with a generic sleep dr at a hospital. I slept about 1 hour. No REM even though I have tons and tons of dreams at home.

-Second lab study was with Dr. Simmons' lab. It was titration + MSLT. He did not have me use a PES because I mentioned I have terrible anxiety. Again I only slept about an hour, despite them giving me three sleeping pills throughout the night. The room was 74 degrees and I was just too warm with all the crap all over my head. They could not adjust the temperature. I did not get into REM. I felt like I was putting pressure on myself to sleep because I am so desperate to get my life back. They gave me a low CPAP pressure to use. At my follow up, I told the NP that I had no improvement on the low pressure and that I didn't feel it was accurate because I hadn't even gotten into REM. She was no help.

-I had an appointment with a different NP at one of their different locations. She ordered a second titration + MSLT. The problem is that this one will come with a PES. She said, just try it, and if I can't handle it, they can take it out.

-My problem is that I have already "failed" two sleep studies due to very high pressure on myself to fall asleep so that I can get this problem fixed. I thought I was golden for the study where they gave me sleeping pills, but I was very disappointed that those didn't work.

-BEST case scenario: They put in the PES, and I fall asleep for long enough for them to get a correct titration.

-MIDDLE case scenario: I don't let them put in the PES, and I fall asleep for long enough to get into REM but my pressure isn't optimal because they didn't have the PES in. I have had multiple paid consultations to get my settings adjusted (Lefty Lanky, CPAP Friend, etc.) and no one's settings have helped. So I am desperate to get a good idea on what is happening and what settings to do.

-WORST case scenario: They try the PES, I can't handle it and start gagging (I do have a high gag reflex), or get terrible anxiety, and do not fall asleep. Another failed sleep study with nothing to show for it. Even if they try the PES and I can't handle it and they take it out, I think my cortisol will then be too elevated for me to fall asleep.

Please, what should I do? Ask for PES to begin with? Should I try it? Will they get an accurate settings without it? I am a very, very anxious, sensitive person. I am sobbing here because I need to at least get to a baseline where I can at least drive if I am to make any progress going to ENTs and orthos etc. Thank you for your help .

I read the book “Jaws.” I listened to Dr. Paulo on the Jawshacks YouTube. I am planning to take them all to a myofunctional therapist as well as an “airway focused” orthodontist.

-How do I know which airway focused orthodontist or dentists are trustworthy? I feel like some might be slapping on that label the way many food companies label their products “Natural!”. How do I know whether their recommendations are going to result in good airway development? Thank you for any help.

I mean the days when it seems like there is no hope. Very dark thoughts. If my brain was half working I could try to research what to do but I’m in an absolute haze at all times. I am really, really discouraged and the only thing keeping me alive is my love for my children. They are the only ones who would miss me. I have completely disappeared from everyone else in life. Can’t drive.