r/UARSnew

Its been 1 and half years since my surgery and went through really hard time especially fist 5 months, was showing all the symptoms of ens, severe anxiety and sleep disruption have resolved after treating depression, there was paradox obstruction and severe sytemic dryness on intial phase got resolved later, unfortunately i have to cop up with a severe period of fever and lately started the paradox obstruction suddenly with mild pain and bloody mucus from nose, its been two weeks, some degree of relief is there but sensation will lose alternating and some degree of numbness around the nose and eyes and forehead, can anyone help to comfort this situation with your experience , really looking forward to your insights

One final note - I feels pressure feelings sometimes inside my nose after a period of sensory loss which leads to better sensation later, is this nerve issues? Currently i am looking to do filler testing

Has anyone ever done or worked with myofunctional therapy? I have been for about a year. I think it has helped with nasal breathing. I wanted to try alternatives to the CPAP because I was diagnosed with sleep apnea last year. I also have high blood pressure and I’m a former smoker but I don’t drink. I noticed some red spots and it looks like some irrational near my back teeth. I showed it to the dentist and it thinks it may be because of a crown. Could red spots be a sign of irrational from the myofunctional brace?

28M. 180 cm, 85 kg, caucasian

I've been waking up feeling extremely fatigued and exhausted for the past 10 years. It doesn't matter whether I sleep for 20 minutes or a full night—I always wake up feeling completely unrefreshed. There hasn't been a single day during these 10 years when I've woken up even half rested.

The symptom has remained remarkably constant over the years, neither improving nor worsening.

I've undergone extensive testing: multiple polysomnographies (PSGs), comprehensive blood work, and evaluations by doctors from many different specialties. Everything has come back essentially normal.

A few days ago, I recorded my lower body while sleeping and noticed frequent toe movements. Occasionally there are movements of my hands and legs as well, but the toe movements seem to be by far the most frequent. In the past I had recorded only my face and upper body during sleep, and everything looked fairly normal.

Could these movements be relevant, or do they resemble any known sleep disorder that could explain my fatigue?

Some additional information:

• Fatigue is exclusively related to waking up. I suspect something may be happening during sleep that leaves me exhausted.
• After waking up, I usually need to stay in bed for at least an hour because I'm so exhausted.
• I gradually feel better as the day goes on, with evenings usually being my best time of day, although some fatigue always remains.
• I have occasional tachycardia and palpitations during the day, especially when standing still without walking.
• I have very little daytime sleepiness apart from immediately after waking up.
• I almost always wake up with a sore throat, although I don't appear to breathe through my mouth while sleeping.
• I developed mild cervical dystonia (spasmodic torticollis) about 4 years ago, mainly triggered by anxiety or stressful situations.
• No depression or anxiety. I even tried escitalopram for several months in case something had been missed, but it made no difference. I also saw a psychologist for several months.

The video lasts 2.40 minutes : https://public-bucket-upr.s3.eu-north-1.amazonaws.com/VID_20260626_004710_Trim_minified.mp4

Thanks for your help

I'm almost 5 months post-op 17mm advancement. My improvements are noticeable but MINOR... not enough to live a normal life yet. Still classic stuff: fragmented sleep, thick brain fog, sleep deprived fatigue....

PSG at 3 months: RDI dropped from 32 to 16, AHI dropped from 15-20 range down to 5 so far (PSG done at 3months post op.)

My spontaneous arousals are still dozens per hour: 35/hour. <-- My guess is there's some residual respiratory events in there? maybe some neurological misfires form years fight/flight resp. events?

I've heard some people feel noticeably better at 3 months, 5/6 months, 7 months, 9 months and even beyond 12 months?

THIS FEELS CRAZY SLOW... IF AT ALL. Timeline patterns anyone post MMA????? Looking for hope lol.

Hi everyone,
I’m a 23-year-old male from Germany and I’m at the point where I have to decide between two treatment options before my future jaw surgery.
My airway is restricted because of a narrow maxilla, and I also have a Class II bite. I’ll most likely need double jaw surgery later regardless of which expansion method I choose.
The two realistic options available to me are:
EASE with Dr. Bettina Hohlweg-Majert (Munich)
DOME Zero (custom MARPE with slow expansion and aligners) with Dr. Claudia Pinter (Vienna)
Unfortunately FME isn’t available where I live, so these are realistically my best options.
My biggest concern isn’t achieving the absolute maximum expansion—it’s getting the most predictable and symmetrical result while minimizing unwanted facial changes.
I’ve read about cases of unilateral expansion or one side of the midface appearing lower than the other after expansion, and honestly that’s the complication that scares me the most.
From what I understand, EASE uses surgical corticotomies to reduce resistance. Does that actually make the expansion more predictable and reduce the risk of asymmetry compared with DOME Zero/MARPE, or is there no evidence that it does?
I’m also trying to avoid excessive midface widening. My lower jaw is relatively narrow, so I don’t necessarily want a dramatically wider midface if it can be avoided. Is EASE generally considered better for preserving facial balance, or is that just anecdotal?
One more thing: the EASE provider told me they mainly use MSE and TPD appliances. I don’t know much about either of them and I can barely find any information about TPD.
Is TPD considered better than MSE?
Does the appliance itself make much difference, or is the surgical technique and the orthodontist’s experience far more important?
If you had my situation and had to choose between these two options, which one would you pick, and why?
I’m especially interested in hearing from people who have actually undergone either treatment or clinicians familiar with both approaches.
Thanks!

Hi, after struggling with Bilevel for 2 years now and after a Septoplasty/turbinate reduction did little to nothing for my sleep, I am starting to consider FME expansion. I have not had a consultation yet or scans so of course I would have to first determine whether I am a good candidate for this treatment.

However I am a bit skeptical about how effective this treatment would even be for me. I would try it in a heartbeat if it were covered by insurance but since it out of pocket and literally costs half of my life savings I am very worried about spending that kind of money and it not helping my sleep.

Can anybody comment on the likelihood of this actually improving sleep. Is there a very high percentage of success with FME, or is it just another shot in the dark like a Septoplasty. I really appreciate any feedback.

Thanks!!

No matter what I do or what I try, I can't get rid of mask leaks with my moderate PS (5.5 over 5-10.5).

I tried three masks so far: Airfit N20 (sizes L and M), the micro nova (all sizes), and just recently the nova nasal (size M)

The leak rate with the nova nasal looks better on Oscar, but it's shooting air into my eyes and waking me up more than ever. I don't know if I should try a different size (I feel like the cushion wall is sitting on my nostrils rather than on the skin around my nose, and it's not sealing properly on my nose bridge) or just move in to a different mask

I don't know what to do anymore because I believe it's causing arousals and it's also preventing me from assessing my therapy on OSCAR and optimising it

I've been wanting to solve the leak problem before posting here to ask for help with fine tuning my therapy (because I still feel like crap), but I feel like I reached a dead end with the leaks

https://preview.redd.it/0b6iu2lsatah1.png?width=1528&format=png&auto=webp&s=fe993ca7536f573dbc0d6b6c99de945ed8cfc549

https://preview.redd.it/y4stio4tatah1.png?width=1508&format=png&auto=webp&s=c3926e05acc21cec30f55795c8d6407e9ca04890

https://preview.redd.it/w0sl76htatah1.png?width=1510&format=png&auto=webp&s=6f1e2be45056dd77a7eeb72f25914d9e933af990

https://preview.redd.it/8wx6iuttatah1.png?width=1503&format=png&auto=webp&s=2ca61ade3e875ae2534a9c134871581087090975

24M - It’s been a few years since I started the journey of better understanding my issues with sleep, bite, posture, aesthetics.

All the doctors I’ve seen have recommended DJS, though expansion providers recommend doing expansion prior to the surgery while some surgeons recommend going straight for a 3 piece. I think for possible breathing benefit I will likely expand first, but even after making that decision it’s hard to decide the best expansion approach.

Dr. Li recommends EASE with FME , but Dr. Stacey Quo recommends doing a custom MARPE. Each of them have their own valid reasons. I feel like there’s a lot of positive speak about FME online, but also custom MARPE’s truly are custom and Dr. Quo is an experienced provider who has confidence in what she is able to do with the device and my ability to split.

At some point it feels like you just have to go with a provider and trust them bc there’s no way of getting to their level of knowledge on the topic, especially since there aren’t great data that clearly says one approach is better than another?

If the provider does EASE type cuts and fully separates the midline maxillary suture before expansion begins, would FME/MARPE differ in their vertical drop?

In my head, the intuitive physics would say they'd probably drop the same, but this field seems to always flips my intuition on its head, so ya, just curious if this has been discussed or studied somewhere

Just for context, I have small pharyngeal airway and would like to limit vertical drop so as not to incur further tongue collpase while still gaining the benefit of nasal breathing benefits for my uars

thanks :) !!!

Specifically if i swallow my tongue for good tongue posture my airway gets fully blocked, occasionally i snore, sleep has felt suboptimal for years now, think i will get palate expansion eventually.

It’s hard to tell in my nasal breathing is congested since it’s always like that.

This would give me a non bias way to measure it. Is it worth it , is it accurate?

I've recently started treating UARS using a BiPAP and have been experiencing ups and downs. I'd like to hear from the community on how your experience has been once you dialed in your treatment. For example, did it get worse before better? Was recovery linear or staircase? How long did it take to normalize?

For myself, once I began using a BiPAP on sub-therapeutic settings (IPAP 8 EPAP 5), I noticed a brief glimpse of energy that lasted a few days. Since then, I've increased BiPAP pressure (IPAP 11, EPAP 7) and have been experiencing vivid dreams I can sometimes recall as we ll as extremely groggy mornings. After looking this up, I've since learned this could be REM rebound, which is temporary and generally a sign of improvement (!). My glasglow index is around 1.3 so I still have a ways to go, but overall I'm quite motivated.

One of my worst symptoms is my brain fog. It comes with this constant daily headache/pressure. I’m seeing a headache specialist and doing many things for this but so far no full success. I’m wondering if this can be caused by UARS. I’ve been using a cpap for 1.5 years, but it hasn’t really done anything. The thing that’s helped the most in the years with my symptoms is using Flonase before bed every night. I’m wondering if anyone else experiences this head pressure, brain fog, mental fatigue?