r/sleepdisorders

Any recommendations appreciated. I need help. Last 16 months sleeping 0-3 broken sleep a night. No sleep drive at all. Cannot fall asleep for 1 second on own. Benzos only thing out of 30 drugs that can get me an hour but now they are useless. None of the z drugs or psych meds ever worked. Drs say I could have fatal insomnia. Petscan shows hypometabolism everywhere except the thalamus. Muscle spasms. Spinal tap showed elevated 14-3-3 protein levels. CBT-I did nothing. My heart rate is in 50-60’s its not anxiety related. The prior 12 months I had extremely high heart rate panic attacks; hospitalized many times with no answers. Been to various hospitals across country.

Any insight or suggestions on anything that could help is much appreciated.

Well after years of wondering why I'm so tired and brain fogged I did the sleep study and boy oh boy off the charts M:47( alcohol d.o.c recovery). What an uncomfortable and necessary process!

I feel like when I was a kid I was never this bad but it seems like the older I get the harder it is to wake me up, i can’t wake up on my own no matter how many alarms I set, I just sleep through them, I’m also married and my husband struggles so hard to wake me up, on the weekends he wakes up and goes to work at 5 am, he had to call me 50+ times plus set off “find my iPhone” off like 20 times to wake me up.
Ik it upset him but it’s not like I do it intentionally, I hate that I’m difficult to wake up and idek why, it’s not like I’m not getting sleep, I could be asleep for 12 hours and still be impossible to wake up. Im not depressed? Yes my mental health isn’t the best but I don’t know what could be causing it, does anyone have any tips?

I need some reassurance, I’m exhausted.
I’ve been suffering from nonstop insomnia for 8 months now. I know it started from a need for control that eventually expanded into my sleep, but even knowing this, I still can’t seem to get better.

I’ve tried the most common CBT-I techniques, like getting out of bed when I can’t fall asleep, but nothing has really helped. But for about 5 days, I managed to sleep more thanks to a melatonin chamomile drink (even though melatonin usually doesn’t help me). I still woke up during the night, but I was able to fall back asleep.

Then I had my first activity that required me to set an alarm and wake up early. Even though I followed the same routine that had been working, I barely slept at all… only about an hour and a half.

I’m exhausted from not being able to enjoy going out with friends, birthdays, or other activities because I’m always tired. It started during a stressful period because of exams, and now it seems to have perpetuated itself.

I had an initial appointment with a psychologist, but I have to wait until the end of August for the next one, and I don’t even know yet if they’ll be a good fit. But I’m scared that when university starts again in September, I won’t be able to attend properly because I can’t sleep.

Can anyone reassure me that recover is possible and going back to sleeping normally? As evening approaches, I’m already stressed knowing that soon I’ll have to go to bed and spend the whole night tossing and turning again…

I just miss sleeping normally, like I used to. I don’t even remember what that feels like anymore. I’m really sorry for the long post ❤️‍🩹

I have an appointment I moved up with my psych np to discuss this. My sleep has never been great but it has been getting worse recently. Does anyone else wake up 10-15 plus times per night? Sometimes it is from pain or anxiety/stress but there are plenty of times I can’t pin down a reason.

For those of you who have gone through CBT-I (gold standard treatment for insomnia not related to physical causes), how hard was it for you in the beginning weeks?

I just started CBT-I after a sleep study that didnt show any sleep apnea, and after 20 years since my insomnia diagnosis, because all of the sedative hypnotics have stopped working for me.

My sleep therapist warned me that it was going to be hard in the beginning to modify my behavior, and she wasn't kidding. I've not gotten more than 4-5 hours of sleep per night in almost a week, and it is SO HARD to follow the new rules around sleeping and restrictions.

Tell me it gets better... please! One week in and I am struggling.

Need help with waking my GF in the morning

Hello good people.

To explain the situation. I (M31) am having a very difficult time getting my GF (F32) to wake up on time in the morning.

She suffers from 2 different sleep conditions (parasomnia and sleep apnea) which are making it very difficult to get her up and going on time.

I have tried many things:

\- Alarms seem to have little to no effect

\- I try to wake her verbally (good moring, time to get up, you have work, we need to leave in X amount of time, ect...)

\- Gentle shaking only causes lash outs

This is very troublesome as I drive her to work in the morning which is fine but for the fact we both start at the same time of 8:30 so if she doesn't get up soon enough for me to drop her off early then I am late but she gets to be on time.

This has proven to be a persistent problem and I can't continue to be regularly late for work so I need advice on how I can wake her in a more effective manner.

Also for added context no we don't current own a sleep ap machine as they are out of our price range currently.

I first quit smoking for a period of six months and in that time I also had difficulty sleeping up until the point where I started smoking again and then I slept like a baby for the following six months. However, at eight months now of smoking cessation I have still not slept well at all
. any medicines the doctors gave me have ceased to work those being trazodone and Ambien I quit caffeine for four months now I drink chamomile tea, take two forms of magnesium, and I take a skull cap tincture. They did give me Xanax for a while which works fantastically, but I felt like I liked that too much and I eventually just canceled all my prescriptions from the pharmacy because nothing was working. Now the best I can do is stay up late till around midnight and sleep till maybe 3:00 and then lay in bed until six when I have to get up and go to work. I was wondering if anybody else had any sort of similar experience to this the Internet says the withdrawal symptoms should’ve persisted for no more than a month so I’m about to lose it. I don’t know. The only connection that I can make is the smoking cessation

So I have always been a light sleeper. I can usually wake up from someone walking around or any light noises. 90% of the time I'll wake up and be coherent and myself. Well since I was 12 (Now 29M), I have an issue where if I'm abruptly woken in the middle of the night particularly on nights I'm exhausted I will wake up and be a hateful person then fall back asleep and have no recollection of the events when I wake fully the next day. An example, I have gotten phone calls in the night around 4am from close friends and when I answer I have cussed them out and hung up. This is what they tell me the next morning. I can be woken up by my wife in the middle of night and she's simply asking me to move over and I'm rude and hateful when woken up. I don't ever stay awake for maybe more than a minute when these episodes occur. They didn't happen much growing up but have been more frequent since getting married, I think just because I've had someone around more often when I'm sleeping. Any help on where to look for answers would be great! Thank you!

Partner surely has a sleep disorder and it affects our relationship negatively.

I am posting this about my partner of a few years, whom I hope doesn’t find this. Located in the USA.

46 years old
Male
6ft
~350-375lbs
***Has not been to the doctor is probably 2+ decades.
***Has no health insurance.
***Has no desire to see a doctor but I want to try to convince him to go.
No medication other than cannabis, vitamins, and I think some supplements to increase testosterone (otc). Heavy user of nicotine pouches. Usually always one or two in his mouth.

Background: He has been drinking heavily for about 3.5 decades. (I have seen him go through 24-36 beers a night, but that’s been a while. He is down to maybe 6 beers once or twice a week for about two months. I am really proud of him for that kind of progress). He has not touched cocaine or prescription pills in over twenty years. He does use various forms of cannabis for general body pain.

The issue: this man has a two-fold problem that absolutely nothing helps.

1. He falls asleep in downtime like sitting or lying down at home. It isn’t *if* he will, it just how quickly (annoyingly fast). He eats dinner and sits down and falls asleep. He can sleep *sitting up on the side of the bed*. He can sleep in the wildest positions. He snores. He is difficult to wake up. He talks in his sleep every so often, every time, and his dreams are always violent or angry. He is yelling at someone or in some wild situation. I wish I could spend an evening with him instead of listening to him snore (and me giving up and leaving the room).
2. This is the worst bit of his sleep disorder, whatever it must be. He cannot lie down and sleep for long. He will inevitably end up sitting up on the side of the bed, completely asleep. He has done this holding a beer before, though usually if he is holding something now it is his phone or tv remote. Again, inevitably this progresses to him ending up in the floor by the bed on his knees (basically grinding them into the floor for hours if I don’t come check on him or if he doesn’t somehow wake up). His head is on the bed, usually mostly face down to completely face down.

This is EVERY SINGLE NIGHT OF HIS LIFE. He *CANNOT STAY IN THE BED.*

I think poor sleep at night is causing him to sleep more in the day. (Oh and his need for sleep on his days off is intense. He can be awake for about 4-6 hours and sleep the rest of it). It is admittedly infuriating. I’m sure he needs sleep but…

What is this? Why is it happening? Is there anything a doctor could honestly do about it? Is this the road to dementia or Parkinson’s or something? How does this end?

This man hurts himself in his sleep, getting his legs trapped under the bed or a chair or knocking over a fan or other belongings. He has managed to stab his toe with a toothpick and NOT KNOW because he is so deeply asleep. Have I mentioned how hard he is to wake up? Oh, once he ripped most of a toe off in his sleep (before we got together) and glued it back on (it is rather crooked now).

I want time with him, quality time, and I know this is not healthy for him to sleep so much and so poorly. I want someone in my life who is a real partner, not someone I have to… find something else to do while they sleep all the time.

What could this be and what does he do about it?

Thank you infinitely for any responses.

Signed,
A loving partner desperate for answers.

I’m able to achieve getting a 6-9 hour sleep period and wake up fully refreshed; with my phentermine I feel awake as well and have been napping less. However, when I’m driving my body starts to doze off and I begin to fall asleep. There has been multiple times where I’ve went off the road on the highway and reached the rumble strips. I thought it was because I’m not much of a morning person but even when I sleep well it continues to happen. I have to fight my body so I don’t close my eyes for too long or go through episodes of what I call a “flash nap” of 5 seconds. I started noticing this about a year ago and never thought much of it. It’s starting to happen more frequently and I’m just afraid one of these times It’ll end badly.

I’ve messaged my doctor about it and am waiting on a response. I am diagnosed with chronic migraines and have a consult with a neurologist next week.

The only thing is I don’t want to lose my license as it’ll ruin my life due to the fact I commute/drive around for work, am a current college student and I don’t have anyone to chauffeur me places or the ability to get ride shares.

I don’t know how or where to address this but can someone who may understand please speak with me, I have suffered with this for a long time and didn’t realise it was even really happening until a few years back, I have also been a victim of CSA or a family member I was very close with and it resurfaced in my adulthood, which is when I realised what I thought was dreams are really happening to me as I’ve been caught punching kicking biting crying in my sleep by multiple partners and family members that have had to share a room with me or simply seen me sleeping.

I have a nearly 6month old now and shes going through a phase where she only wants to co sleep and I’m scared and I feel my doctor Isn’t listening to me

I was supposed to be booked a sleep examination or whatever it’s called but it never came about so I’m trying to get that again, I don’t really know what I’m asking here but can someone, literally anyone talk to me about this