Scared and hopeless
Hi everyone.
I was diagnosed with dysautonomia while visiting my home country, but I’m trying to get properly evaluated again in the US through Kaiser because my symptoms are still continuing.
I deal with dizziness, nausea, rapid heart rate, weakness, fatigue, and feeling worse when standing for too long or changing positions. Sometimes I feel close to fainting, especially with heat or after showers. My symptoms come and go, which makes me scared that my tests will come back “normal” even though I genuinely feel awful sometimes.
I finally got referred to neurology, but I’m nervous about not being taken seriously or my symptoms not showing during testing.
Has anyone here gone through the diagnostic process with SocalKaiser or had normal tests before eventually getting answers? Any advice would really help.