u/Straight_Novel_8713

28M. 180 cm, 85 kg, caucasian

I've been waking up feeling extremely fatigued and exhausted for the past 10 years. It doesn't matter whether I sleep for 20 minutes or a full night—I always wake up feeling completely unrefreshed. There hasn't been a single day during these 10 years when I've woken up even half rested.

The symptom has remained remarkably constant over the years, neither improving nor worsening.

I've undergone extensive testing: multiple polysomnographies (PSGs), comprehensive blood work, and evaluations by doctors from many different specialties. Everything has come back essentially normal.

A few days ago, I recorded my lower body while sleeping and noticed frequent toe movements. Occasionally there are movements of my hands and legs as well, but the toe movements seem to be by far the most frequent. In the past I had recorded only my face and upper body during sleep, and everything looked fairly normal.

Could these movements be relevant, or do they resemble any known sleep disorder that could explain my fatigue?

Some additional information:

• Fatigue is exclusively related to waking up. I suspect something may be happening during sleep that leaves me exhausted.
• After waking up, I usually need to stay in bed for at least an hour because I'm so exhausted.
• I gradually feel better as the day goes on, with evenings usually being my best time of day, although some fatigue always remains.
• I have occasional tachycardia and palpitations during the day, especially when standing still without walking.
• I have very little daytime sleepiness apart from immediately after waking up.
• I almost always wake up with a sore throat, although I don't appear to breathe through my mouth while sleeping.
• I developed mild cervical dystonia (spasmodic torticollis) about 4 years ago, mainly triggered by anxiety or stressful situations.
• No depression or anxiety. I even tried escitalopram for several months in case something had been missed, but it made no difference. I also saw a psychologist for several months.
• No insomnia, and no awakening that i know. Never.
• I tried gabapentin 200-400mg for some nights but no results. Just a bit more of fatigue maybe. Cyclobenzaprine, clonazepam, and small quantities of alcohol leave me even more wrecked (absolutely destroyed). From 5 beers and up i tend to wake up easier (i think because i dont get to sleep as profound maybe, so i don t get so destroyed).

The video lasts 2.40 minutes : https://public-bucket-upr.s3.eu-north-1.amazonaws.com/VID_20260626_004710_Trim_minified.mp4

Thanks for your help

28M. 180 cm, 85 kg, caucasian

I've been waking up feeling extremely fatigued and exhausted for the past 10 years. It doesn't matter whether I sleep for 20 minutes or a full night—I always wake up feeling completely unrefreshed. There hasn't been a single day during these 10 years when I've woken up even half rested.

The symptom has remained remarkably constant over the years, neither improving nor worsening.

I've undergone extensive testing: multiple polysomnographies (PSGs), comprehensive blood work, and evaluations by doctors from many different specialties. Everything has come back essentially normal.

A few days ago, I recorded my lower body while sleeping and noticed frequent toe movements. Occasionally there are movements of my hands and legs as well, but the toe movements seem to be by far the most frequent. In the past I had recorded only my face and upper body during sleep, and everything looked fairly normal.

Could these movements be relevant, or do they resemble any known sleep disorder that could explain my fatigue?

Some additional information:

• Fatigue is exclusively related to waking up. I suspect something may be happening during sleep that leaves me exhausted.
• After waking up, I usually need to stay in bed for at least an hour because I'm so exhausted.
• I gradually feel better as the day goes on, with evenings usually being my best time of day, although some fatigue always remains.
• I have occasional tachycardia and palpitations during the day, especially when standing still without walking.
• I have very little daytime sleepiness apart from immediately after waking up.
• I almost always wake up with a sore throat, although I don't appear to breathe through my mouth while sleeping.
• I developed mild cervical dystonia (spasmodic torticollis) about 4 years ago, mainly triggered by anxiety or stressful situations.
• No depression or anxiety. I even tried escitalopram for several months in case something had been missed, but it made no difference. I also saw a psychologist for several months.

The video lasts 2.40 minutes : https://public-bucket-upr.s3.eu-north-1.amazonaws.com/VID_20260626_004710_Trim_minified.mp4

Thanks for your help

28M. 180 cm, 85 kg, caucasian

I've been waking up feeling extremely fatigued and exhausted for the past 10 years. It doesn't matter whether I sleep for 20 minutes or a full night—I always wake up feeling completely unrefreshed. There hasn't been a single day during these 10 years when I've woken up even half rested.

The symptom has remained remarkably constant over the years, neither improving nor worsening.

I've undergone extensive testing: multiple polysomnographies (PSGs), comprehensive blood work, and evaluations by doctors from many different specialties. Everything has come back essentially normal.

A few days ago, I recorded my lower body while sleeping and noticed frequent toe movements. Occasionally there are movements of my hands and legs as well, but the toe movements seem to be by far the most frequent. In the past I had recorded only my face and upper body during sleep, and everything looked fairly normal.

Could these movements be relevant, or do they resemble any known sleep disorder that could explain my fatigue?

Some additional information:

• Fatigue is exclusively related to waking up. I suspect something may be happening during sleep that leaves me exhausted.
• After waking up, I usually need to stay in bed for at least an hour because I'm so exhausted.
• I gradually feel better as the day goes on, with evenings usually being my best time of day, although some fatigue always remains.
• I have occasional tachycardia and palpitations during the day, especially when standing still without walking.
• I have very little daytime sleepiness apart from immediately after waking up.
• I almost always wake up with a sore throat, although I don't appear to breathe through my mouth while sleeping.
• I developed mild cervical dystonia (spasmodic torticollis) about 4 years ago, mainly triggered by anxiety or stressful situations.
• No depression or anxiety. I even tried escitalopram for several months in case something had been missed, but it made no difference. I also saw a psychologist for several months.

The video lasts 2.40 minutes : https://public-bucket-upr.s3.eu-north-1.amazonaws.com/VID_20260626_004710_Trim_minified.mp4

Thanks for your help